CDG UK
To preserve and protect good health for the public benefit by supporting those affected by Congenital Disorders of Glycosylation and funding research into Congenital Disorders of Glycosylation and disseminating all useful results into the public domain.
Objects
TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY SUPPORTING THOSE AFFECTED BY CONGENITAL DISORDERS OF GLYCOSYLATION AND FUNDING RESEARCH INTO CONGENITAL DISORDERS OF GLYCOSYLATION AND DISSEMINATING ALL USEFUL RESULTS INTO THE PUBLIC DOMAIN.
Financial health, per its FY2025 accounts
The accounts state that the charity held unrestricted reserves of £96,697 at the end of the period, having incurred a planned deficit due to a significant grant awarded to the University of Utah. The trustees report that these reserves are held for future projects such as family grants, research, and events.
What the accounts disclose
Policies the charity declares
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/07/2025
- Volunteers: 50
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 31/07/2024
- Volunteers: 20
Self-declared on the annual return for the financial year ending 31/07/2023
- Volunteers: 5
Trustees
- Julia Boonnakchair
- Chantelle Dixon
- Nicole Rourke
- Teerasak Boonnak
- Tim Jardine
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/07/2025 | £30k | £60k |
| 31/07/2024 | £110k | £15k |
| 31/07/2023 | £7k | £11k |
| 31/07/2022 | £19k | £5k |
| 31/07/2021 | £4k | £2k |
Common questions
Is CDG UK financially healthy?
Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £96,697 at the end of the period, having incurred a planned deficit due to a significant grant awarded to the University of Utah. The trustees report that these reserves are held for future projects such as family grants, research, and events. Its FY2025 accounts were independently examined.
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| MIND (THE NATIONAL ASSOCIATION FOR MENTAL HEALTH) | 1 | £292k |
| THE ALLEN LANE FOUNDATION | 1 | £5k |
| THE LAWSON TRUST CIO | 1 | £5k |
| BGF FOUNDATION | 1 | £1k |
Charities like this
- CdLS Foundation UK & Ireland
- THE CHRONIC GRANULOMATOUS DISORDER SOCIETY
- CDH UK- THE CONGENITAL DIAPHRAGMATIC HERNIA CHARITY
- THE CLINICAL GENETICS SOCIETY
- OCD-UK
- MYOSITIS UK
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| CDG UK | £30k | — | 0 | unclear | — | no doubt |
| CdLS Foundation UK & Ireland | £54k | — | 0 | above | — | no doubt |
| THE CHRONIC GRANULOMATOUS DISORDER SOCIETY | £359k | — | 0 | within | 41.0% | no doubt |
| CDH UK- THE CONGENITAL DIAPHRAGMATIC HERNIA CHARITY | £58k | — | 0 | above | — | no doubt |
| THE CLINICAL GENETICS SOCIETY | £27k | — | — | unclear | — | no doubt |
| OCD-UK | £232k | — | 0 | below | — | no doubt |