MYOSITIS UK

Registered charity 327791 · accounts filings on the Charity Commission register · also known as MYOSITIS SUPPORT GROUP, THE DERMATOMYOSITIS AND POLYMYOSITIS SUPPORT GROUP

To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research

Objects

TO PROMOTE THE RELIEF OF PERSONS SUFFERING FROM DERMATOMYOSITIS AND POLYMYOSITIS AND THEIR FAMILIES AND TO SUPPORT AND PROMOTE MEDICAL RESEARCH INTO THE SEARCH FOR A CURE FOR AND FOR BETTER TREATMENT OF THE DISEASES INCLUDING THE PROVISON OF FUNDS AND EQUIPMENT TO SUFFERERS AND THEIR FAMILIES AND TO MEDICAL RESEARCH.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £533,717 against a policy requiring funds sufficient to ensure sustainability through periods of uncertainty. Total funds stood at £673,495, with the charity reporting a surplus of £64,936 for the year ended 31st March 2025. The trustees confirmed that resources are adequate to fulfill obligations and no material uncertainties exist regarding going concern.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints policy and procedures
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Safeguarding policy and procedures
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — Myositis UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

• LESLIE CHARLES OAKLEY MBEchair
• JOANNE DEBORAH GOODE
• PAULA RACHAEL JORDAN

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MY MITO MISSION.

• MY MITO MISSION income £132k
• The UK Myeloma Society income £190k
• MYOTUBULAR TRUST income £147k
• AOUK & I income £278k
• MYOTONIC DYSTROPHY SUPPORT GROUP income £136k
• Spinal Muscular Atrophy UK income £1.6m

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.