HUNTINGTONS DISEASE ASSOCIATION

Registered charity 296453 · accounts filings on the Charity Commission register · Wikidata: Q5945179 · Wikipedia · also known as THE ASSOCIATION TO COMBAT HUNTINGTON'S CHOREA

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.

Objects

THE RELIEF AND TREATMENT OF THOSE SUFFERING FROM OR BELIEVED TO BE SUFFERING FROM HUNTINGTON'S DISEASE AND TO PROVIDE FINANCIAL SUPPORT FOR BOTH SUCH PERSONS AND THEIR FAMILIES IN NEED AND FOR RESEARCH AND THE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSE AND POSSIBLE CURES WHETHER PARTIAL OR COMPLETE AND POSSIBLE PREVENTION OF THE SAID DISEASE.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · The Prevention Or Relief Of Poverty · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: Liverpool, North West, England (from the postcode on the register)

Financial health, per its FY2026 accounts

The accounts state that the charity reported an overall surplus of £456,547 for the year ended 31 March 2026, driven by a significant increase in legacy income. Free reserves stood at £2,037,488, which the trustees confirmed exceeded their stated policy target of £1.7 million. The auditor confirmed that the financial statements were prepared on a going concern basis with no material uncertainties identified.

Automated summary of the FY2026 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by DSG Audit Services Limited. Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Corporate structure

• Registered company of the charity Companies House 02021975 · Financial health read from its filings

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• BAKEWELL, Sharon — director, appointed 26/10/2024on trustee list
• THOMAS, David Rhys — director, appointed 15/10/2022on trustee list
• HOLMES, Chloe Kirsty — director, appointed 15/10/2022not on trustee list
• HUBBERSTEY, Hayley — director, appointed 15/10/2022not on trustee list
• SWALES, Nayana, Dr — director, appointed 18/11/2020on trustee list
• DUCKETT, Steve — director, appointed 13/10/2018not on trustee list
• LYON, Cathy — director, appointed 14/10/2017not on trustee list
• BARKER, Sian — director, appointed 14/10/2017not on trustee list
• RICKARDS, Hugh, Professor — director, appointed 09/07/2015on trustee list
• EL-NIMR, George, Dr — director, appointed 08/12/2012not on trustee list
• HEATH, Nicholas Mark — director, appointed 28/09/1991on trustee list

Official officers record.

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/03/2026)

Reported reserves equal ~8.8 months of spending — above the median for charities its size (median 4.7 months; benchmarks).

Per its annual return, cost of raising funds: 11.5% of total income — above the median for charities its size (5.3%) (benchmarks).

Trustees · trustee networks

• Prof Hugh Rickardschair
• Catherine Lyon
• Dalvir Padda
• David Rhys Thomas
• Dr Akshay Nair
• Dr Nayana Swales
• NICHOLAS HEATH · trustee of 2 other charities
• Sharon Bakewell
• Sian Baker
• Stephen Duckett

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with HUNTINGTON'S DISEASE YOUTH ORGANISATION.

• HUNTINGTON'S DISEASE YOUTH ORGANISATION income £43k
• HOXTON HEALTH income £206k
• DOWN'S SYNDROME ASSOCIATION income £2.7m
• ADHD FOUNDATION income £2.3m
• HARRISON'S FUND LTD income £97k
• HOSPICE AID UK income £115k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.