CdLS Foundation UK & Ireland
Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.
Financial health, per its FY2025 accounts
The accounts state that the charity ended the year with a surplus of £6,490, bringing total unrestricted reserves to £146,889. Per the trustees' report, this reserve level is above the stated policy target of holding two years' operating budget. The charity is unincorporated and relies on donations and fundraising events for its income.
What the accounts disclose
“The Foundation's aim is to hold two year's operating budget in reserve.” — page 5
“Mr Alan Peaford is a director of Aerocomm Ltd. During the year, the charity paid £Nil (2024: £1,504) for editing and production to Aerocomm Limited.” — page 12
“Natalie Blockley, who is the wife of Charles Blockley, was paid £16,800 (2024: £16,800) for administration services, during the year.” — page 12
“Mr Alan Peaford is a director of Aerocomm Ltd. During the year, the charity paid £Nil (2024: £1,504) for editing and production to Aerocomm Limited.” — page 12
“Natalie Blockley, who is the wife of Charles Blockley, was paid £16,800 (2024: £16,800) for administration services, during the year.” — page 12
Trustees
- Bjorn Harris
- CHARLES BLOCKLEY
- DAVID AXTELL
- Dr Bethany Pang
- FAYE KETT
- Jack Young
- Kim Wildborne
- Ryan Saunders
- Sara Peaford-Smith
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £54k | £47k |
| 31/12/2024 | £49k | £46k |
| 31/12/2023 | £62k | £64k |
| 31/12/2022 | £52k | £54k |
| 31/12/2021 | £45k | £33k |
Common questions
Is CdLS Foundation UK & Ireland financially healthy?
Per its FY2025 accounts: The accounts state that the charity ended the year with a surplus of £6,490, bringing total unrestricted reserves to £146,889. Per the trustees' report, this reserve level is above the stated policy target of holding two years' operating budget. The charity is unincorporated and relies on donations and fundraising events for its income. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 21/02/2006 | £306k | Behaviour Disorder+Family Adjustment: Cri du Chat, Cornelia de Lange + Ange |