CYSTINOSIS FOUNDATION OF THE UK

Registered charity 1074885 · accounts filings on the Charity Commission register · also known as CYSTINOSIS FOUNDATION - UK AND EIRE, CYSTINOSIS SUPPORT FOUNDATION OF THE UK AND EIRE

To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general

Objects

TO RELIEVE PERSONS SUFFERING FROM CYSTINOSIS AND MEMBERS OF THEIR IMMEDIATE FAMILIES WHO ARE NECESSITOUS CIRCUMSTANCES IN PARTICULAR BY THE PROVISION OF INFORMATION AND FINANCIAL SUPPORT AND BY RAISING PUBLIC AWARENESS OF THE DISORDER.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Birmingham, West Midlands, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that net income increased by 64% to £15,193.56, driven by higher fundraising income despite a general slowdown in donations. Free reserves (Trustees' Equity) rose to £222,216.54, with the charity holding £218,627 in the bank as of February 2025. The trustees confirm there are no serious incidents and that future commitments are only entered into once fundraising has covered obligations.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Annual return filing dates (Charity Commission record)

Of its last 5 annual returns with a recorded received date, 2 were received after the due date: year ending 31/03/2023 (received 29/05/2024, 119 days after the 31/01/2024 due date); year ending 31/03/2021 (received 14/03/2022, 42 days after the 31/01/2022 due date).

Due and received dates as recorded in the Commission’s annual-return data; the data does not say whether an extension was agreed. Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Cystinosis Foundation UK (matched by registered charity number).

Trustees · trustee networks

• William George Newmanchair
• Alexandra Innes Hutchison
• Bradley Pearson
• David Nigel Benford
• Karthikeyan Ekambaram
• Kevin Burgess · trustee of 1 other charity
• Kirsty Avril Biss
• Thomas Ian Kenning
• Thomas Stuart-Black Kelly

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with CYSTIC FIBROSIS TRUST.

• CYSTIC FIBROSIS TRUST income £12.0m
• MYOSITIS UK income £140k
• THROMBOSIS UK income £204k
• CYSTIC FIBROSIS CARE income £269k
• CYSTIC FIBROSIS COMFORT FUND income £70k
• THE I S A CHARITY income £52k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.