MYAWARE
The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a total net deficit of £615,093 for the year ended 31 March 2025, resulting in a decrease in total funds to £1,525,857. Per the trustees' report, unrestricted free reserves stood at £1,377,748, which exceeds the stated policy target of twelve months' budgeted expenditure (£896,760). Although the charity forecasts a deficit for the coming year, the trustees confirm that going concern is not an issue due to sufficient unrestricted fund buffers.
What the accounts disclose
“Donations and legacies - £184,623” — page 10
“Fundraising — £11,691” — page 11
“Unrestricted funds not invested in tangible and intangible fixed assets (the free reserves) are held to meet a minimum of twelve months budgeted expenditure” — page 26
Funders the charity credits
- PHG Buying Ltd
Structured financials (annual return, FY ending 31/03/2024)
Register events
- Received assets from another charity (08/11/2016)
Trustees
- ANDREW JOHN ROBINSON
- Claire Wen
- DR Bethan Lang
- Dr Channa Hewamadduma
- Dr Katherine Dodd
- Dr SAIJU JACOB
- Jon Rio
- Rashmi Rungta
- Sara Jones
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £449k | £1.1m |
| 31/03/2024 | £1.2m | £1.1m |
| 31/03/2023 | £329k | £717k |
| 31/03/2022 | £707k | £1.0m |
| 31/03/2021 | £993k | £1.1m |
Common questions
Is MYAWARE financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a total net deficit of £615,093 for the year ended 31 March 2025, resulting in a decrease in total funds to £1,525,857. Per the trustees' report, unrestricted free reserves stood at £1,377,748, which exceeds the stated policy target of twelve months' budgeted expenditure (£896,760). Although the charity forecasts a deficit for the coming year, the trustees confirm that going concern is not an issue due to sufficient unrestricted fund buffers. Its FY2025 accounts were audited by Johnson Tidsall Limited.
Who funds MYAWARE?
Funders whose own accounts filings name MYAWARE as a grant recipient include BERNARD LEWIS FAMILY CHARITABLE TRUST, THE ADRIAN SWIRE CHARITABLE TRUST, KATHLEEN BERYL SLEIGH CHARITABLE TRUST, THE JAMES WEIR FOUNDATION, THE LAWSON TRUST CIO.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 31/01/2019 | £10k | Supporting myasthenics in South Yorks |
| The National Lottery Community Fund | 21/09/2018 | £9k | Supporting self management of myasthenia |
| The National Lottery Community Fund | 09/08/2018 | £9k | Isolated & young MG Support Weekend |
| Somerset Community Foundation | 14/12/2016 | £500 | Taunton-based support group for local people with Myasthenia Gravis. |
| The National Lottery Community Fund | 27/01/2016 | £6k | Patient Information and Support Day - Warwickshire |
| The National Lottery Community Fund | 12/03/2015 | £8k | Improving opportunities for people in northern Ireland |
| The National Lottery Community Fund | 05/08/2014 | £5k | Improving support group for people with Myasthenia in North Wales |
| The National Lottery Community Fund | 14/03/2013 | £10k | Improving the life quality of MG suffers in Co Antrim |
| The National Lottery Community Fund | 31/01/2013 | £6k | Feasibility study to establish data regarding parents with MG who have chil |
| The National Lottery Community Fund | 09/08/2012 | £7k | MGA Lothian Branch Progression |
| The National Lottery Community Fund | 03/03/2011 | £8k | Myasthenia Gravis Association Scottish Conference |
| The National Lottery Community Fund | 09/12/2010 | £10k | Raising Awareness and Improving Diagnosis of Myasthenia Gravis |
| The National Lottery Community Fund | 06/11/2009 | £7k | Supply of interactive CD Rom to health professionals |
| The National Lottery Community Fund | 02/09/2009 | £5k | Supply of Interactive CD Rom to Health Professionals. |
| The National Lottery Community Fund | 23/04/2009 | £9k | Distribution of Interactive CD and Information Pack to Kent Health Professi |
| The National Lottery Community Fund | 11/02/2009 | £6k | There is no project name available for this record |
| The National Lottery Community Fund | 10/09/2008 | £50k | MGAction 2008: Strengthening Our Community |
| The National Lottery Community Fund | 24/07/2008 | £10k | Supply of Interactive CD Rom to Health Professional |
| The National Lottery Community Fund | 16/11/2006 | £1k | Education to medical professionals on CD ROM |
| The National Lottery Community Fund | 16/11/2006 | £5k | Information and Advice |
| The National Lottery Community Fund | 03/11/2006 | £9k | There is no project name available for this record |
| The National Lottery Community Fund | 13/10/2006 | £3k | Disease of Myasthenia Gravis Education CD |
| The National Lottery Community Fund | 25/09/2006 | £10k | Copy and Distribute Education Literature and CDs to Medical Professionals |
| The National Lottery Community Fund | 21/08/2006 | £3k | The East Devon and Exeter Branch of MGA |
| The National Lottery Community Fund | 26/04/2006 | £4k | Young Peoples Group |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE LANCASHIRE FOUNDATION | 2 | £10k |
| THE REED FOUNDATION | 1 | — |
| IGY FOUNDATION | 1 | £175k |
| THE HELEN STRAKER CHARITY | 1 | £60k |
| CLUB PELOTON | 1 | £56k |
| MY MITO MISSION | 1 | £50k |
| HOLLYHOCK CHARITABLE FOUNDATION | 1 | £31k |
| H C D MEMORIAL FUND | 1 | £20k |
Charities like this
- MYOSITIS UK
- MULTIPLE SYSTEM ATROPHY TRUST
- MYOTONIC DYSTROPHY SUPPORT GROUP
- MYOTUBULAR TRUST
- THE MYALGIC ENCEPHALOPATHY ASSOCIATION LIMITED
- THE LILY FOUNDATION
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| MYAWARE | £449k | — | 0 | unclear | 2.6% | no doubt |
| MYOSITIS UK | £140k | — | 0 | unclear | — | no doubt |
| MULTIPLE SYSTEM ATROPHY TRUST | £1.3m | — | 0 | above | — | no doubt |
| MYOTONIC DYSTROPHY SUPPORT GROUP | £136k | — | 0 | above | — | no doubt |
| MYOTUBULAR TRUST | £147k | £20,000 | 0 | unclear | — | no doubt |
| THE MYALGIC ENCEPHALOPATHY ASSOCIATION LIMITED | £895k | — | 0 | unclear | — | no doubt |