HUNTINGTONS DISEASE ASSOCIATION
Financial health, per its FY2025 accounts
The accounts state that the charity reported an overall deficit of £191,844 for the year ended 31 March 2025, driven by a deficit in unrestricted funds. However, the trustees report that free reserves of £1,531,707 exceeded the stated policy target of £1.4m, and the charity maintains adequate resources to continue in operational existence.
What the accounts disclose
“It was agreed that the target for general reserves should be set at six months recurring costs being approximately £1.2m plus £200,000 to cover legacy receipt variations, giving a total of £1.4m.” — page 38
“A trustee appointed during the period was paid £8,450 for bookkeeping services provided prior to their appointment. No payments were made following their appointment.”
“Mr Nick Heath, a trustee, is chair of Victoria Convalescent Trust which made grants totalling £10,500 (2024: £2,544) to the charity in the year.” — page 55
“Ms Catherine Lyon, a trustee, received a grant from the charity of £1,000 (2024: £2,000) towards funding for her PhD on end of life care and Huntington’s Disease.”
“Mr Nick Heath, a trustee, is chair of Victoria Convalescent Trust which made grants totalling £10,500 (2024: £2,544) to the charity in the year.” — page 55
“Ms Catherine Lyon, a trustee, received a grant from the charity of £1,000 (2024: £2,000) towards funding for her PhD on end of life care and Huntington’s Disease.”
“Mr Nick Heath, a trustee, is chair of Victoria Convalescent Trust which made grants totalling £10,500 (2024: £2,544) to the charity in the year.” — page 55
“Ms Catherine Lyon, a trustee, received a grant from the charity of £1,000 (2024: £2,000) towards funding for her PhD on end of life care and Huntington’s Disease.”
Corporate structure
- Registered company of the charity Companies House 02021975
Structured financials (annual return, FY ending 31/03/2025)
Trustees
- Prof Hugh Rickardschair
- Catherine Lyon
- Dalvir Padda
- David Rhys Thomas
- Dr Akshay Nair
- Dr Nayana Swales
- NICHOLAS HEATH
- Sharon Bakewell
- Sian Baker
- Stephen Duckett
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £2.5m | £2.7m |
| 31/03/2024 | £2.3m | £2.4m |
| 31/03/2023 | £2.0m | £2.0m |
| 31/03/2022 | £2.2m | £1.4m |
| 31/03/2021 | £1.9m | £1.3m |
Common questions
Is HUNTINGTONS DISEASE ASSOCIATION financially healthy?
The accounts state that the charity reported an overall deficit of £191,844 for the year ended 31 March 2025, driven by a deficit in unrestricted funds. However, the trustees report that free reserves of £1,531,707 exceeded the stated policy target of £1.4m, and the charity maintains adequate resources to continue in operational existence. Its FY2025 accounts were audited by DSG Audit Services Limited.
Who funds HUNTINGTONS DISEASE ASSOCIATION?
Funders whose own accounts filings name HUNTINGTONS DISEASE ASSOCIATION as a grant recipient include PILKINGTON CHARITIES FUND, THE SIR JAMES ROLL CHARITABLE TRUST.
Known funders
| Funder | Year | Amount |
|---|---|---|
| PILKINGTON CHARITIES FUND | FY2025 | £5k |
| PILKINGTON CHARITIES FUND | FY2023 | £4k |
| THE SIR JAMES ROLL CHARITABLE TRUST | FY2025 | £2k |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE ANNANDALE CHARITABLE TRUST | 2 | £26k |
| SIR SAMUEL SCOTT OF YEWS TRUST | 2 | £25k |
| THE BATCHWORTH TRUST | 2 | £15k |
| THE KIRBY LAING FOUNDATION | 2 | £10k |
| The Patricia Routledge Foundation | 2 | £4k |
| THE WILLIAM ALLEN YOUNG CHARITABLE TRUST | 2 | £1k |
| CBRE UK CHARITABLE TRUST | 2 | £1k |
| DRAGON CHRISTMAS CHARITY SALE | 2 | £550 |