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CYSTINOSIS FOUNDATION OF THE UK

Registered charity 1074885 · accounts filings on the Charity Commission register · also known as CYSTINOSIS FOUNDATION - UK AND EIRE, CYSTINOSIS SUPPORT FOUNDATION OF THE UK AND EIRE

To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income
£34k
Latest spending
£19k
Registered
1999
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that net income increased by 64% to £15,193.56, driven by higher fundraising income despite a general slowdown in donations. Free reserves (Trustees' Equity) rose to £222,216.54, with the charity holding £218,627 in the bank as of February 2025. The trustees confirm there are no serious incidents and that future commitments are only entered into once fundraising has covered obligations.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: Future commitments are only entered into once fund raising has covered the obligations. (held: £222k)
“Future commitments are only entered into once fund raising has covered the obligations.” — page 9
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Cystinosis Foundation UK (matched by registered charity number).

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£34k£19k
31/03/2024£21k£16k
31/03/2023£45k£116k
31/03/2022£21k£6k
31/03/2021£20k£11k

Common questions

Is CYSTINOSIS FOUNDATION OF THE UK financially healthy?

Per its FY2025 accounts: The accounts state that net income increased by 64% to £15,193.56, driven by higher fundraising income despite a general slowdown in donations. Free reserves (Trustees' Equity) rose to £222,216.54, with the charity holding £218,627 in the bank as of February 2025. The trustees confirm there are no serious incidents and that future commitments are only entered into once fundraising has covered obligations. Its FY2025 accounts were independently examined.