ACE SMA

Registered charity 1191179 · accounts filings on the Charity Commission register

Making grants to fund research for the improvement to the lives of children living with Spinal Muscular Atrophy.

Objects

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(A) THE RELIEF AND TREATMENT OF PEOPLE WITH SPINAL MUSCULAR ATROPHY;(B) THE PROMOTION AND SUPPORT OF RESEARCH INTO THE CAUSE, TREATMENT AND POSSIBLE PREVENTION OF SPINAL MUSCULAR ATROPHY AND THE PUBLICATION AND DISSEMINATION OF THAT RESEARCH FOR THE PUBLIC BENEFIT; AND(C) THE ADVANCEMENT OF THE EDUCATION OF THE GENERAL PUBLIC IN SPINAL MUSCULAR ATROPHY.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity incurred a net expenditure of £17,330 for the year, resulting in total unrestricted reserves falling to £19,872. The trustees' report notes a reserves policy of keeping sufficient funds to support ongoing activity for at least one year, which the current reserves appear to meet given the low expenditure level relative to the reserve balance. The independent examiner confirmed that no material matters came to their attention regarding the accounts.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Serious incident reporting policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — ACE SMA (matched by registered charity number).

Trustees · trustee networks

• Michael Alexander Howeschair
• Anne-Marie Helen Wheatley-Hubbard M.A.
• Charlotte Alexandra Elizabeth O'Hora Banks
• Oliver Charles Llewelyn Williams
• Rosemary Rachel Guest
• Sophie Christine Caroline Romjke Howes

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions