MYAWARE

Registered charity 1046443 · accounts filings on the Charity Commission register · also known as MYASTHENIA GRAVIS ASSOCIATION · also registered in Scotland as SC044744 (OSCR)

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Latest income
£449k
Latest spending
£1.1m
Registered
1995
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity reported a total net deficit of £615,093 for the year ended 31 March 2025, resulting in a decrease in total funds to £1,525,857. Per the trustees' report, unrestricted free reserves stood at £1,377,748, which exceeds the stated policy target of twelve months' budgeted expenditure (£896,760). Although the charity forecasts a deficit for the coming year, the trustees confirm that going concern is not an issue due to sufficient unrestricted fund buffers.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Donations and legacies (41% of income)
“Donations and legacies - £184,623” — page 10
Per its FY2025 accounts as filed with the Charity Commission.
Fundraising cost ratio: 2.6% of fundraised income, as disclosed
“Fundraising — £11,691” — page 11
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: twelve months budgeted expenditure (held: £1.4m)
“Unrestricted funds not invested in tangible and intangible fixed assets (the free reserves) are held to meet a minimum of twelve months budgeted expenditure” — page 26
Per its FY2025 accounts as filed with the Charity Commission.

Accounts audited by Johnson Tidsall Limited. Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Myaware - Fighting Myasthenia Together (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/03/2024)

Total income
£1.2m
Total spending
£1.1m
Cost of raising funds
£13k
Reserves (reported)
£1.0m
Employees
18

Reported reserves equal ~11.6 months of spending — above the median for charities its size (median 7.0 months; benchmarks).

Per its annual return, cost of raising funds: 1.1% of total income — below the median for charities its size (2.9%) (benchmarks).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£449k£1.1m
31/03/2024£1.2m£1.1m
31/03/2023£329k£717k
31/03/2022£707k£1.0m
31/03/2021£993k£1.1m

Common questions

Is MYAWARE financially healthy?

Per its FY2025 accounts: The accounts state that the charity reported a total net deficit of £615,093 for the year ended 31 March 2025, resulting in a decrease in total funds to £1,525,857. Per the trustees' report, unrestricted free reserves stood at £1,377,748, which exceeds the stated policy target of twelve months' budgeted expenditure (£896,760). Although the charity forecasts a deficit for the coming year, the trustees confirm that going concern is not an issue due to sufficient unrestricted fund buffers. Its FY2025 accounts were audited by Johnson Tidsall Limited.

Who funds MYAWARE?

Funders whose own accounts filings name MYAWARE as a grant recipient include BERNARD LEWIS FAMILY CHARITABLE TRUST, THE ADRIAN SWIRE CHARITABLE TRUST, KATHLEEN BERYL SLEIGH CHARITABLE TRUST, THE JAMES WEIR FOUNDATION, THE LAWSON TRUST CIO.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
BERNARD LEWIS FAMILY CHARITABLE TRUSTFY2022£67kMedical general support
THE ADRIAN SWIRE CHARITABLE TRUSTFY2022£19k
BERNARD LEWIS FAMILY CHARITABLE TRUSTFY2024£13kMedical general support
KATHLEEN BERYL SLEIGH CHARITABLE TRUSTFY2022£5k
THE JAMES WEIR FOUNDATIONFY2022£5k
BERNARD LEWIS FAMILY CHARITABLE TRUSTFY2021£5kMedical general support
THE LAWSON TRUST CIOFY2022£5k
BERNARD LEWIS FAMILY CHARITABLE TRUSTFY2023£5kMedical general support
THE ADRIAN SWIRE CHARITABLE TRUSTFY2021£5k
DANDIA CHARITABLE TRUSTFY2022£3k
THE STRANGWARD TRUSTFY2022£3k
THE MARY ROBERTSON TRUSTFY2024£3k
THE MARY ROBERTSON TRUSTFY2023£3k
THE MIDDLETON FOUNDATIONFY2024£2k
THE MIDDLETON FOUNDATIONFY2025£2k
DANDIA CHARITABLE TRUSTFY2023£2k
THE MICHAEL MARSH CHARITABLE TRUSTFY2022£2k
The Belstead Ganzoni Charitable SettlementFY2022£2kGeneral charitable donations
DANDIA CHARITABLE TRUSTFY2024£1k
THE MARY ROBERTSON TRUSTFY2022£1k
THE BARBOUR FOUNDATIONFY2022£1k
THE ALAN EDWARD HIGGS CHARITYFY2022£1kTo provide support to sufferers in Coventry and Warwickshire
THE SIR JAMES ROLL CHARITABLE TRUSTFY2022£1k
THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST NICHOLAS WARWICKFY2025£171Charitable Donations from Woodloes Community Café

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund31/01/2019£10kSupporting myasthenics in South Yorks
The National Lottery Community Fund21/09/2018£9kSupporting self management of myasthenia
The National Lottery Community Fund09/08/2018£9kIsolated & young MG Support Weekend
Somerset Community Foundation14/12/2016£500Taunton-based support group for local people with Myasthenia Gravis.
The National Lottery Community Fund27/01/2016£6kPatient Information and Support Day - Warwickshire
The National Lottery Community Fund12/03/2015£8kImproving opportunities for people in northern Ireland
The National Lottery Community Fund05/08/2014£5kImproving support group for people with Myasthenia in North Wales
The National Lottery Community Fund14/03/2013£10kImproving the life quality of MG suffers in Co Antrim
The National Lottery Community Fund31/01/2013£6kFeasibility study to establish data regarding parents with MG who have chil
The National Lottery Community Fund09/08/2012£7kMGA Lothian Branch Progression
The National Lottery Community Fund03/03/2011£8kMyasthenia Gravis Association Scottish Conference
The National Lottery Community Fund09/12/2010£10kRaising Awareness and Improving Diagnosis of Myasthenia Gravis
The National Lottery Community Fund06/11/2009£7kSupply of interactive CD Rom to health professionals
The National Lottery Community Fund02/09/2009£5kSupply of Interactive CD Rom to Health Professionals.
The National Lottery Community Fund23/04/2009£9kDistribution of Interactive CD and Information Pack to Kent Health Professi
The National Lottery Community Fund11/02/2009£6kThere is no project name available for this record
The National Lottery Community Fund10/09/2008£50kMGAction 2008: Strengthening Our Community
The National Lottery Community Fund24/07/2008£10kSupply of Interactive CD Rom to Health Professional
The National Lottery Community Fund16/11/2006£1kEducation to medical professionals on CD ROM
The National Lottery Community Fund16/11/2006£5kInformation and Advice
The National Lottery Community Fund03/11/2006£9kThere is no project name available for this record
The National Lottery Community Fund13/10/2006£3kDisease of Myasthenia Gravis Education CD
The National Lottery Community Fund25/09/2006£10kCopy and Distribute Education Literature and CDs to Medical Professionals
The National Lottery Community Fund21/08/2006£3kThe East Devon and Exeter Branch of MGA
The National Lottery Community Fund26/04/2006£4kYoung Peoples Group

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOSITIS UK.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
MYAWARE£449k—0unclear2.6%no doubt
MYOSITIS UK FY2025£140k—0unclear—no doubt
MULTIPLE SYSTEM ATROPHY TRUST FY2025£1.3m—0above—no doubt
MYOTONIC DYSTROPHY SUPPORT GROUP FY2025£136k—0above—no doubt
MYOTUBULAR TRUST FY2025£147k£20,0000unclear—no doubt
THE MYALGIC ENCEPHALOPATHY ASSOCIATION LIMITED FY2025£895k—0unclear—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.