MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND

Registered charity 205395 · accounts filings on the Charity Commission register · Wikidata: Q16998293 · Wikipedia · also known as MUSCULAR DYSTROPHY CAMPAIGN, MUSCULAR DYSTROPHY UK · also registered in Scotland as SC039445 (OSCR)

We support research with the aim of finding treatments and effective cures and we drive improvements in health care. We provide information and advice, campaign to raise awareness, provide care and support. Further, we enable people to lead as full and rich a life as possible through the provision of advocacy support and equipment grants as well as campaigns to remove barriers to independence.

Objects

TO PROMOTE RESEARCH INTO MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO PROMOTE THE PROVISION OF CARE AND TREATMENT AND OTHER RELIEF TO THOSE AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO ASSIST THOSE WHO CARE FOR PERSONS AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEUROMUSCULAR CONDITIONS; TO PROVIDE EDUCATION AND TRAINING TO PERSONS AFFECTED BY MUSCULAR DYSTROPHY AND ALLIED NEURO MUSCULAR CONDITIONS; TO RAISE THE AWARENESS OF THE PUBLIC ON ANY MATTERS RELATING TO THE CHARITY'S OBJECTS.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: Lambeth, London, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a planned deficit of £2.1m, having spent £10.1m on charitable activities against £7.9m in income. Per the trustees' report, free reserves were maintained at £4m, representing approximately six months of operating costs, which the Board considers sufficient to manage strategic risks and the anticipated deficit for the following year.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Moore Kingston Smith LLP. Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

In the news

Recent coverage mentioning this charity by name (automated match; headlines belong to their publishers).

• Children’s charity CEO to lead Muscular Dystrophy UK charitytimes.com · 19/08/2024

Property (HM Land Registry)

2 registered titles in England and Wales held by the charity’s company or corporate body (0 freehold). All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.

Structured financials (annual return, FY ending 31/03/2025)

Reported reserves equal ~4.8 months of spending — above the median for charities its size (median 4.7 months; benchmarks).

Per its annual return, cost of raising funds: 40.7% of total income — above the 90th percentile for charities its size (median 5.3%) (benchmarks).

Register events

• Received assets from another charity (04/06/2015) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Brigid Sutcliffe
• Carole Michelle Anthony
• Chloe Jasmine Hazel Docker
• Claire Louise O'Hanlon
• Dr Rosaline Christina Mary Quinlivan
• Gerard McMenemy
• JAMES HANYUNG LEE
• Jennifer Christine Howells
• Joseph Eoin Gordon
• Lord John Kevin Sharkey
• Marian Clare Ridley
• PROFESSOR MICHAEL HANNA · trustee of 2 other charities
• Prof Deirdre Kelly CBE
• Prof Simon Guy Ray
• Thomas William Sara

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Grants marked “Unverified read” were flagged by automated checks as possibly misread from the funder’s filed accounts. They are listed, but left out of the totals, counts and funder relationships this site computes.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOTONIC DYSTROPHY SUPPORT GROUP.

• MYOTONIC DYSTROPHY SUPPORT GROUP income £136k
• MULTIPLE SCLEROSIS SOCIETY income £30.7m
• MS COMMUNITY ACTION & SUPPORT income £14k
• MULTIPLE SCLEROSIS INTERNATIONAL FEDERATION income £1.5m
• THE MACULAR DISEASE SOCIETY income £8.9m
• MRS Independent Living income £478k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.