CYSTIC FIBROSIS TRUST

Registered charity 1079049 · accounts filings on the Charity Commission register · Wikidata: Q5201207 · Wikipedia · also registered in Scotland as SC040196 (OSCR)

The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.

Objects

1) TO PROMOTE RESEARCH INTO THE CAUSES OF AND A CURE FOR CYSTIC FIBROSIS AND THE DISSEMINATION OF THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT2) THE CARE, TREATMENT, EDUCATION AND ADVANCEMENT IN SUCH WAYS AS ARE CHARITABLE OF PERSONS SUFFERING FROM CYSTIC FIBROSIS IN ANY FORM AND3) THE EDUCATION OF THE GENERAL PUBLIC ABOUT THE CAUSES AND EFFECTS OF CYSTIC FIBROSIS

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: City of London, London, England (from the postcode on the register)

Latest income
£12.0m
Latest spending
£13.8m
Registered
2000
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity reported a deficit of £1.8m for the year, funded from unrestricted reserves, bringing retained reserves down to £6.7m. The trustees confirm the organization remains a going concern and maintains reserves within its stated policy target range of £4.0m to £6.5m. Total income decreased to £12.0m from £14.7m in the prior year, while total expenditure fell by 8% to £13.8m.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: between £4.0m and £6.5m (held: £6.7m)
“Based on the 2025/26 budget and a review of the above risk factors, the target core reserves range is between £4.0m and £6.5m.”
Per its FY2025 accounts as filed with the Charity Commission.
Related-party transaction: Trustees' donations
“Total donation income from the trustees in the period was £30,681 (2024: £16,701). In addition, six of the trustees (2024: seven trustees) were involved in fundraising activities carried out by regional fundraising branches.” — page 86
“Six trustees claimed expenses totalling £4,987 in the year (2024: four trustees totalling £1,201). These expenses related to travel and subsistence.” — page 86
Per its FY2025 accounts as filed with the Charity Commission.
Related-party transaction: Trustees' expenses
“Total donation income from the trustees in the period was £30,681 (2024: £16,701). In addition, six of the trustees (2024: seven trustees) were involved in fundraising activities carried out by regional fundraising branches.” — page 86
“Six trustees claimed expenses totalling £4,987 in the year (2024: four trustees totalling £1,201). These expenses related to travel and subsistence.” — page 86
Per its FY2025 accounts as filed with the Charity Commission.
Trading subsidiary: Cystic Fibrosis Services Limited
“Income generated by Cystic Fibrosis Services Ltd (“CFSL”), the Trust’s trading subsidiary, was £1.3m (2024: £1.3m).”
Per its FY2025 accounts as filed with the Charity Commission.

Accounts audited by Buzzacott Audit LLP. Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 31/03/2025

  • Volunteers: 162
  • Employees paid over £60,000: 12 (£60,001–£70,000: 7; £70,001–£80,000: 3; £80,001–£90,000: 1; £130,001–£140,000: 1)
  • Has a trading subsidiary
  • Grant-making is its main activity

Self-declared on the annual return for the financial year ending 31/03/2024

  • Volunteers: 200
  • Employees paid over £60,000: 9 (£60,001–£70,000: 4; £70,001–£80,000: 3; £80,001–£90,000: 1; £130,001–£140,000: 1)
  • Has a trading subsidiary
  • Grant-making is its main activity

Self-declared on the annual return for the financial year ending 31/03/2023

  • Volunteers: 183
  • Employees paid over £60,000: 15 (£60,001–£70,000: 9; £80,001–£90,000: 2; £90,001–£100,000: 3; £140,001–£150,000: 1)
  • Has a trading subsidiary

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Cystic Fibrosis Trust (matched by registered charity number).

Public-sector contracts awarded

From the official Contracts Finder and Find a Tender notices (supplier matched by exact registered name). Contract income is distinct from grants.

BuyerContractAwardedValue
NHS EnglandClinical Registry Services for Cystic Fibrosis09/03/2026£132k
NHS EnglandProvision of Cystic Fibrosis Registry——

Structured financials (annual return, FY ending 31/03/2025)

Total income
£12.0m
Total spending
£13.8m
Cost of raising funds
£2.8m
Reserves (reported)
£8.1m
Employees
133

Reported reserves equal ~7.0 months of spending — above the median for charities its size (median 4.6 months; benchmarks).

Per its annual return, cost of raising funds: 23.7% of total income — in the top quarter for charities its size (median 3.7%) (benchmarks).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£12.0m£13.8m
31/03/2024£14.7m£15.1m
31/03/2023£14.7m£12.8m
31/03/2022£15.7m£16.0m
31/03/2021£14.4m£13.9m

Common questions

Is CYSTIC FIBROSIS TRUST financially healthy?

Per its FY2025 accounts: The accounts state that the charity reported a deficit of £1.8m for the year, funded from unrestricted reserves, bringing retained reserves down to £6.7m. The trustees confirm the organization remains a going concern and maintains reserves within its stated policy target range of £4.0m to £6.5m. Total income decreased to £12.0m from £14.7m in the prior year, while total expenditure fell by 8% to £13.8m. Its FY2025 accounts were audited by Buzzacott Audit LLP.

Who funds CYSTIC FIBROSIS TRUST?

Funders whose own accounts filings name CYSTIC FIBROSIS TRUST as a grant recipient include JOSEPH LEVY FOUNDATION, ROSETREES, ROBERT LUFF FOUNDATION LIMITED, PRISM THE GIFT FUND, THE LYNN FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE STONEYGATE TRUSTFY2024Unverified read£1.2m
JOSEPH LEVY FOUNDATIONFY2021£159kJoseph Levy Education Fund and Welfare Grants programme
ROSETREESFY2023£128k
ROBERT LUFF FOUNDATION LIMITEDFY2023£80k
ROBERT LUFF FOUNDATION LIMITEDFY2022£80k
JOSEPH LEVY FOUNDATIONFY2022£79kJoseph Levy Education Fund (£25,000 + £35,000), administration costs (£39,876), and non-financial support
JOSEPH LEVY FOUNDATIONFY2025£71kCF Trust - Joseph Levy Education Fund Grants
PRISM THE GIFT FUNDFY2024£50kGood Health and Well-Being
THE CHARLOTTE HEBER-PERCY CHARITABLE TRUSTFY2025Unverified read£44k
JOSEPH LEVY FOUNDATIONFY2025£33kCF Trust - Joseph Levy Education Fund Admin
THE LYNN FOUNDATIONFY2024£25k
THE STONEYGATE TRUSTFY2022£22k
THE STONEYGATE TRUSTFY2021£22k
JOSEPH LEVY FOUNDATIONFY2025£21kCF Trust - Rest and Relax Fund - Grants
THE ORR MACKINTOSH FOUNDATION LIMITEDFY2024£20k
THE CAROLE AND GEOFFREY LAWSON FOUNDATIONFY2025£20k
JOSEPH LEVY FOUNDATIONFY2025£17kCF Trust - Rest and Relax Fund - Admin
THE CAROLE AND GEOFFREY LAWSON FOUNDATIONFY2024£15k
THE JAMES TUDOR FOUNDATIONFY2023£15kResearch to develop a new treatment for cystic fibrosis
THE JAMES TUDOR FOUNDATIONFY2024£15k
ROBERT LUFF FOUNDATION LIMITEDFY2025£15k
THE STONEYGATE TRUSTFY2023£11k
SIR SAMUEL SCOTT OF YEWS TRUSTFY2023£10k
SANDRA CHARITABLE TRUSTFY2023£10k
SIR SAMUEL SCOTT OF YEWS TRUSTFY2022£10k
SIR SAMUEL SCOTT OF YEWS TRUSTFY2024£10k
ROBERT LUFF FOUNDATION LIMITEDFY2024£10k
THE LAWSON TRUST CIOFY2025£10k
THE ADINT CHARITABLE TRUSTFY2023£10k
THE WILLIAM ALLEN YOUNG CHARITABLE TRUSTFY2025£8k
THE LINDER FOUNDATIONFY2023£7kGeneral Charitable Causes
THE INMAN CHARITYFY2023£7kMedical - Research
THE LINDER FOUNDATIONFY2024£6kGeneral Charitable Causes
PILKINGTON CHARITIES FUNDFY2022£6k
PILKINGTON CHARITIES FUNDFY2024£6k
PILKINGTON CHARITIES FUNDFY2025£6k
THE INMAN CHARITYFY2022£6kMedical - Research
THE INMAN CHARITYFY2025£5kMedical - Research
THE CADOGAN CHARITYFY2023£5kmedical research
THE HOBSON CHARITY LIMITEDFY2024£5kPoverty
THE LAWSON TRUST CIOFY2023£5k
THE LAWSON TRUST CIOFY2024£5kOther grants
THE AMAR FAMILY CHARITABLE TRUSTFY2022£5kHealth and life preservation
THE EDWARD CADBURY CHARITABLE TRUSTFY2025£5kCompassionate Support
THE ELIZABETH AND PRINCE ZAIGER TRUSTFY2025£5k
THE CADOGAN CHARITYFY2022£5k
THE ADINT CHARITABLE TRUSTFY2022£5k
THE EDWARD CADBURY CHARITABLE TRUSTFY2024£5kCompassionate Support
THE CADOGAN CHARITYFY2024£5kmedical research
THE WYSELIOT ROSE CHARITABLE TRUSTFY2024£4k

Grants marked “Unverified read” were flagged by automated checks as possibly misread from the funder’s filed accounts. They are listed, but left out of the totals, counts and funder relationships this site computes.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund23/07/2024£114kBuilding Brighter Futures
The National Lottery Community Fund05/10/2022£250kWork Forwards - Levelling up for a brighter future
The National Lottery Community Fund28/01/2022£10kImproving accessibility of the Cystic Fibrosis Helpline
Sport England26/02/2018£169kCore Market Open Fund 1
The National Lottery Community Fund09/11/2004£491k'Superbugs' & life-threatening lung infection in Cystic Fibrosis

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with CYSTIC FIBROSIS CARE.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
CYSTIC FIBROSIS TRUST£12.0m——above—no doubt
CYSTIC FIBROSIS CARE FY2025£269k—0above—no doubt
HEARTLANDS CYSTIC FIBROSIS CENTRE FY2025£30k—0unclear—no doubt
CYSTIC FIBROSIS COMFORT FUND FY2025£70k—0unclear—no doubt
CYSTINOSIS FOUNDATION OF THE UK FY2025£34k—0unclear—no doubt
Cysters FY2025£74k——unclear—noted

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.