ECTODERMAL DYSPLASIA SOCIETY

Registered charity 1089135 · accounts filings on the Charity Commission register · also known as EDS

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£107k
Latest spending
£115k
Registered
2001
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity incurred a net expenditure of £7,470.63 for the year, resulting in total funds decreasing from £88,316.99 to £80,846.36. Per the trustees' report, unrestricted reserves (General Fund) stood at £64,110.70, which the charity intends to maintain at a level equivalent to approximately 75% of its annual expenditure.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: none
“The main source of income is through donations and fundraising. Total receipts in 2025 were £107,407.36” — page 5
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: approximately 75% of our annual expenditure (held: £64k)
“We intend to maintain our reserves at a level which is at least equivalent to approximately 75% of our annual expenditure.”
Per its FY2025 accounts as filed with the Charity Commission.

Discloses 4 of 6 completeness components.

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2025£107k£115k
31/12/2024£77k£73k
31/12/2023£63k£71k
31/12/2022£72k£51k
31/12/2021£34k£44k

Common questions

Is ECTODERMAL DYSPLASIA SOCIETY financially healthy?

Per its FY2025 accounts: The accounts state that the charity incurred a net expenditure of £7,470.63 for the year, resulting in total funds decreasing from £88,316.99 to £80,846.36. Per the trustees' report, unrestricted reserves (General Fund) stood at £64,110.70, which the charity intends to maintain at a level equivalent to approximately 75% of its annual expenditure.

Who funds ECTODERMAL DYSPLASIA SOCIETY?

Funders whose own accounts filings name ECTODERMAL DYSPLASIA SOCIETY as a grant recipient include THE VTCT FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE VTCT FOUNDATIONFY2024£60kSmall grant
THE VTCT FOUNDATIONFY2025£6kOther grants

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
UK government15/09/2020£10kCoronavirus Community Support Fund

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE EHLERS-DANLOS SOCIETY.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
ECTODERMAL DYSPLASIA SOCIETY£107k—0unclear—no doubt
THE EHLERS-DANLOS SOCIETY FY2025£1.6m——unclear—no doubt
DRAVET SYNDROME UK FY2025£640k—0unclear—no doubt
THE EHLERS-DANLOS SUPPORT UK FY2025£435k—0below—no doubt
EUROPEAN ORTHODONTIC SOCIETY FY2024£1.6m—0above—no doubt
MYOTONIC DYSTROPHY SUPPORT GROUP FY2025£136k—0above—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.