MYOSITIS UK

Registered charity 327791 · accounts filings on the Charity Commission register · also known as MYOSITIS SUPPORT GROUP, THE DERMATOMYOSITIS AND POLYMYOSITIS SUPPORT GROUP

To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income

£140k

Latest spending

£75k

Registered

1988

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £533,717 against a policy requiring funds sufficient to ensure sustainability through periods of uncertainty. Total funds stood at £673,495, with the charity reporting a surplus of £64,936 for the year ended 31st March 2025. The trustees confirmed that resources are adequate to fulfill obligations and no material uncertainties exist regarding going concern.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: sustainability of the charity through periods of change, uncertainty and financial challenges (held: £534k)

“It is the policy of the charity to maintain unrestricted funds, which are the free reserves of the charity, at a level which can ensure the sustainability of the charity through periods of change, uncertainty and financial challenges.” — page 13

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Myositis UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

LESLIE CHARLES OAKLEY MBEchair
JOANNE DEBORAH GOODE
PAULA RACHAEL JORDAN

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland

Income and spending

Financial year end	Income	Spending
31/03/2025	£140k	£75k
31/03/2024	£262k	£231k
31/03/2023	£116k	£69k
31/03/2022	£85k	£19k
31/03/2021	£347k	£153k

Common questions

Is MYOSITIS UK financially healthy?

Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £533,717 against a policy requiring funds sufficient to ensure sustainability through periods of uncertainty. Total funds stood at £673,495, with the charity reporting a surplus of £64,936 for the year ended 31st March 2025. The trustees confirmed that resources are adequate to fulfill obligations and no material uncertainties exist regarding going concern. Its FY2025 accounts were independently examined.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
THE LAWSON TRUST CIO	2	£12k
IGY FOUNDATION	1	£150k
THE STEVEN BLOCH IMAGE OF DISABILITY CHARITABLE TRUST	1	£91k
BERNARD LEWIS FAMILY CHARITABLE TRUST	1	£90k
THE EDWARD GOSTLING FOUNDATION	1	£25k
THE ADRIAN SWIRE CHARITABLE TRUST	1	£19k
STELIOS PHILANTHROPIC FOUNDATION	1	£10k
THE GEORGE AND ESME POLLITZER CHARITABLE SETTLEMENT	1	£10k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MY MITO MISSION.

MY MITO MISSION income £132k
The UK Myeloma Society income £190k
MYOTUBULAR TRUST income £138k
AOUK & I income £278k
MYOTONIC DYSTROPHY SUPPORT GROUP income £136k
Spinal Muscular Atrophy UK income £1.6m

Side by side with its peers

Charity	Income	Top pay band	Reserves vs policy	Fundraising cost	Going concern
MYOSITIS UK	£140k	—	unclear	—	no doubt
MY MITO MISSION FY2023	£132k	—	within	—	no doubt
The UK Myeloma Society FY2025	£190k	—	above	—	no doubt
MYOTUBULAR TRUST FY2023	£138k	£20,001 - £30,000	unclear	—	no doubt
AOUK & I FY2024	£278k	—	unclear	—	no doubt
MYOTONIC DYSTROPHY SUPPORT GROUP FY2025	£136k	—	above	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.