MOTOR NEURONE DISEASE ASSOCIATION

Registered charity 294354 · accounts filings on the Charity Commission register · Wikidata: Q6918146 · Wikipedia · also known as MND ASSOCIATION, MNDA

The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to improving care and support for people affected by MND, funding and improving research, and campaigning and raising awareness so that the needs of people with MND are addressed by society. Visit www.mndassociation.org

Objects

(A) THE RELIEF OF PERSONS WHO ARE, OR WHO ARE SUSPECTED OF BEING, AFFECTED BY MOTOR NEURONE DISEASE AND ITS ASSOCIATED CONDITIONS ("THE BENEFICIARIES") BY SEEKING TO ENSURE THAT SUCH PERSONS AND THEIR FAMILIES AND CARERS RECEIVE SUCH HELP AND ASSISTANCE AS IS CALCULATED TO RELIEVE THEIR NEED.(B) TO COMMISSION, UNDERTAKE, PROMOTE, MONITOR AND MANAGE RESEARCH INTO ALL ASPECTS OF MOTOR NEURONE DISEASE AND ITS ASSOCIATED CONDITIONS AND CAUSES AND WORK TOWARDS THEIR PREVENTION AND CURE AND TO PUBLISH AND DISSEMINATE THE USEFUL RESULTS FOR THE BENEFIT OF THE PUBLIC.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Disability · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: West Northamptonshire, East Midlands, England (from the postcode on the register)

Latest income

£48.0m

Latest spending

£44.8m

Registered

1986

Accounts read

FY2024

Financial health, per its FY2024 accounts

The accounts state that total income reached a record £40.8 million, resulting in a net surplus of £6.8 million for the year. The charity holds unrestricted reserves of £42.1 million, which significantly exceeds its stated policy target of a maximum £22.8 million. The trustees confirm the charity is a going concern with robust financial controls and no material uncertainties.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Highest-paid employee band: £140,000 - £149,999 — above the median for charities its size (£130k)

“1 £140,000 - £149,999”

Per its FY2024 accounts as filed with the Charity Commission.

Largest income source: Fundraising (53% of income)

“Fundraising 21.5 53%”

Per its FY2024 accounts as filed with the Charity Commission.

Fundraising cost ratio: 14.8% of fundraised income, as disclosed

“For every pound spent directly generating fundraising and legacy income, £6.78 was received.”

Per its FY2024 accounts as filed with the Charity Commission.

Accounts audited by HaysMac LLP. Discloses 4 of 6 completeness components.

Year-over-year changes

Top pay band moved from £130,001 - £140,000 (FY2023) to £140,000 - £149,999 (FY2024).

Comparing this charity’s FY2023 and FY2024 accounts as analysed by this site.

In its annual return the charity told the Commission it is also regulated by: Care Quality Commission. This is the charity’s own declaration; it is not a rating and has not been verified by the Commission or by this site.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 31/12/2025

Volunteers: 1,300
Employees paid over £60,000: 34 (£60,001–£70,000: 19; £70,001–£80,000: 8; £80,001–£90,000: 1; £90,001–£100,000: 3; £100,001–£110,000: 2; £140,001–£150,000: 1)
Has a trading subsidiary
Grant-making is its main activity

Self-declared on the annual return for the financial year ending 31/12/2024

Volunteers: 1,300
Government income: £1,309,374 — grants £1,309,374 (1); 3% of the £40,786,703 total gross income on the same return
Employees paid over £60,000: 24 (£60,001–£70,000: 17; £70,001–£80,000: 1; £80,001–£90,000: 1; £90,001–£100,000: 3; £100,001–£110,000: 1; £140,001–£150,000: 1)
Has a trading subsidiary
Grant-making is its main activity

Self-declared on the annual return for the financial year ending 31/12/2023

Volunteers: 1,300
Government income: £1,284,300 — grants £1,284,300 (1); 3% of the £37,922,000 total gross income on the same return
Employees paid over £60,000: 17 (£60,001–£70,000: 8; £70,001–£80,000: 2; £80,001–£90,000: 2; £90,001–£100,000: 3; £100,001–£110,000: 1; £130,001–£140,000: 1)
Has a trading subsidiary
Grant-making is its main activity

Source: this charity’s annual returns on the Charity Commission register.

In the news

Recent coverage mentioning this charity by name (automated match; headlines belong to their publishers).

Mardyke Walking Football Group raise over €10,000 to support Irish Motor Neurone Disease Association ucc.ie · 22/09/2026
Band plays charity gig to raise funds for Motor Neurone Disease Association gazetteandherald.co.uk · 08/09/2026
Cumbrian adventurer’s 12-day Nepal trek for Motor Neurone Disease Association cumbriacrack.com · 29/07/2026
Mardyke Walking Football host a special fundraising event in aid of the Irish Motor Neurone Disease Association echolive.ie · 20/07/2026
The Motor Neurone Disease Association unveils bold new brand to accelerate progress charitytoday.co.uk · 28/01/2026
Altnagelvin Hospital Choir hits the right note for Motor Neurone Disease Association derrynow.com · 13/01/2026
Motor Neurone Disease Association appeals for donations for Christmas raffle bromsgrovestandard.co.uk · 19/10/2025
CAPS golf day raises £10,500 for Motor Neurone Disease Association lovebusinesseastmidlands.com · 12/10/2025

Corporate structure

Registered company of the charity Companies House 02007023

Public fundraising profile: JustGiving — Motor Neurone Disease Association (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

JONES, Craig — director, appointed 08/08/2025on trustee list
BARLOW, James Marc — director, appointed 09/07/2025on trustee list
DALLEY, Eleanor — director, appointed 09/07/2025on trustee list
PLUMMER, Susan — director, appointed 09/07/2025on trustee list
LEV, Ian — director, appointed 27/06/2022on trustee list
TODD, Kirrie — director, appointed 27/05/2022on trustee list
MARSHALL, James Daniel — director, appointed 01/07/2021on trustee list
KHAN, Usman Awais, Dr — director, appointed 01/07/2021on trustee list
MCGEE, Shaun Gerard, Dr — director, appointed 15/05/2020not on trustee list
QUINTON, Newell — secretary, appointed 27/02/2026

Official officers record.

Property (HM Land Registry)

2 registered titles in England and Wales held by the charity’s company or corporate body (1 freehold); recorded price paid £450k. All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.

Structured financials (annual return, FY ending 31/12/2025)

Total income

£48.0m

Total spending

£44.8m

Cost of raising funds

£9.8m

Reserves (reported)

£46.0m

Employees

280

Reported reserves equal ~12.3 months of spending — in the top quarter for charities its size (median 4.6 months; benchmarks).

Per its annual return, cost of raising funds: 20.5% of total income — in the top quarter for charities its size (median 3.7%) (benchmarks).

Register events

Received assets from another charity (19/10/2026) — per the register’s event history; asset transfers typically record mergers or reorganisations.
Received assets from another charity (01/04/2025) — per the register’s event history; asset transfers typically record mergers or reorganisations.
Received assets from another charity (12/02/2025) — per the register’s event history; asset transfers typically record mergers or reorganisations.
Received assets from another charity (12/12/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.
Received assets from another charity (15/11/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.
Received assets from another charity (20/09/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

Alan Philip Graham MBE · trustee of 4 other charities
Anna Walker · trustee of 1 other charity
Craig Jones
Eleanor Dalley
Ian Lev
James MARSHALL · trustee of 1 other charity
James Marc Barlow
Kirrie Todd
Shaun Gerard Mc Gee
Susan Plummer

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2025	£48.0m	£44.8m
31/12/2024	£40.8m	£33.9m
31/12/2023	£37.9m	£26.8m
31/12/2022	£30.0m	£22.8m
31/12/2021	£28.9m	£18.1m

Common questions

Is MOTOR NEURONE DISEASE ASSOCIATION financially healthy?

Per its FY2024 accounts: The accounts state that total income reached a record £40.8 million, resulting in a net surplus of £6.8 million for the year. The charity holds unrestricted reserves of £42.1 million, which significantly exceeds its stated policy target of a maximum £22.8 million. The trustees confirm the charity is a going concern with robust financial controls and no material uncertainties. Its FY2024 accounts were audited by HaysMac LLP.

What does the highest-paid employee of MOTOR NEURONE DISEASE ASSOCIATION earn?

Per its FY2024 accounts, the highest-paid employee was in the £140,000 - £149,999 band.

Who funds MOTOR NEURONE DISEASE ASSOCIATION?

Funders whose own accounts filings name MOTOR NEURONE DISEASE ASSOCIATION as a grant recipient include THE THOMPSON FAMILY CHARITABLE TRUST, ALAN DAVIDSON FOUNDATION, THE NETHERBY TRUST, THE TOYOTA (GB) CHARITABLE TRUST, THE PENNIES FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
THE THOMPSON FAMILY CHARITABLE TRUST	FY2024	£500k
ALAN DAVIDSON FOUNDATION	FY2025	£162k	Support for MND Association
ALAN DAVIDSON FOUNDATION	FY2023	£151k	Grant
ALAN DAVIDSON FOUNDATION	FY2024	£150k
ALAN DAVIDSON FOUNDATION	FY2022	£148k	Support
THE PENNIES FOUNDATION	FY2025	Unverified read£140k	Grant to institution
THE NETHERBY TRUST	FY2023	£100k
THE THOMPSON FAMILY CHARITABLE TRUST	FY2025	£100k
THE TOYOTA (GB) CHARITABLE TRUST	FY2025	£91k	Toyota Charity Partner
THE TOYOTA (GB) CHARITABLE TRUST	FY2023	£73k	Corporate charity partner support for Toyota (GB) PLC and Toyota Financial Services (UK) PLC
THE PENNIES FOUNDATION	FY2024	£66k
THE CONSTANCE TRAVIS CHARITABLE TRUST	FY2025	£60k
THE DARBY RIMMER MND FOUNDATION	FY2025	£50k	Support to care grants for motor neurone disease sufferers and their families
THE DARBY RIMMER MND FOUNDATION	FY2022	Unverified read£50k	Donations to MND association
THE CONSTANCE TRAVIS CHARITABLE TRUST	FY2022	£50k
THE DARBY RIMMER MND FOUNDATION	FY2024	£50k	Support to care grants for motor neurone disease sufferers and their families
THE DARBY RIMMER MND FOUNDATION	FY2023	£50k	Care grants for motor neurone disease sufferers and their families
THE LINBURY TRUST	FY2021	£50k	Towards the AMBROSIA research project into better diagnosis of Motor Neurone Disease.
THE CONSTANCE TRAVIS CHARITABLE TRUST	FY2023	£50k
THE FRESHFIELD FOUNDATION	FY2022	£48k	Education, health & general wellbeing of mankind
FRANK BRAKE CHARITABLE TRUST	FY2023	£35k
THE HEATON - ELLIS TRUST	FY2024	£34k	Donation
FRANK BRAKE CHARITABLE TRUST	FY2022	£30k
STAND AGAINST MND	FY2024	£25k	research
STAND AGAINST MND	FY2024	£25k	research
STAND AGAINST MND	FY2023	£25k	connected donation to point 6 above
The Mel Evans MND Foundation	FY2023	£25k
THE REVERE CHARITABLE TRUST	FY2025	£25k
The William Brake Foundation	FY2023	£25k
The William Brake Foundation	FY2024	£25k
STAND AGAINST MND	FY2024	£25k	research
THE FRESHFIELD FOUNDATION	FY2023	£24k	Education, health & general wellbeing of mankind
BNA CHARITABLE INCORPORATED ORGANISATION	FY2025	£23k
THE CLAUDE AND SOFIA MARION FOUNDATION	FY2025	£21k	Healthcare
PEACOCK CHARITABLE TRUST	FY2022	£20k
STAND AGAINST MND	FY2023	£20k	top up the budget for promising research projects
THE ELIZABETH AND PRINCE ZAIGER TRUST	FY2025	£20k
KESWICK TO BARROW WALK	FY2025	£20k
THE BILLMEIR CHARITABLE TRUST	FY2023	£20k	Donations
ST EDMUNDS TRUST	FY2023	£17k
THE JONES 1986 CHARITABLE TRUST	FY2022	£15k	Relief of Sickness or Disability: General
ST EDMUNDS TRUST	FY2022	£15k
THE RANWORTH TRUST 1985	FY2024	£15k	Health and Medical
FRANK BRAKE CHARITABLE TRUST	FY2024	£15k
THE FIELDROSE CHARITABLE TRUST	FY2025	£15k
THE LIZ AND TERRY BRAMALL FOUNDATION	FY2025	£15k
THE OFENHEIM CHARITABLE TRUST	FY2023	£14k
THE ANNANDALE CHARITABLE TRUST	FY2022	£13k
THE OFENHEIM CHARITABLE TRUST	FY2022	£13k
THE TOYOTA (GB) CHARITABLE TRUST	FY2022	£13k	Corporate charity partner support for Toyota (GB) PLC and Toyota Financial Services (UK) PLC

Grants marked “Unverified read” were flagged by automated checks as possibly misread from the funder’s filed accounts. They are listed, but left out of the totals, counts and funder relationships this site computes.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	26/05/2023	£10k	First contact therapy for local people with MND
The National Lottery Community Fund	03/04/2020	£3k	social mobility
Foundation Scotland	09/09/2013	£205	Grant to Motor Neurone Disease Association
The National Lottery Community Fund	18/02/2008	£2k	Arts Works
The National Lottery Community Fund	21/02/2006	£101k	LentiVector-based gene therapy for Motor Neurone Disease
Northern Rock Foundation	10/03/1998	£5k	Grant awarded to The Motor Neurone Disease Association (North East)
Northern Rock Foundation	10/03/1998	£13k	Grant awarded to The Motor Neurone Disease Association (Yorkshire)

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
DRAGON CHRISTMAS CHARITY SALE	2	£1k
THE TOLKIEN TRUST	1	£305k
THE DUCHENNE RESEARCH FUND	1	£213k
THE FRANCES AND AUGUSTUS NEWMAN FOUNDATION	1	£75k
THE ALBERT GUBAY CHARITABLE FOUNDATION	1	£61k
ARDONAGH COMMUNITY TRUST	1	£20k
CHRISTOS LAZARI FOUNDATION	1	£15k
THE OPENWORK FOUNDATION	1	£15k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with STAND AGAINST MND.

STAND AGAINST MND income £121k
IAN PRATT MND FOUNDATION income £25k
FND ACTION income £59k
CHALLENGING MND income £503k
THE NEUROLOGICAL ALLIANCE income £297k
WORLD MUSCLE SOCIETY income £646k

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
MOTOR NEURONE DISEASE ASSOCIATION	£48.0m	£140,000 - £149,999	—	unclear	14.8%	no doubt
STAND AGAINST MND FY2025	£121k	—	0	unclear	—	no doubt
IAN PRATT MND FOUNDATION FY2025	£25k	—	—	unclear	—	no doubt
FND ACTION FY2025	£59k	—	—	above	—	no doubt
CHALLENGING MND FY2025	£503k	—	0	unclear	—	no doubt
THE NEUROLOGICAL ALLIANCE FY2025	£297k	£70,001 - £80,000	1	below	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.