HAEMOCHROMATOSIS UK

Registered charity 1001307 · accounts filings on the Charity Commission register · also known as HUK, THE HAEMOCHROMATOSIS SOCIETY · also registered in Scotland as SC041701 (OSCR)

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

Causes: The Advancement Of Health Or Saving Of Lives · Grant history (this charity is a funder) · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a net expenditure deficit of £92,372 for the year ended 31 December 2025, resulting in a reduction of total funds to £266,030. The trustees attribute this reduction to a strategic decision to lower reserves to an appropriate level to secure future funding, noting that prior levels were assessed as high and limiting capacity. The charity operates a defined contribution pension scheme and has no disclosed pension deficits or trading subsidiaries.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Year-over-year changes

• Going concern: going-concern doubt noted (FY2024) → no going-concern doubt (FY2025).

Comparing this charity’s FY2024 and FY2025 accounts as analysed by this site.

Public fundraising profile: JustGiving — Haemochromatosis UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram · linkedin

Structured financials (annual return, FY ending 31/12/2025)

Reported reserves equal ~2.3 months of spending — in the bottom quarter for charities its size (median 5.2 months; benchmarks).

Per its annual return, largest income source: Charitable activities (81% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 0.0% of total income — below the median for charities its size (4.9%) (benchmarks).

Trustees · trustee networks

• Aaron Venables · trustee of 1 other charity
• Dieter Krapp · trustee of 1 other charity
• Guillaume Fillias
• Pippa Randolph
• Sarah Vousden

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE HAEMOPHILIA SOCIETY.

• THE HAEMOPHILIA SOCIETY income £590k
• CROHN'S & COLITIS UK income £8.4m
• Liver UK income £2.5m
• JNETICS income £1.1m
• THE BRITISH SOCIETY FOR HAEMATOLOGY income £3.3m
• ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED income £174k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.