MOTOR NEURONE DISEASE ASSOCIATION
The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to improving care and support for people affected by MND, funding and improving research, and campaigning and raising awareness so that the needs of people with MND are addressed by society. Visit www.mndassociation.org
Financial health, per its FY2024 accounts
The accounts state that total income reached a record £40.8 million, resulting in a net surplus of £6.8 million for the year. The charity holds unrestricted reserves of £42.1 million, which significantly exceeds its stated policy target of a maximum £22.8 million. The trustees confirm the charity is a going concern with robust financial controls and no material uncertainties.
What the accounts disclose
“1 £140,000 - £149,999”
“Fundraising 21.5 53%”
“For every pound spent directly generating fundraising and legacy income, £6.78 was received.”
Year-over-year changes
- Top pay band moved from £130,001 - £140,000 (FY2023) to £140,000 - £149,999 (FY2024).
In the news
- Mardyke Walking Football Group raise over €10,000 to support Irish Motor Neurone Disease Association
- Band plays charity gig to raise funds for Motor Neurone Disease Association
- Cumbrian adventurer’s 12-day Nepal trek for Motor Neurone Disease Association
- Mardyke Walking Football host a special fundraising event in aid of the Irish Motor Neurone Disease Association
- The Motor Neurone Disease Association unveils bold new brand to accelerate progress
- Altnagelvin Hospital Choir hits the right note for Motor Neurone Disease Association
- Motor Neurone Disease Association appeals for donations for Christmas raffle
- CAPS golf day raises £10,500 for Motor Neurone Disease Association
Corporate structure
- Registered company of the charity Companies House 02007023
Company officers (Companies House)
- JONES, Craig on trustee list
- BARLOW, James Marc on trustee list
- DALLEY, Eleanor on trustee list
- PLUMMER, Susan on trustee list
- LEV, Ian on trustee list
- TODD, Kirrie on trustee list
- MARSHALL, James Daniel on trustee list
- KHAN, Usman Awais, Dr on trustee list
- MCGEE, Shaun Gerard, Dr not on trustee list
- QUINTON, Newell
Property (HM Land Registry)
Structured financials (annual return, FY ending 31/12/2024)
Register events
- Received assets from another charity (01/04/2025)
- Received assets from another charity (12/02/2025)
- Received assets from another charity (12/12/2024)
- Received assets from another charity (15/11/2024)
- Received assets from another charity (20/09/2024)
- Received assets from another charity (08/08/2023)
Trustees
- Alan Philip Graham MBE
- Anna Walker
- Craig Jones
- Eleanor Dalley
- Ian Lev
- James MARSHALL
- James Marc Barlow
- Kirrie Todd
- Shaun Gerard Mc Gee
- Susan Plummer
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2024 | £40.8m | £33.9m |
| 31/12/2023 | £37.9m | £26.8m |
| 31/12/2022 | £30.0m | £22.8m |
| 31/12/2021 | £28.9m | £18.1m |
| 31/12/2020 | £19.9m | £15.6m |
Common questions
Is MOTOR NEURONE DISEASE ASSOCIATION financially healthy?
Per its FY2024 accounts: The accounts state that total income reached a record £40.8 million, resulting in a net surplus of £6.8 million for the year. The charity holds unrestricted reserves of £42.1 million, which significantly exceeds its stated policy target of a maximum £22.8 million. The trustees confirm the charity is a going concern with robust financial controls and no material uncertainties. Its FY2024 accounts were audited by HaysMac LLP.
What does the highest-paid employee of MOTOR NEURONE DISEASE ASSOCIATION earn?
Per its FY2024 accounts, the highest-paid employee was in the £140,000 - £149,999 band.
Who funds MOTOR NEURONE DISEASE ASSOCIATION?
Funders whose own accounts filings name MOTOR NEURONE DISEASE ASSOCIATION as a grant recipient include THE THOMPSON FAMILY CHARITABLE TRUST, ALAN DAVIDSON FOUNDATION, THE NETHERBY TRUST, THE TOYOTA (GB) CHARITABLE TRUST, THE PENNIES FOUNDATION.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 26/05/2023 | £10k | First contact therapy for local people with MND |
| The National Lottery Community Fund | 03/04/2020 | £3k | social mobility |
| Foundation Scotland | 09/09/2013 | £205 | Grant to Motor Neurone Disease Association |
| The National Lottery Community Fund | 21/02/2006 | £101k | LentiVector-based gene therapy for Motor Neurone Disease |
| Northern Rock Foundation | 10/03/1998 | £13k | Grant awarded to The Motor Neurone Disease Association (Yorkshire) |
| Northern Rock Foundation | 10/03/1998 | £5k | Grant awarded to The Motor Neurone Disease Association (North East) |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE ALBERT GUBAY CHARITABLE FOUNDATION | 2 | £318k |
| THE BARBOUR FOUNDATION | 2 | £41k |
| CHRISTOS LAZARI FOUNDATION | 2 | £20k |
| THE EDWARD CADBURY CHARITABLE TRUST | 2 | £8k |
| THE GUNTER CHARITABLE TRUST | 2 | £6k |
| THE IAN ASKEW CHARITABLE TRUST | 2 | £3k |
| DRAGON CHRISTMAS CHARITY SALE | 2 | £1k |
| PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST. PAUL, PENKETH | 1 | — |
Charities like this
- THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS
- STAND AGAINST MND
- THE DARBY RIMMER MND FOUNDATION
- CHALLENGING MND
- MULTIPLE SCLEROSIS SOCIETY
- MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| MOTOR NEURONE DISEASE ASSOCIATION | £40.8m | £140,000 - £149,999 | — | unclear | 14.8% | no doubt |
| THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS | £700k | £60,001 - £70,000 | 0 | unclear | — | no doubt |
| STAND AGAINST MND | £121k | — | 0 | unclear | — | no doubt |
| THE DARBY RIMMER MND FOUNDATION | £709k | — | 0 | above | — | no doubt |
| CHALLENGING MND | £503k | — | 0 | unclear | — | no doubt |
| MULTIPLE SCLEROSIS SOCIETY | £29.8m | — | — | unclear | — | no doubt |