CURE DHDDS

Registered charity 1202643 · accounts filings on the Charity Commission register

The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.

Objects

THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY DHDDS DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:-(1) PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF DHDDS DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC;(2) RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH DHDDS DISEASE.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Richmond upon Thames, London, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £221,662 at the end of the financial year, significantly exceeding its stated policy target of £10,000 - £12,000. The charity reported total receipts of £131,495 and total payments of £69,071, resulting in a net surplus that strengthened its cash position.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Campaigns and political activity policy and procedures
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Investing charity funds policy and procedures
• Investment
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Cure DHDDS (matched by registered charity number).

Public profiles (found on the charity’s own website): instagram

Trustees · trustee networks

• CHARLES DIXON
• Ian Roberts
• Katie McCombe
• Louise Townley
• Penny Brogan
• Victoria Allan

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with DHD FOUNDATION.

• DHD FOUNDATION income £106k
• KD-UK, KENNEDY'S DISEASE UK income £40k
• CdLS Foundation UK & Ireland income £54k
• KDS Foundation income £347k
• HUNTINGTONS DISEASE ASSOCIATION income £3.2m
• HURDALE CHARITY LIMITED income £2.3m

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.