HAEMOCHROMATOSIS UK

Registered charity 1001307 · accounts filings on the Charity Commission register · also known as HUK, THE HAEMOCHROMATOSIS SOCIETY · also registered in Scotland as SC041701 (OSCR)

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

Objects

1)TO PROVIDE FOR PERSONS WITH HEREDITARY HAEMOCHROMATOSIS OR ASSOCIATED DISEASES HELP WITH THOSE PROBLEMS(INCLUDING BUT NOT LIMITED TO DIAGNOSIS,MEDICAL CARE,TREATMENT & FINANCIAL BURDEN) RESULTING FROM THE DISEASES & TO PROVIDE SUCH OTHERS CHARITABLE RELIEF AS THE SOCIETY MAY THINK FIT.2.)TO UNDERTAKE FOR THE PUBLIC BENEFIT RESEARCH INTO THE DISEASES & TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH. 3.)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC & THE MEDICAL PROFESSION INTO THE CAUSES OF:(A) INCREASING THE PROPORTION OF HAEMOCHROMATOTICS DIAGNOSED AS SUCH (B) PROMOTING DIAGNOSIS AT AN EARLY STAGE BEFORE THE ONSET OF IRREVERSIBLE ORGAN DAMAGE.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: South Holland, East Midlands, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity reported a net expenditure deficit of £92,372 for the year ended 31 December 2025, resulting in a reduction of total funds to £266,030. The trustees attribute this reduction to a strategic decision to lower reserves to an appropriate level to secure future funding, noting that prior levels were assessed as high and limiting capacity. The charity operates a defined contribution pension scheme and has no disclosed pension deficits or trading subsidiaries.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Year-over-year changes

• Going concern: going-concern doubt noted (FY2024) → no going-concern doubt (FY2025).

Comparing this charity’s FY2024 and FY2025 accounts as analysed by this site.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Haemochromatosis UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram · linkedin

Structured financials (annual return, FY ending 31/12/2025)

Reported reserves equal ~2.3 months of spending — in the bottom quarter for charities its size (median 5.2 months; benchmarks).

Per its annual return, largest income source: Charitable activities (81% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 0.0% of total income — below the median for charities its size (4.9%) (benchmarks).

Trustees · trustee networks

• Aaron Venables · trustee of 1 other charity
• Dieter Krapp · trustee of 1 other charity
• Guillaume Fillias
• Pippa Randolph
• Sarah Vousden

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Grants marked “Unverified read” were flagged by automated checks as possibly misread from the funder’s filed accounts. They are listed, but left out of the totals, counts and funder relationships this site computes.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with UK FORUM ON HAEMOGLOBIN DISORDERS.

• UK FORUM ON HAEMOGLOBIN DISORDERS income £41k
• THROMBOSIS UK income £204k
• BRITISH SOCIETY FOR GENETIC MEDICINE income £172k
• THE ASSOCIATION FOR CLINICAL GENOMIC SCIENCE income £57k
• MYOSITIS UK income £140k
• Behcet's UK income £219k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.