THE DYSTONIA SOCIETY
Registered charity 1062595 · accounts filings on the Charity Commission register · also registered in Scotland as SC042127 (OSCR)
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
Causes: The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that unrestricted and undesignated reserves represented 45% of unrestricted expenditure at the year-end, providing a buffer against income uncertainty. The charity benefited from significant legacy income, which allowed for the designation of £410,000 from unrestricted reserves. The independent examiner confirmed that no matters came to their attention giving cause to believe the accounts were not prepared in accordance with applicable standards.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Largest income source: Legacies (50% of income)
“Legacy gifts have once again made a transformative difference, accounting for more than half of our income.” — page 21
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: sufficient to cover commitments such as property rental, creditors and other liabilities and to reflect the relative uncertainty of income and potential restrictions on its use (held: £578k)
“The trustees feel it is prudent to maintain the Society’s general unrestricted reserves at a level sufficient to cover commitments such as property rental, creditors and other liabilities and to reflect the relative uncertainty of income and potential restrictions on its use.” — page 17
Per its FY2025 accounts as filed with the Charity Commission.
Trading subsidiary: Dystonia UK Ltd
“Investment in Dystonia UK Ltd” — page 33
Per its FY2025 accounts as filed with the Charity Commission.
Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.
Year-over-year changes
- Reserves position vs the charity's own policy moved from "below" (FY2024) to "above" (FY2025).
Comparing this charity’s FY2024 and FY2025 accounts as analysed by this site.
Public fundraising profile: JustGiving — Dystonia UK (matched by registered charity number).
Public profiles (found on the charity’s own website): facebook · instagram
Structured financials (annual return, FY ending 31/03/2024)
Cost of raising funds
£76k
Reported reserves equal ~15.3 months of spending — above the median for charities its size (median 7.0 months; benchmarks).
Per its annual return, cost of raising funds: 10.9% of total income — in the top quarter for charities its size (median 2.9%) (benchmarks).
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England And Wales
Income and spending
Common questions
Is THE DYSTONIA SOCIETY financially healthy?
Per its FY2025 accounts: The accounts state that unrestricted and undesignated reserves represented 45% of unrestricted expenditure at the year-end, providing a buffer against income uncertainty. The charity benefited from significant legacy income, which allowed for the designation of £410,000 from unrestricted reserves. The independent examiner confirmed that no matters came to their attention giving cause to believe the accounts were not prepared in accordance with applicable standards. Its FY2025 accounts were independently examined.
Who funds THE DYSTONIA SOCIETY?
Funders whose own accounts filings name THE DYSTONIA SOCIETY as a grant recipient include THE ADINT CHARITABLE TRUST, SYDNEY AND PHYLLIS GOLDBERG MEMORIAL CHARITABLE TRUST, CHARLES S FRENCH CHARITABLE TRUST, PILKINGTON CHARITIES FUND, THE BLYTH WATSON CHARITABLE TRUST.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOTONIC DYSTROPHY SUPPORT GROUP.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.