CdLS Foundation UK & Ireland

Registered charity 1054033 · accounts filings on the Charity Commission register · Wikidata: Q59536566 · also known as CD L S FOUNDATION, CORNELIA DE LANGE SYNDROME FOUNDATION UK

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

Objects

TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS THROUGHOUT THE WORLD TO PROMOTE RESEARCH AND TO ENABLE FAMILIES FRIENDS AND PROFESSIONALS TO MAKE AN INFORMED DECISION AND PLAN FOR THE AFFECTED PERSON'S PRESENT AND FUTURE

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Registered contact address: Amber Valley, East Midlands, England (from the postcode on the register)

Latest income

£54k

Latest spending

£47k

Registered

1996

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a surplus of £6,490, bringing total unrestricted reserves to £146,889. Per the trustees' report, this reserve level is above the stated policy target of holding two years' operating budget. The charity is unincorporated and relies on donations and fundraising events for its income.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: two year's operating budget (reserves figure: £147k)

“The Foundation's aim is to hold two year's operating budget in reserve.” — page 5

Per its FY2025 accounts as filed with the Charity Commission.

Related-party transaction: Natalie Blockley, who is the wife of Charles Blockley, was paid £16,800 (2024: £16,800) for administration services, during the year.

“Natalie Blockley, who is the wife of Charles Blockley, was paid £16,800 (2024: £16,800) for administration services, during the year.” — page 12

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Investing charity funds policy and procedures
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

Public fundraising profile: JustGiving — CdLS Foundation UK & Ireland (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Bjorn Harris · trustee of 1 other charity
CHARLES BLOCKLEY
DAVID AXTELL
Dr Bethany Pang
FAYE KETT
Jack Young
Kim Wildborne
Ryan Saunders
Sara Peaford-Smith

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2025	£54k	£47k
31/12/2024	£49k	£46k
31/12/2023	£62k	£64k
31/12/2022	£52k	£54k
31/12/2021	£45k	£33k

Common questions

Is CdLS Foundation UK & Ireland financially healthy?

Per its FY2025 accounts: The accounts state that the charity ended the year with a surplus of £6,490, bringing total unrestricted reserves to £146,889. Per the trustees' report, this reserve level is above the stated policy target of holding two years' operating budget. The charity is unincorporated and relies on donations and fundraising events for its income. Its FY2025 accounts were independently examined.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	21/02/2006	£306k	Behaviour Disorder+Family Adjustment: Cri du Chat, Cornelia de Lange + Ange

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
JOFFE CHARITABLE TRUST CIO	1	£400k
THE VTCT FOUNDATION	1	£24k
THE MELETE FOUNDATION	1	£10k
THE KILROOT FOUNDATION	1	£5k
THE HISCOX FOUNDATION	1	£1k
The Squire Patton Boggs Charitable Trust	1	£200

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE CJD SUPPORT NETWORK.

THE CJD SUPPORT NETWORK income £261k
MLD UK income £28k
THE DYSLEXIA FOUNDATION income £315k
CURE DHDDS income £131k
DOWN SYNDROME INTERNATIONAL income £389k
Cysters income £74k

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
CdLS Foundation UK & Ireland	£54k	—	0	above	—	no doubt
THE CJD SUPPORT NETWORK FY2025	£261k	—	0	above	—	no doubt
MLD UK FY2025	£28k	—	0	unclear	—	no doubt
THE DYSLEXIA FOUNDATION FY2025	£315k	—	0	unclear	—	no doubt
CURE DHDDS FY2025	£131k	—	0	unclear	—	no doubt
DOWN SYNDROME INTERNATIONAL FY2025	£389k	—	1	below	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.