THE MACULAR DISEASE SOCIETY

Registered charity 1001198 · accounts filings on the Charity Commission register · also known as MACULAR SOCIETY · also registered in Scotland as SC042015 (OSCR)

Beating the fear and isolation of macular disease with world-class research, and the best advice and support.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£8.9m
Latest spending
£7.6m
Registered
1990
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity finished the period with a satisfactory financial position, holding unrestricted reserves of £3,942k against a minimum reserve policy target of £2m. Per the trustees' report, the surplus for the year was £1,154k, though this is not believed to reflect a longer-term shift in the balance between income and expenditure.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Legacies (47% of income)
“Legacy income for the 12 month period to 31 March 2025 was £4,148k”
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: £2m (broadly three months of costs) (held: £3.9m)
“the Trustees concluded that a minimum reserve of £2m should be held for 2025/26. This represents broadly three months of costs budgeted for 2025/26.”
Per its FY2025 accounts as filed with the Charity Commission.
Related-party transaction: Transactions with RNIB, related party due to Trustee Amanda Rowland being a trustee of RNIB.
“Amanda Rowland, Trustee Director, is also a trustee of RNIB (Royal National Institute of Blind People) with which the Macular Society transacts on an arms-length basis. For the period ended 31 March 2025 these transactions amounted to £3,000 (2024: £4,448)” — page 88
Per its FY2025 accounts as filed with the Charity Commission.

Accounts audited by Sayer Vincent LLP. Discloses 4 of 6 completeness components.

Public fundraising profile: JustGiving — Macular Society (matched by registered charity number).

Leadership, per the charity’s website

Listed on the charity’s own website when we last crawled it; roles may have changed. Pay-band disclosures above are anonymous statutory disclosures and are not attributed to any named individual.

Property (HM Land Registry)

2 registered titles in England and Wales held by the charity’s company or corporate body (0 freehold). All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.

Public profiles (found on the charity’s own website): facebook

Structured financials (annual return, FY ending 31/03/2025)

Total income
£8.9m
Total spending
£7.6m
Cost of raising funds
£3.1m
Reserves (reported)
£3.9m
Employees
95

Reported reserves equal ~6.2 months of spending — above the median for charities its size (median 4.8 months; benchmarks).

Per its annual return, cost of raising funds: 34.5% of total income — above the 90th percentile for charities its size (median 5.2%) (benchmarks).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Guernsey · Isle Of Man · Jersey · Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£8.9m£7.6m
31/03/2024£10.2m£11.4m
31/12/2022£8.9m£7.4m
31/12/2021£7.8m£6.1m
31/12/2020£5.4m£5.3m

Common questions

Is THE MACULAR DISEASE SOCIETY financially healthy?

Per its FY2025 accounts: The accounts state that the charity finished the period with a satisfactory financial position, holding unrestricted reserves of £3,942k against a minimum reserve policy target of £2m. Per the trustees' report, the surplus for the year was £1,154k, though this is not believed to reflect a longer-term shift in the balance between income and expenditure. Its FY2025 accounts were audited by Sayer Vincent LLP.

Who funds THE MACULAR DISEASE SOCIETY?

Funders whose own accounts filings name THE MACULAR DISEASE SOCIETY as a grant recipient include ROBERT LUFF FOUNDATION LIMITED, THE ALBERT GUBAY CHARITABLE FOUNDATION, THE HEARN FOUNDATION, THE LINBURY TRUST, THE 29TH MAY 1961 CHARITY.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
ROBERT LUFF FOUNDATION LIMITEDFY2022£150k
THE ALBERT GUBAY CHARITABLE FOUNDATIONFY2023£100k
THE ALBERT GUBAY CHARITABLE FOUNDATIONFY2022£100kGeneral Fund
THE HEARN FOUNDATIONFY2025£100k
THE LINBURY TRUSTFY2023£60kTo employ a new dedicated member of staff who will develop and expand the Society’s existing digital channels, as well as piloting new work on social media. Fir
THE ALBERT GUBAY CHARITABLE FOUNDATIONFY2023£34k
THE ALBERT GUBAY CHARITABLE FOUNDATIONFY2023£20k
ROBERT LUFF FOUNDATION LIMITEDFY2023£20k
THE 29TH MAY 1961 CHARITYFY2022£20kcosts of supporting people suffering from the disease in a variety of ways
THE SYNCONA FOUNDATIONFY2024£20k
THOMAS POCKLINGTON TRUSTFY2024£18kRegular grants programme
DELVES CHARITABLE TRUSTFY2025£17k1 grant to a specific service provision
DELVES CHARITABLE TRUSTFY2024£17k1 grant to a specific service provision
DELVES CHARITABLE TRUSTFY2023£17k1 grant to a specific service provision
DELVES CHARITABLE TRUSTFY2022£15kGrant programme
THE HAREBELL CENTENARY FUNDFY2023£10k
THE BARBOUR FOUNDATIONFY2023£10k
THE WILL CHARITABLE TRUSTFY2023£10kBlind Care
THE HAREBELL CENTENARY FUNDFY2024£10k
THE HULL AND EAST RIDING CHARITABLE TRUSTFY2023£10k
KATHLEEN BERYL SLEIGH CHARITABLE TRUSTFY2023£10k
KATHLEEN BERYL SLEIGH CHARITABLE TRUSTFY2022£10k
THE HAREBELL CENTENARY FUNDFY2022£10k
THE THREE OAKS TRUSTFY2024£10k
THE EVAN CORNISH FOUNDATIONFY2022£10k
THE MILLICHOPE FOUNDATIONFY2022£10k
KATHLEEN BERYL SLEIGH CHARITABLE TRUSTFY2025£10k
THE HAREBELL CENTENARY FUNDFY2021£10k
THOMAS POCKLINGTON TRUSTFY2025£9kGet Set Progress grants to organisations hosting interns
THE INMAN CHARITYFY2023£7kMedical - Research
THE INMAN CHARITYFY2025£5kMedical - Research
The Patricia Routledge FoundationFY2024£5k
THE SIMON GIBSON CHARITABLE TRUSTFY2023£5k
THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATIONFY2023£5k
THE THREE OAKS TRUSTFY2025£5k
THE BARBOUR FOUNDATIONFY2023£5k
THE RANWORTH TRUST 1985FY2025£5kHealth and Medical
The Patricia Routledge FoundationFY2025£5k
THE RANWORTH TRUST 1985FY2024£5kHealth and Medical
THE FORRESTER FAMILY TRUSTFY2022£5kSMALLER GRANTS
THE DAVID FAMILY FOUNDATIONFY2023£5k
LILLIE JOHNSON CHARITABLE TRUSTFY2023£5k
THE LESLIE MARY CARTER CHARITABLE TRUSTFY2023£5k
THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATIONFY2024£5k
THE LINBURY TRUSTFY2024£5kA one-off grant towards costs for an energy audit.
THE RANWORTH TRUST 1985FY2023£5kHealth and Medical
THE LAWSON TRUST CIOFY2023£5k
THE JOHN COATES CHARITABLE TRUSTFY2024£5k
THE ELIZABETH FRANKLAND MOORE AND STAR FOUNDATIONFY2022£5k
THE JOHN COATES CHARITABLE TRUSTFY2023£5k

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund21/11/2024£97kEmpowering people affected by macular disease to improve their lives
The National Lottery Community Fund19/08/2024£20kHelping people living with macular disease at the earliest stage
The National Lottery Community Fund05/05/2023£10kEarly intervention and support for people diagnosed with sight loss
The National Lottery Community Fund20/09/2022£67kPractical and emotional support for people living with sight loss
The National Lottery Community Fund08/04/2022£10kA volunteer framework supporting visually-impaired people in English communities
The National Lottery Community Fund24/01/2022£10kA volunteer framework supporting visually-impaired people in Welsh communities
UK government25/11/2021£94kPatient-centred smartphone AI for protecting vision in macular disease
UK government25/11/2021£21kPatient-centred smartphone AI for protecting vision in macular disease
The National Lottery Community Fund22/07/2021£300kBeating the Fear of Isolation of Macular Disease
UK government09/09/2020£10kCoronavirus Community Support Fund
City Bridge Foundation20/01/2020£85kGrant to Macular Society
The National Lottery Community Fund26/11/2019£120kPractical and emotional support for people with sight loss
The National Lottery Community Fund11/09/2019£400kBeating the fear and isolation of sight-loss through macular disease
Community Foundation North East01/04/2015£10kTowards Peer support and rehabilitative training Year 3
The National Lottery Community Fund18/03/2015£348kBoosting the independence & sociality of people with Macular Disease
The National Lottery Community Fund12/03/2013£200kPeer Support for people with Macular Disease in Northern Ireland
The National Lottery Community Fund09/02/2012£3kVolunteer Training Day
The National Lottery Community Fund22/12/2011£10kVolunteer Training and Networking Project
The National Lottery Community Fund19/12/2011£4kCommunity Volunteer Training Project
The National Lottery Community Fund10/08/2010£340kVolunteer Development Project
The National Lottery Community Fund11/02/2010£5kSupport Groups - Northern Ireland
The National Lottery Community Fund18/12/2009£2kEducational and Trial Testing Latest Optical Equipment
The National Lottery Community Fund30/03/2009£7kManchester Conference
The National Lottery Community Fund16/06/2008£500Aid for group members transport costs
The National Lottery Community Fund21/03/2006£3kOutings

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with SIGHT RESEARCH UK.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
THE MACULAR DISEASE SOCIETY£8.9m——above—no doubt
SIGHT RESEARCH UK FY2025£871k—0below—no doubt
FOUNDATION OF THE SOCIETY OF RETINA SPECIALISTS FY2024£2.7m€100,001 - €110,000—above—no doubt
THE PARTIALLY SIGHTED SOCIETY FY2025£410k—0unclear—no doubt
ACTION AGAINST AGE-RELATED MACULAR DEGENERATION FY2025£122k£150,001 - £160,000—above—no doubt
RETINA UK FY2024£2.2m£90,000 - £100,000—unclear17.0%no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.