PCD RESEARCH

Registered charity 1197528 · accounts filings on the Charity Commission register

To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research intoA) Understanding PCDB) Novel therapeutic targets and therapies for PCDC) Advocating for improved standard of care for people with PCD

Causes: The Advancement Of Health Or Saving Of Lives · Grant history (this charity is a funder) · website · Get email alerts

Latest income

£239k

Latest spending

£19k

Registered

2022

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £232,799.21 and restricted funds of £167,000, totaling net assets of £399,799.21 as of 1st January 2025. Per the trustees' report, the charity has no liabilities and maintains adequate funding to meet expected expenses in 2025. The trustees have established a policy to hold a minimum reserve of £10,000 for contingencies.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: NATA Grant (70% of income)

“The largest receipt was a grant awarded by NATA amounting to £167,000.”

Per its FY2025 accounts as filed with the Charity Commission.

Reserves policy: minimum reserve of £10,000 (held: £233k)

“the trustees have also decided to keep a minimum reserve of £10,000 at all times earmarked for any contingencies.” — page 22

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — PCD Research (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

Alexion — “PCD Research is co-hosting a summit together with Alexion, and co-sponsorted by Alexion, GSK, Eli Lily, LifeArc and Weatherden” (source page)
GSK — “PCD Research is co-hosting a summit together with Alexion, and co-sponsorted by Alexion, GSK, Eli Lily, LifeArc and Weatherden” (source page)
Eli Lily — “PCD Research is co-hosting a summit together with Alexion, and co-sponsorted by Alexion, GSK, Eli Lily, LifeArc and Weatherden” (source page)
LifeArc — “PCD Research is co-hosting a summit together with Alexion, and co-sponsorted by Alexion, GSK, Eli Lily, LifeArc and Weatherden” (source page)
Weatherden — “PCD Research is co-hosting a summit together with Alexion, and co-sponsorted by Alexion, GSK, Eli Lily, LifeArc and Weatherden” (source page)
NATA — “PCD Research is working with NATA to fund a £250k two year research project aiming to progress the development of mRNA therapy for PCD.” (source page)

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Dr Harriet Holmechair
Dr Gurhan Erturan
Florence Barkats
Monica Dawes · trustee of 1 other charity
Natalie Gehl

Trustee list from the Charity Commission register (current, not historical).

Operates in: Australia · Denmark · France · Germany · Greece · Israel · Italy · Japan · Norway · Portugal · Spain · Switzerland

Income and spending

Financial year end	Income	Spending
01/01/2025	£239k	£19k
01/01/2024	£41k	£12k
01/01/2023	£154k	£2k

Common questions

Is PCD RESEARCH financially healthy?

Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £232,799.21 and restricted funds of £167,000, totaling net assets of £399,799.21 as of 1st January 2025. Per the trustees' report, the charity has no liabilities and maintains adequate funding to meet expected expenses in 2025. The trustees have established a policy to hold a minimum reserve of £10,000 for contingencies. Its FY2025 accounts were independently examined.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with Paediatric Critical Care Society.

Paediatric Critical Care Society income £212k
PRIMARY CARE DIABETES SOCIETY income £169k
PTEN RESEARCH FOUNDATION income £716k
THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIATICAL PARISH OF ST MATTHEW CROYDON income £164k
THE CANCER TREATMENT AND RESEARCH TRUST CIO income £502k
National Centre For Universities and Business income £2.9m

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
PCD RESEARCH	£239k	—	0	unclear	—	no doubt
Paediatric Critical Care Society FY2025	£212k	—	0	above	—	no doubt
PRIMARY CARE DIABETES SOCIETY FY2025	£169k	—	0	unclear	—	no doubt
PTEN RESEARCH FOUNDATION FY2025	£716k	£180,001 - £190,000	—	unclear	—	no doubt
THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIATICAL PARISH OF ST MATTHEW CROYDON FY2024	£164k	—	0	above	—	no doubt
THE CANCER TREATMENT AND RESEARCH TRUST CIO FY2024	£502k	—	0	above	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.