Behcet's UK
The Object of the charity is to relieve the distress of persons suffering from Behcet's Disease by:- promoting the study of the cause and treatment of the disease and allied conditions; gathering and publishing information useful to sufferers and the general public; co-operating with the medical,allied professions and other societies with similar aims; providing financial assistance to suffers.
Objects
TO RELIEVE AND MITIGATE THE DISTRESS OF PERSONS SUFFERING FROM BEHCETS DISEASE BUT WITHOUT PREJUDICE TO THE FOREGOING: 1. TO PROMOTE THE STUDY OF THE CAUSE AND TREATMENT OF BEHCETS SYNDROME AND ALLIED CONDITIONS. 2. TO GATHER AND PUBLISH INFORMATION USEFUL TO SUFFERERS AND THE GENERAL PUBLIC TO CO-OPERATE WITH THE MEDICAL ALLIED PROFESSION AND ANY OTHER SOCIETIES OR BODIES HAVING A SIMILAR AIM TO PROVIDE FINANCIAL HELP WHERE NECESSARY AND PRATICABEL. 3. TO PROMOTE THE RELIEF OF POVERTY AMONG SUCH SUFFERERS.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a net deficit on its General Fund of £11,509 for the year ended 31 August 2025, driven by expenditure exceeding income from subscriptions and donations. However, the charity entered the new financial year with its largest ever reserves of £272,504, largely bolstered by a significant bequest of nearly £178,000 allocated to the Research Fund. The trustees note that while the financial position is currently strong, the charity remains crucially dependent on bequests and fundraising events to cover core costs.
What the accounts disclose
“The trustees aim to maintain reserves at a level that lies approximately between the total income that the Society would expect in a six-month period and that in a full financial year.” — page 15
Policies the charity declares
- Complaints handling
- Complaints policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Paying staff
- Safeguarding vulnerable beneficiaries
- Trustee expenses policy and procedures
- Volunteer management
Trustees
- Tony Thornburnchair
- ALAN JOHN LANE
- Amanda Clare Moseley
- DR Catherine O'Hara
- Dr Mark Harpham Friston
- Fionnuala Marguerite McKINLEY
- Judith Mary Scott
- Neil Andrew Williams
- RACHAEL HUMPHREYS
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/08/2025 | £219k | £138k |
| 31/08/2024 | £51k | £69k |
| 31/08/2023 | £113k | £66k |
| 31/08/2022 | £57k | £63k |
| 31/08/2021 | £99k | £58k |
Common questions
Is Behcet's UK financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a net deficit on its General Fund of £11,509 for the year ended 31 August 2025, driven by expenditure exceeding income from subscriptions and donations. However, the charity entered the new financial year with its largest ever reserves of £272,504, largely bolstered by a significant bequest of nearly £178,000 allocated to the Research Fund. The trustees note that while the financial position is currently strong, the charity remains crucially dependent on bequests and fundraising events to cover core costs. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 09/06/2016 | £8k | Behcet's Syndrome Society - Strengthening Community NI |
| The National Lottery Community Fund | 12/06/2007 | £7k | Behcets Syndrome Society Community Website |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| SIR SAMUEL SCOTT OF YEWS TRUST | 4 | £46k |
| ROBERT LUFF FOUNDATION LIMITED | 3 | £417k |
| THE INMAN CHARITY | 3 | £23k |
| PAYNE GALLWEY 1989 CHARITABLE TRUST | 3 | £21k |
| THE IAN FLEMING CHARITABLE TRUST | 3 | £12k |
| THE FRANK LITCHFIELD GENERAL CHARITABLE TRUST | 3 | £9k |
| THE EDGAR E LAWLEY FOUNDATION | 3 | £7k |
| THE ARDWICK TRUST | 3 | £600 |
Charities like this
- CROHN'S & COLITIS UK
- THE PATHOLOGICAL SOCIETY OF GREAT BRITAIN AND IRELAND
- Bowel Research UK
- THE SUSSEX BEACON
- Psoriasis UK
- Arthritis UK
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| Behcet's UK | £219k | — | 0 | unclear | — | no doubt |
| CROHN'S & COLITIS UK | £8.1m | £80,001 - £90,000 | — | above | — | no doubt |
| THE PATHOLOGICAL SOCIETY OF GREAT BRITAIN AND IRELAND | £1.5m | — | 0 | above | — | no doubt |
| Bowel Research UK | £1.6m | more than £60,000 | 1 | above | 21.5% | no doubt |
| THE SUSSEX BEACON | £1.7m | — | — | unclear | — | no doubt |
| Psoriasis UK | £629k | more than £60,000 | 1 | unclear | — | no doubt |