HUNTINGTONS DISEASE ASSOCIATION
Registered charity 296453 · accounts filings on the Charity Commission register · also known as THE ASSOCIATION TO COMBAT HUNTINGTON'S CHOREA
Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.
Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · The Prevention Or Relief Of Poverty · Grant history (this charity is a funder) · website · Get email alerts
Financial health, per its FY2026 accounts
The accounts state that the charity reported an overall surplus of £456,547 for the year ended 31 March 2026, driven by a significant increase in legacy income. Free reserves stood at £2,037,488, which the trustees confirmed exceeded their stated policy target of £1.7 million. The auditor confirmed that the financial statements were prepared on a going concern basis with no material uncertainties identified.
Automated summary of the FY2026 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Reserves policy: £1.7m (held: £2.0m)
“It was agreed that the target for general reserves should be set at six months recurring costs being approximately £1.2m, plus £500,000 to cover legacy receipt variations, giving a total of £1.7m.”
Per its FY2026 accounts as filed with the Charity Commission.
Related-party transaction: Trustee Mr Nick Heath is chair of Victoria Convalescent Trust which made grants to the charity.
“Mr Nick Heath, a trustee, is chair of Victoria Convalescent Trust which made grants totaling £11,734 (2025: £10,500) to the charity in the year.” — page 39
“Ms Catherine Lyon, a trustee, received a grant from the charity of £1,000 (2025: £1,000) towards funding for her PhD on end of life care and Huntington’s Disease.”
Per its FY2026 accounts as filed with the Charity Commission.
Related-party transaction: Trustee Ms Catherine Lyon received a grant for her PhD.
“Mr Nick Heath, a trustee, is chair of Victoria Convalescent Trust which made grants totaling £11,734 (2025: £10,500) to the charity in the year.” — page 39
“Ms Catherine Lyon, a trustee, received a grant from the charity of £1,000 (2025: £1,000) towards funding for her PhD on end of life care and Huntington’s Disease.”
Per its FY2026 accounts as filed with the Charity Commission.
Related-party transaction: Prior year payment to a trustee for bookkeeping services.
“Mr Nick Heath, a trustee, is chair of Victoria Convalescent Trust which made grants totaling £11,734 (2025: £10,500) to the charity in the year.” — page 39
“Ms Catherine Lyon, a trustee, received a grant from the charity of £1,000 (2025: £1,000) towards funding for her PhD on end of life care and Huntington’s Disease.”
Per its FY2026 accounts as filed with the Charity Commission.
Accounts audited by DSG Audit Services Limited. Discloses 4 of 6 completeness components.
Corporate structure
Company officers (Companies House)
Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.
- BAKEWELL, Sharon — director, appointed 26/10/2024on trustee list
- THOMAS, David Rhys — director, appointed 15/10/2022on trustee list
- HOLMES, Chloe Kirsty — director, appointed 15/10/2022not on trustee list
- HUBBERSTEY, Hayley — director, appointed 15/10/2022not on trustee list
- SWALES, Nayana, Dr — director, appointed 18/11/2020on trustee list
- DUCKETT, Steve — director, appointed 13/10/2018not on trustee list
- LYON, Cathy — director, appointed 14/10/2017not on trustee list
- BARKER, Sian — director, appointed 14/10/2017not on trustee list
- RICKARDS, Hugh, Professor — director, appointed 09/07/2015on trustee list
- EL-NIMR, George, Dr — director, appointed 08/12/2012not on trustee list
- HEATH, Nicholas Mark — director, appointed 28/09/1991on trustee list
Official officers record.
Public profiles (found on the charity’s own website): facebook · instagram
Structured financials (annual return, FY ending 31/03/2026)
Cost of raising funds
£365k
Reported reserves equal ~8.8 months of spending — above the median for charities its size (median 4.8 months; benchmarks).
Per its annual return, cost of raising funds: 11.5% of total income — above the median for charities its size (5.2%) (benchmarks).
- Prof Hugh Rickardschair
- Catherine Lyon
- Dalvir Padda
- David Rhys Thomas
- Dr Akshay Nair
- Dr Nayana Swales
- NICHOLAS HEATH · trustee of 1 other charity
- Sharon Bakewell
- Sian Baker
- Stephen Duckett
Trustee list from the Charity Commission register (current, not historical).
Operates in: Throughout England And Wales
Income and spending
Common questions
Is HUNTINGTONS DISEASE ASSOCIATION financially healthy?
Per its FY2026 accounts: The accounts state that the charity reported an overall surplus of £456,547 for the year ended 31 March 2026, driven by a significant increase in legacy income. Free reserves stood at £2,037,488, which the trustees confirmed exceeded their stated policy target of £1.7 million. The auditor confirmed that the financial statements were prepared on a going concern basis with no material uncertainties identified. Its FY2026 accounts were audited by DSG Audit Services Limited.
Who funds HUNTINGTONS DISEASE ASSOCIATION?
Funders whose own accounts filings name HUNTINGTONS DISEASE ASSOCIATION as a grant recipient include PILKINGTON CHARITIES FUND, THE LAWSON TRUST CIO, THE SIR JAMES ROLL CHARITABLE TRUST.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with MOTOR NEURONE DISEASE ASSOCIATION.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.