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MYOTONIC DYSTROPHY SUPPORT GROUP

Registered charity 1134499 · accounts filings on the Charity Commission register

To offer assistance, support and information to those people affected by Myotonic Dystrophy

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Latest income
£136k
Latest spending
£184k
Registered
2010
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity reported a net expenditure of £48,133 for the year, resulting in a decrease in total funds from £897,627 to £849,494. The trustees confirm that the charity's reserves policy target of two years' estimated expenses is currently being maintained, and they consider there are no material financial risks at this time.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: two years’ estimated expenses/running costs (held: £764k)
“Our current policy is to maintain reserves at a level equivalent to two years’ estimated expenses/running costs.” — page 6
Per its FY2025 accounts as filed with the Charity Commission.
Related-party transaction: Payment to company owned by trustee Michael Walker
“During this period, the charity paid £4,921 (2024 - £5,597) to L&T Press Ltd for printing. The company is owned by Michael Walker who is a director of the charity.” — page 18
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Myotonic Dystrophy Support Group (matched by registered charity number).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2025£136k£184k
31/12/2024£336k£128k
31/12/2023£259k£118k
31/12/2022£110k£63k
31/12/2021£216k£151k

Common questions

Is MYOTONIC DYSTROPHY SUPPORT GROUP financially healthy?

Per its FY2025 accounts: The accounts state that the charity reported a net expenditure of £48,133 for the year, resulting in a decrease in total funds from £897,627 to £849,494. The trustees confirm that the charity's reserves policy target of two years' estimated expenses is currently being maintained, and they consider there are no material financial risks at this time. Its FY2025 accounts were independently examined.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

FunderSimilar charities fundedAmount to them
CHARLES S FRENCH CHARITABLE TRUST3£7k
THE HISCOX FOUNDATION2£50k
PILKINGTON CHARITIES FUND2£10k
DRAGON CHRISTMAS CHARITY SALE2£1k
THE TOLKIEN TRUST1£205k
IGY FOUNDATION1£175k
JOINING JACK1£111k
THE FRANCES AND AUGUSTUS NEWMAN FOUNDATION1£75k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with DRAVET SYNDROME UK.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
MYOTONIC DYSTROPHY SUPPORT GROUP£136k—0above—no doubt
DRAVET SYNDROME UK FY2025£640k—0unclear—no doubt
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND FY2025£7.9m——unclear40.4%no doubt
MYOSITIS UK FY2025£140k—0unclear—no doubt
MYOTUBULAR TRUST FY2025£147k£20,0000unclear—no doubt
JOINING JACK FY2025£890k—0unclear—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.