CURE DHDDS

Registered charity 1202643 · accounts filings on the Charity Commission register

The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income
£131k
Latest spending
£69k
Registered
2023
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £221,662 at the end of the financial year, significantly exceeding its stated policy target of £10,000 - £12,000. The charity reported total receipts of £131,495 and total payments of £69,071, resulting in a net surplus that strengthened its cash position.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Donations
“A1 Receipts Donations Interest”
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: £10,000 - £12,000 (held: £222k)
“we would look to hold a general reserve in the range £10,000 - £12,000 to cover unfunded committed costs for the next 6 months.”
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Cure DHDDS (matched by registered charity number).

Public profiles (found on the charity’s own website): instagram

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£131k£69k
31/03/2024£236k£77k

Common questions

Is CURE DHDDS financially healthy?

Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £221,662 at the end of the financial year, significantly exceeding its stated policy target of £10,000 - £12,000. The charity reported total receipts of £131,495 and total payments of £69,071, resulting in a net surplus that strengthened its cash position. Its FY2025 accounts were independently examined.

Who funds CURE DHDDS?

Funders whose own accounts filings name CURE DHDDS as a grant recipient include THE MELETE FOUNDATION, THE HISCOX FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE MELETE FOUNDATIONFY2023£5k
THE MELETE FOUNDATIONFY2024£5k
THE HISCOX FOUNDATIONFY2025£1k