THE CJD SUPPORT NETWORK

Registered charity 1097173 · accounts filings on the Charity Commission register

To provide accessible, plainly written CJD information, advice, emotional and practical support for patients, carers, professionals and those at risk through secondary transmission. Promoting good quality care, support and interagency co-operation. Linking families with similar experience.

Objects

1. TO RELIEVE PERSONS AND THEIR CARERS AFFECTED BY CREUTZFELDT JAKOB DISEASE AND ALL HUMAN PRION DISEASES (CJD* FOR THE REST OF THE CONSTITUTION) BY THE PROVISION OF INFORMATION, ADVICE AND SUPPORT.2. TO ADVANCE SCIENTIFIC AND MEDICAL EDUCATION AND RESEARCH IN TOPICS RELATED TO CREUTZFELDT JAKOB DISEASE AND ALL PRION DISEASE (CJD*) INCLUDING, BUT NOT EXCLUSIVELY BY THE PROVISION OF CONFERENCES, TRAINING, WORKSHOPS AND TALKS.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Cheshire West and Chester, North West, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity reported a financial surplus of just over £214,000 for the year ended March 2025, with total income of £260,241 against expenditure of £38,640. Per the trustees' report, the charity maintains sufficient reserves to safeguard against future fluctuations in income and expenditure, resulting in unrestricted funds of £454,085 at year-end.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — The CJD Support Network (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

• Richard Sydney Godfrey Knightchair
• Andrew Paul TAKOUSHIS
• Bethan Rose Marsh
• Daniel Michael Schonberg
• Dr Diane Louise Ritchie
• Elizabeth Amy Hill
• Katherine Dahill
• Professor Simon Harvey Mead
• Sean Kevan Horstead

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with JDC WELFARE UK LTD.

• JDC WELFARE UK LTD income £190k
• SEND THE RIGHT MESSAGE income £109k
• CHARITY TAX GROUP income £250k
• CXK income £7.5m
• CdLS Foundation UK & Ireland income £54k
• The Social Justice Network income £346k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.