CYSTIC FIBROSIS TRUST
The Cystic Fibrosis Trust works to improve and transform the lives of people with cystic fibrosis by investing in research and its application to patients, driving up standards of clinical care in the NHS, providing information, advice and support for people with cystic fibrosis and their families, campaigning and influencing policy and raising awareness in the media and the general public.
Objects
1) TO PROMOTE RESEARCH INTO THE CAUSES OF AND A CURE FOR CYSTIC FIBROSIS AND THE DISSEMINATION OF THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT2) THE CARE, TREATMENT, EDUCATION AND ADVANCEMENT IN SUCH WAYS AS ARE CHARITABLE OF PERSONS SUFFERING FROM CYSTIC FIBROSIS IN ANY FORM AND3) THE EDUCATION OF THE GENERAL PUBLIC ABOUT THE CAUSES AND EFFECTS OF CYSTIC FIBROSIS
Financial health, per its FY2025 accounts
The accounts state that the charity reported a deficit of £1.8m for the year, funded from unrestricted reserves, bringing retained reserves down to £6.7m. The trustees confirm the organization remains a going concern and maintains reserves within its stated policy target range of £4.0m to £6.5m. Total income decreased to £12.0m from £14.7m in the prior year, while total expenditure fell by 8% to £13.8m.
What the accounts disclose
“Based on the 2025/26 budget and a review of the above risk factors, the target core reserves range is between £4.0m and £6.5m.”
“Total donation income from the trustees in the period was £30,681 (2024: £16,701). In addition, six of the trustees (2024: seven trustees) were involved in fundraising activities carried out by regional fundraising branches.” — page 86
“Six trustees claimed expenses totalling £4,987 in the year (2024: four trustees totalling £1,201). These expenses related to travel and subsistence.” — page 86
“Total donation income from the trustees in the period was £30,681 (2024: £16,701). In addition, six of the trustees (2024: seven trustees) were involved in fundraising activities carried out by regional fundraising branches.” — page 86
“Six trustees claimed expenses totalling £4,987 in the year (2024: four trustees totalling £1,201). These expenses related to travel and subsistence.” — page 86
“Income generated by Cystic Fibrosis Services Ltd (“CFSL”), the Trust’s trading subsidiary, was £1.3m (2024: £1.3m).”
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/03/2025
- Volunteers: 162
- Employees paid over £60,000: 12 (£60,001–£70,000: 7; £70,001–£80,000: 3; £80,001–£90,000: 1; £130,001–£140,000: 1)
- Has a trading subsidiary
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 31/03/2024
- Volunteers: 200
- Employees paid over £60,000: 9 (£60,001–£70,000: 4; £70,001–£80,000: 3; £80,001–£90,000: 1; £130,001–£140,000: 1)
- Has a trading subsidiary
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 31/03/2023
- Volunteers: 183
- Employees paid over £60,000: 15 (£60,001–£70,000: 9; £80,001–£90,000: 2; £90,001–£100,000: 3; £140,001–£150,000: 1)
- Has a trading subsidiary
Public-sector contracts awarded
| Buyer | Contract | Awarded | Value |
|---|---|---|---|
| NHS England | Clinical Registry Services for Cystic Fibrosis | 09/03/2026 | £132k |
| NHS England | Provision of Cystic Fibrosis Registry | — | — |
Structured financials (annual return, FY ending 31/03/2025)
Register events
- Received assets from another charity (30/06/2026)
- Received assets from another charity (23/02/2026)
- Received assets from another charity (23/03/2022)
- Received assets from another charity (11/05/2021)
- Received assets from another charity (21/04/2015)
Trustees
- Richard Hunt CBEchair
- Anthony Hunter
- Daniel Beever
- Dr Kerry Jane Rait
- Dr Maya Desai
- Jane Wainwright
- Martin Walshaw
- Michelle Shore
- Neil Priscott
- Nicholas James Elliot
- Peter Boxer
- Sonya Trivedy
- Sophie Pierce
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £12.0m | £13.8m |
| 31/03/2024 | £14.7m | £15.1m |
| 31/03/2023 | £14.7m | £12.8m |
| 31/03/2022 | £15.7m | £16.0m |
| 31/03/2021 | £14.4m | £13.9m |
Common questions
Is CYSTIC FIBROSIS TRUST financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a deficit of £1.8m for the year, funded from unrestricted reserves, bringing retained reserves down to £6.7m. The trustees confirm the organization remains a going concern and maintains reserves within its stated policy target range of £4.0m to £6.5m. Total income decreased to £12.0m from £14.7m in the prior year, while total expenditure fell by 8% to £13.8m. Its FY2025 accounts were audited by Buzzacott Audit LLP.
Who funds CYSTIC FIBROSIS TRUST?
Funders whose own accounts filings name CYSTIC FIBROSIS TRUST as a grant recipient include JOSEPH LEVY FOUNDATION, ROSETREES, ROBERT LUFF FOUNDATION LIMITED, PRISM THE GIFT FUND, THE LYNN FOUNDATION.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 23/07/2024 | £114k | Building Brighter Futures |
| The National Lottery Community Fund | 05/10/2022 | £250k | Work Forwards - Levelling up for a brighter future |
| The National Lottery Community Fund | 28/01/2022 | £10k | Improving accessibility of the Cystic Fibrosis Helpline |
| Sport England | 26/02/2018 | £169k | Core Market Open Fund 1 |
| The National Lottery Community Fund | 09/11/2004 | £491k | 'Superbugs' & life-threatening lung infection in Cystic Fibrosis |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE CAPRICORN FOUNDATION | 1 | £275k |
| THE MARY KINROSS CHARITABLE TRUST | 1 | £114k |
| SAVING LIVES | 1 | £68k |
| THE PIERREPONT TRUST | 1 | £50k |
| THE ADRIAN SWIRE CHARITABLE TRUST | 1 | £20k |
| THE SCS TRUST | 1 | £10k |
| MRS WATERHOUSE CHARITABLE TRUST | 1 | £8k |
| THE EARL FITZWILLIAM CHARITABLE TRUST | 1 | £5k |
Charities like this
- CYSTIC FIBROSIS CARE
- HEARTLANDS CYSTIC FIBROSIS CENTRE
- CYSTIC FIBROSIS COMFORT FUND
- CYSTINOSIS FOUNDATION OF THE UK
- Cysters
- MYOSITIS UK
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| CYSTIC FIBROSIS TRUST | £12.0m | — | — | above | — | no doubt |
| CYSTIC FIBROSIS CARE | £269k | — | 0 | above | — | no doubt |
| HEARTLANDS CYSTIC FIBROSIS CENTRE | £30k | — | 0 | unclear | — | no doubt |
| CYSTIC FIBROSIS COMFORT FUND | £70k | — | 0 | unclear | — | no doubt |
| CYSTINOSIS FOUNDATION OF THE UK | £34k | — | 0 | unclear | — | no doubt |
| Cysters | £74k | — | — | unclear | — | noted |