MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND

Registered charity 205395 · accounts filings on the Charity Commission register · also known as MUSCULAR DYSTROPHY CAMPAIGN, MUSCULAR DYSTROPHY UK · also registered in Scotland as SC039445 (OSCR)

We support research with the aim of finding treatments and effective cures and we drive improvements in health care. We provide information and advice, campaign to raise awareness, provide care and support. Further, we enable people to lead as full and rich a life as possible through the provision of advocacy support and equipment grants as well as campaigns to remove barriers to independence.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Latest income
£7.9m
Latest spending
£10.1m
Registered
1962
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a planned deficit of £2.1m, having spent £10.1m on charitable activities against £7.9m in income. Per the trustees' report, free reserves were maintained at £4m, representing approximately six months of operating costs, which the Board considers sufficient to manage strategic risks and the anticipated deficit for the following year.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Fundraising cost ratio: 40.4% of fundraised income, as disclosed
“For every £1 we invested in fundraising we raised £2.50 (total income / fundraising costs)”
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: six months of operating costs (held: £4.0m)
“Following a strategic review aligned with our future growth ambitions, the free reserves requirement has been increased to reflect six months of operating costs, now set at £4m.”
Per its FY2025 accounts as filed with the Charity Commission.
Related-party transaction: Contract with Chimera
“The charity also contracted with Chimera, to provide services to the value of £29k (2024: £25k) for the Microscope Ball. Chimera is owned by the husband of the charity’s Director of Development. Emma Parry-Jones had no involvement in the Trustees decision to use this supplier”
Per its FY2025 accounts as filed with the Charity Commission.

Accounts audited by Moore Kingston Smith LLP. Discloses 4 of 6 completeness components.

Property (HM Land Registry)

2 registered titles in England and Wales held by the charity’s company or corporate body (0 freehold). All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.

Structured financials (annual return, FY ending 31/03/2025)

Total income
£7.9m
Total spending
£10.1m
Cost of raising funds
£3.2m
Reserves (reported)
£4.0m
Employees
73

Reported reserves equal ~4.8 months of spending — below the median for charities its size (median 4.8 months; benchmarks).

Per its annual return, cost of raising funds: 40.7% of total income — above the 90th percentile for charities its size (median 5.2%) (benchmarks).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£7.9m£10.1m
31/03/2024£9.5m£8.0m
31/03/2023£8.2m£6.9m
31/03/2022£6.7m£5.6m
31/03/2021£5.5m£3.6m

Common questions

Is MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND financially healthy?

Per its FY2025 accounts: The accounts state that the charity ended the year with a planned deficit of £2.1m, having spent £10.1m on charitable activities against £7.9m in income. Per the trustees' report, free reserves were maintained at £4m, representing approximately six months of operating costs, which the Board considers sufficient to manage strategic risks and the anticipated deficit for the following year. Its FY2025 accounts were audited by Moore Kingston Smith LLP.

Who funds MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND?

Funders whose own accounts filings name MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND as a grant recipient include THE ALBERT GUBAY CHARITABLE FOUNDATION, JOINING JACK, THE FRANCES AND AUGUSTUS NEWMAN FOUNDATION, THE KATHLEEN HANNAY MEMORIAL CHARITY, CHRISTOS LAZARI FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE ALBERT GUBAY CHARITABLE FOUNDATIONFY2023£61k
JOINING JACKFY2022£55kThe Duchenne Forum, Supporting 8 basic research projects
JOINING JACKFY2023£55kThe Duchenne Forum, Supporting 8
THE FRANCES AND AUGUSTUS NEWMAN FOUNDATIONFY2025£55kResearch costs
THE FRANCES AND AUGUSTUS NEWMAN FOUNDATIONFY2024£20kResearch costs
THE KATHLEEN HANNAY MEMORIAL CHARITYFY2022£20k
CHRISTOS LAZARI FOUNDATIONFY2024£15kFunding towards the organisation's research campaign for projects into treatments and cures for muscle-wasting conditions.
SIR SAMUEL SCOTT OF YEWS TRUSTFY2023£10k
SIR SAMUEL SCOTT OF YEWS TRUSTFY2024£10k
THE TRUE COLOURS TRUSTFY2024£10kTowards updates for the Changing Places website and map.
THE BARBOUR FOUNDATIONFY2024£10k
The Patricia Routledge FoundationFY2025£7k
THE KIRBY LAING FOUNDATIONFY2021£7k
THE ANNANDALE CHARITABLE TRUSTFY2025£5k
THE KIRBY LAING FOUNDATIONFY2022£5kHealth & Medical Welfare
THE INMAN CHARITYFY2024£5kMedical - Research
THE FORRESTER FAMILY TRUSTFY2022£5kSMALLER GRANTS
THE WILLIAM ALLEN YOUNG CHARITABLE TRUSTFY2025£4k
The Patricia Routledge FoundationFY2022£4k
THE SUNRISE (SIDMOUTH) CHARITABLE TRUSTFY2022£3k
THE EDWARD CADBURY CHARITABLE TRUSTFY2024£3kCompassionate Support
THE SUNRISE (SIDMOUTH) CHARITABLE TRUSTFY2024£3k
PILKINGTON CHARITIES FUNDFY2025£2k
The Patricia Routledge FoundationFY2024£2k
PILKINGTON CHARITIES FUNDFY2022£2k
CHARLES S FRENCH CHARITABLE TRUSTFY2024£2k
THE WILLIAM ALLEN YOUNG CHARITABLE TRUSTFY2024£2k
ANSON CHARITABLE TRUSTFY2023£2kCharitable Donation
CBRE UK CHARITABLE TRUSTFY2022£2k
THE LORD FARINGDON CHARITABLE TRUSTFY2025£1k
THE LORD FARINGDON CHARITABLE TRUSTFY2024£1k
THE BARBOUR FOUNDATIONFY2022£1k
DORIS FIELD CHARITABLE TRUSTFY2022£1kSingle payment
THE LIZ AND TERRY BRAMALL FOUNDATIONFY2024£1k
DORIS FIELD CHARITABLE TRUSTFY2023£1kSingle payment
PILKINGTON CHARITIES FUNDFY2025£1k
THE LORD FARINGDON CHARITABLE TRUSTFY2023£1k
THE SUNRISE (SIDMOUTH) CHARITABLE TRUSTFY2023£1k
THE W E DUNN TRUSTFY2024£1k
THE FRANK LITCHFIELD GENERAL CHARITABLE TRUSTFY2023£1k
THE IAN ASKEW CHARITABLE TRUSTFY2022£1kGrant
THE LORD FARINGDON CHARITABLE TRUSTFY2022£1k
THE GUNTER CHARITABLE TRUSTFY2022£996
CBRE UK CHARITABLE TRUSTFY2023£500
The Squire Patton Boggs Charitable TrustFY2022£500Education/Training
DRAGON CHRISTMAS CHARITY SALEFY2022£300
THE WILLIAM ALLEN YOUNG CHARITABLE TRUSTFY2023£250

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
UK government20/06/2023£5kNext-generation models and genetic therapies for rare neuromuscular diseases
UK government20/06/2023£3kNext-generation models and genetic therapies for rare neuromuscular diseases
UK government09/09/2020£66kCoronavirus Community Support Fund
London Borough of Southwark01/04/2020£1kGrant to Muscular Dystrophy UK
City Bridge Foundation11/05/2017£276kGrant to Muscular Dystrophy UK
City Bridge Foundation09/07/2015£113kGrant to Muscular Dystrophy UK
City Bridge Foundation18/04/2013£43kGrant to Muscular Dystrophy UK
The National Lottery Community Fund11/02/2013£162kSupporting people, promoting independence, empowering communities
The National Lottery Community Fund02/02/2012£10kTrailblazers Scotland New Pathways Project
The National Lottery Community Fund10/11/2011£5kTrailblazers Young Disabled Person Network - Wales
The National Lottery Community Fund07/10/2010£10kTrailblazers Northern Ireland - Young Campaigner's Network
City Bridge Foundation09/09/2010£40kGrant to Muscular Dystrophy UK
The National Lottery Community Fund30/06/2010£5kWelsh Community Support Network
The National Lottery Community Fund29/10/2009£9kEast of England Community Support Network
The National Lottery Community Fund09/09/2009£8kTrailblazers Scotland - Young Campaigners' Network
The National Lottery Community Fund17/05/2006£5kCondition Specific Event
The National Lottery Community Fund17/03/2006£5kTeam-Building/Counselling weekend away
The National Lottery Community Fund23/11/2005£97kFamily care project
The National Lottery Community Fund16/03/2005£469kNovel approaches to therapy of Duchenne Muscular Dystrophy

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOTONIC DYSTROPHY SUPPORT GROUP.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND£7.9m——unclear40.4%no doubt
MYOTONIC DYSTROPHY SUPPORT GROUP FY2025£136k—0above—no doubt
Spinal Muscular Atrophy UK FY2025£1.6m—0above—no doubt
CHALLENGING MND FY2025£503k—0unclear—no doubt
MYOSITIS UK FY2025£140k—0unclear—no doubt
STOKE MANDEVILLE SPINAL RESEARCH FY2025£167k—0unclear—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.