MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND
We support research with the aim of finding treatments and effective cures and we drive improvements in health care. We provide information and advice, campaign to raise awareness, provide care and support. Further, we enable people to lead as full and rich a life as possible through the provision of advocacy support and equipment grants as well as campaigns to remove barriers to independence.
Financial health, per its FY2025 accounts
The accounts state that the charity ended the year with a planned deficit of £2.1m, having spent £10.1m on charitable activities against £7.9m in income. Per the trustees' report, free reserves were maintained at £4m, representing approximately six months of operating costs, which the Board considers sufficient to manage strategic risks and the anticipated deficit for the following year.
What the accounts disclose
“For every £1 we invested in fundraising we raised £2.50 (total income / fundraising costs)”
“Following a strategic review aligned with our future growth ambitions, the free reserves requirement has been increased to reflect six months of operating costs, now set at £4m.”
“The charity also contracted with Chimera, to provide services to the value of £29k (2024: £25k) for the Microscope Ball. Chimera is owned by the husband of the charity’s Director of Development. Emma Parry-Jones had no involvement in the Trustees decision to use this supplier”
Property (HM Land Registry)
Structured financials (annual return, FY ending 31/03/2025)
Register events
- Received assets from another charity (04/06/2015)
Trustees
- Brigid Sutcliffe
- Carole Michelle Anthony
- Chloe Jasmine Hazel Docker
- Claire Louise O'Hanlon
- Dr Rosaline Christina Mary Quinlivan
- Gerard McMenemy
- JAMES HANYUNG LEE
- Jennifer Christine Howells
- Joseph Eoin Gordon
- Lord John Kevin Sharkey
- Marian Clare Ridley
- PROFESSOR MICHAEL HANNA
- Prof Deirdre Kelly CBE
- Prof Simon Guy Ray
- Thomas William Sara
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £7.9m | £10.1m |
| 31/03/2024 | £9.5m | £8.0m |
| 31/03/2023 | £8.2m | £6.9m |
| 31/03/2022 | £6.7m | £5.6m |
| 31/03/2021 | £5.5m | £3.6m |
Common questions
Is MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND financially healthy?
Per its FY2025 accounts: The accounts state that the charity ended the year with a planned deficit of £2.1m, having spent £10.1m on charitable activities against £7.9m in income. Per the trustees' report, free reserves were maintained at £4m, representing approximately six months of operating costs, which the Board considers sufficient to manage strategic risks and the anticipated deficit for the following year. Its FY2025 accounts were audited by Moore Kingston Smith LLP.
Who funds MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND?
Funders whose own accounts filings name MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND as a grant recipient include THE ALBERT GUBAY CHARITABLE FOUNDATION, JOINING JACK, THE FRANCES AND AUGUSTUS NEWMAN FOUNDATION, THE KATHLEEN HANNAY MEMORIAL CHARITY, CHRISTOS LAZARI FOUNDATION.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| UK government | 20/06/2023 | £5k | Next-generation models and genetic therapies for rare neuromuscular diseases |
| UK government | 20/06/2023 | £3k | Next-generation models and genetic therapies for rare neuromuscular diseases |
| UK government | 09/09/2020 | £66k | Coronavirus Community Support Fund |
| London Borough of Southwark | 01/04/2020 | £1k | Grant to Muscular Dystrophy UK |
| City Bridge Foundation | 11/05/2017 | £276k | Grant to Muscular Dystrophy UK |
| City Bridge Foundation | 09/07/2015 | £113k | Grant to Muscular Dystrophy UK |
| City Bridge Foundation | 18/04/2013 | £43k | Grant to Muscular Dystrophy UK |
| The National Lottery Community Fund | 11/02/2013 | £162k | Supporting people, promoting independence, empowering communities |
| The National Lottery Community Fund | 02/02/2012 | £10k | Trailblazers Scotland New Pathways Project |
| The National Lottery Community Fund | 10/11/2011 | £5k | Trailblazers Young Disabled Person Network - Wales |
| The National Lottery Community Fund | 07/10/2010 | £10k | Trailblazers Northern Ireland - Young Campaigner's Network |
| City Bridge Foundation | 09/09/2010 | £40k | Grant to Muscular Dystrophy UK |
| The National Lottery Community Fund | 30/06/2010 | £5k | Welsh Community Support Network |
| The National Lottery Community Fund | 29/10/2009 | £9k | East of England Community Support Network |
| The National Lottery Community Fund | 09/09/2009 | £8k | Trailblazers Scotland - Young Campaigners' Network |
| The National Lottery Community Fund | 17/05/2006 | £5k | Condition Specific Event |
| The National Lottery Community Fund | 17/03/2006 | £5k | Team-Building/Counselling weekend away |
| The National Lottery Community Fund | 23/11/2005 | £97k | Family care project |
| The National Lottery Community Fund | 16/03/2005 | £469k | Novel approaches to therapy of Duchenne Muscular Dystrophy |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE HISCOX FOUNDATION | 3 | £53k |
| THE CARRINGTON CHARITABLE TRUST | 3 | £5k |
| THE LAWSON TRUST CIO | 2 | £17k |
| FRAZER TRUST | 2 | £16k |
| LILIAN FRANCES HIND BEQUEST (TRUSTEES OF LADY HIND) | 2 | £13k |
| THE BENHAM CHARITABLE SETTLEMENT | 2 | £10k |
| MISSES BARRIE CHARITABLE TRUST | 2 | £10k |
| THE EDWARD AND DOROTHY CADBURY TRUST | 2 | £9k |
Charities like this
- MYOTONIC DYSTROPHY SUPPORT GROUP
- Spinal Muscular Atrophy UK
- CHALLENGING MND
- MYOSITIS UK
- STOKE MANDEVILLE SPINAL RESEARCH
- THE DARBY RIMMER MND FOUNDATION
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND | £7.9m | — | — | unclear | 40.4% | no doubt |
| MYOTONIC DYSTROPHY SUPPORT GROUP | £136k | — | 0 | above | — | no doubt |
| Spinal Muscular Atrophy UK | £1.6m | — | 0 | above | — | no doubt |
| CHALLENGING MND | £503k | — | 0 | unclear | — | no doubt |
| MYOSITIS UK | £140k | — | 0 | unclear | — | no doubt |
| STOKE MANDEVILLE SPINAL RESEARCH | £167k | — | 0 | unclear | — | no doubt |