MYAWARE

Registered charity 1046443 · accounts filings on the Charity Commission register · Wikidata: Q21015838 · Wikipedia · also known as MYASTHENIA GRAVIS ASSOCIATION · also registered in Scotland as SC044744 (OSCR)

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

Objects

TO PROMOTE ANY CHARITABLE PURPOSES FOR THE BENEFIT OF THOSE PERSONS WHO SUFFER FROM MYASTHENIA GRAVIS, AND IN PARTICULAR BUT WITHOUT LIMITATION TO RELIEVE SICKNESS, HARDSHIP AND DISTRESS AND PROVIDE COMFORT AND SUPPORT TO PEOPLE SUFFERING FROM MYASTHENIA GRAVIS AND TO PROMOTE AND ENCOURAGE EDUCATION AND RESEARCH INTO MYASTHENIA GRAVIS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.

Area of benefit: IN PRACTICE, UNITED KINGDOM AND REPUBLIC OF IRELAND

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: Derby, East Midlands, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity reported a total net deficit of £615,093 for the year ended 31 March 2025, resulting in a decrease in total funds to £1,525,857. Per the trustees' report, unrestricted free reserves stood at £1,377,748, which exceeds the stated policy target of twelve months' budgeted expenditure (£896,760). Although the charity forecasts a deficit for the coming year, the trustees confirm that going concern is not an issue due to sufficient unrestricted fund buffers.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Johnson Tidsall Limited. Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints policy and procedures
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Myaware - Fighting Myasthenia Together (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• PHG Buying Ltd — “Corporate supporter PHG Buying Ltd Raise £13,000 for myaware” (source page)

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/03/2024)

Reported reserves equal ~11.6 months of spending — above the median for charities its size (median 7.2 months; benchmarks).

Per its annual return, cost of raising funds: 1.1% of total income — below the median for charities its size (3.2%) (benchmarks).

Register events

• Received assets from another charity (08/11/2016) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• ANDREW JOHN ROBINSON
• Claire Wen
• DR Bethan Lang
• Dr Channa Hewamadduma · trustee of 1 other charity
• Dr Katherine Dodd
• Dr SAIJU JACOB
• Jon Rio
• Rashmi Rungta · trustee of 1 other charity
• Sara Jones

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Grants marked “Unverified read” were flagged by automated checks as possibly misread from the funder’s filed accounts. They are listed, but left out of the totals, counts and funder relationships this site computes.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE MISCARRIAGE ASSOCIATION.

• THE MISCARRIAGE ASSOCIATION income £588k
• MYOTONIC DYSTROPHY SUPPORT GROUP income £136k
• MULTIPLE SYSTEM ATROPHY TRUST income £1.9m
• THE MIGRAINE TRUST income £1.0m
• MAGPAS income £5.6m
• ENDEAVOUR HEALTH CHARITY TRUST income £52k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.