Spinal Muscular Atrophy UK

Registered charity 1106815 · accounts filings on the Charity Commission register · also known as SPINAL MUSCULAR ATROPHY SUPPORT UK, SPINAL MUSCULAR ATROPHY UK THE JENNIFER TRUST, THE JENNIFER TRUST FOR SPINAL MUSCULAR ATROPHY

We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity finished the year with a strong cash position of £1,196,431 and unrestricted reserves of £586,060. Per the trustees' report, the charity is operating within its reserves policy, which requires unrestricted cash reserves to be not less than three months of unrestricted expenditure. The charity reported a net surplus of £263,647 for the year, driven primarily by increased community donations and legacy income.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Cooper Adams Ltd. Discloses 5 of 6 completeness components.

Year-over-year changes

• Reserves position vs the charity's own policy moved from "within" (FY2024) to "above" (FY2025).

Comparing this charity’s FY2024 and FY2025 accounts as analysed by this site.

Public fundraising profile: JustGiving — Spinal Muscular Atrophy (SMA) UK (matched by registered charity number).

Leadership, per the charity’s website

• Giles Lomax — CEO (source)

Listed on the charity’s own website when we last crawled it; roles may have changed. Pay-band disclosures above are anonymous statutory disclosures and are not attributed to any named individual.

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Biogen — “SMA Care UK is funded by Biogen, Novartis, Roche, and SMA UK. Their support enables collaboration between clinicians, researchers and the SM…” (source page)
• Novartis — “SMA Care UK is funded by Biogen, Novartis, Roche, and SMA UK. Their support enables collaboration between clinicians, researchers and the SM…” (source page)
• Roche — “SMA Care UK is funded by Biogen, Novartis, Roche, and SMA UK. Their support enables collaboration between clinicians, researchers and the SM…” (source page)

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/03/2025)

Reported reserves equal ~5.2 months of spending — above the median for charities its size (median 4.8 months; benchmarks).

Per its annual return, largest income source: Donations and legacies (99% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 17.4% of total income — in the top quarter for charities its size (median 5.2%) (benchmarks).

Register events

• Received assets from another charity (05/05/2020) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Dr Gordon Harveychair
• Alistair Mark Emslie Smith
• Ben Hugh Williams
• Daniel Hardy William Worrall
• Dr Anne Marie Childs
• Dr Channa Hewamadduma · trustee of 1 other charity
• Dr Hassan Sobati
• Jennie Elizabeth Sheehan Sheehan
• Lauren Elizabeth Jane West
• Maryann Madayag Aspinall
• Robin Jackson
• Srinivas Madipalli · trustee of 1 other charity
• Tracey Jane Bailey Burnley

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with ATAXIA UK.

• ATAXIA UK income £1.8m
• THE NICHOLLS SPINAL INJURY FOUNDATION income £262k
• MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND income £7.9m
• MYOSITIS UK income £140k
• STOKE MANDEVILLE SPINAL RESEARCH income £167k
• SARCOMA UK income £4.6m

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.