DOWN SYNDROME INTERNATIONAL
Providing support networks and assistance to people with Down syndrome and those who live and work with them throughout the world. Committed to ensuring quality of life and human rights for all people with Down syndrome worldwide.
Objects
1) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE WITH DOWN SYNDROME THROUGH THE PROVISION OF SUPPORT AND RESOURCES TO PEOPLE WITH DOWN SYNDROME, THEIR FAMILIES AND CARERS, AND THE PROFESSIONALS WHO WORK WITH THEM WITH SPECIFIC FOCUS ON DEVELOPING COUNTRIES; AND2) TO UNDERTAKE ANY OTHER CHARITABLE ACTIVITIES IN CONNECTION WITH DOWN SYNDROME AND OTHER LEARNING DISABILITIES AS THE TRUSTEES SHALL DETERMINE
Financial health, per its FY2025 accounts
The accounts state that the charity ended the year with a surplus of £16,836, bringing total unrestricted funds to £61,097. However, the trustees report that this level of free reserves is below their stated policy target of 3 to 6 months of annual costs, as the current reserves cover only approximately 2 months of expenditure. The charity relies on an overdraft facility with the Down's Syndrome Association to manage cash flow and notes that it must develop stronger fundraising strategies to improve its financial stability.
What the accounts disclose
“1 employee earned more than £60,000 during the year (2023/24: 1).” — page 63
“Our free reserves for 2024-25 are £61,097. This means we have approximately 2 months of costs in reserve. While this is still below the minimum of 3 months required by our policy” — page 35
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/03/2025
- Volunteers: 1
- Employees paid over £60,000: 1 (£60,001–£70,000: 1)
Self-declared on the annual return for the financial year ending 31/03/2024
- Volunteers: 2
- Employees paid over £60,000: 1 (£60,001–£70,000: 1)
Self-declared on the annual return for the financial year ending 31/03/2023
- Employees paid over £60,000: 1 (£60,001–£70,000: 1)
Trustees
- Ana Lucia Arellano Barba
- Angus Graham
- BRIDGET SNEDDEN
- CAROL BOYS
- Dr RHONDA FARAGHER
- JESSAMY TANG
- Janet Charchuk
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £389k | £372k |
| 31/03/2024 | £423k | £398k |
| 31/03/2023 | £317k | £403k |
| 31/03/2022 | £414k | £359k |
| 31/03/2021 | £412k | £382k |
Common questions
Is DOWN SYNDROME INTERNATIONAL financially healthy?
Per its FY2025 accounts: The accounts state that the charity ended the year with a surplus of £16,836, bringing total unrestricted funds to £61,097. However, the trustees report that this level of free reserves is below their stated policy target of 3 to 6 months of annual costs, as the current reserves cover only approximately 2 months of expenditure. The charity relies on an overdraft facility with the Down's Syndrome Association to manage cash flow and notes that it must develop stronger fundraising strategies to improve its financial stability. Its FY2025 accounts were independently examined.
Who funds DOWN SYNDROME INTERNATIONAL?
Funders whose own accounts filings name DOWN SYNDROME INTERNATIONAL as a grant recipient include JOFFE CHARITABLE TRUST CIO.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| JOFFE CHARITABLE TRUST CIO | FY2025 | £315k | Grants to institutions |
| JOFFE CHARITABLE TRUST CIO | FY2022 | £30k | |
| JOFFE CHARITABLE TRUST CIO | FY2023 | £30k | |
| JOFFE CHARITABLE TRUST CIO | FY2021 | £25k |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 16/07/2026 | £20k | Supporting people with Down syndrome and their Families |
| The National Lottery Community Fund | 16/02/2024 | £20k | Continuing to support people with Down syndrome and their Families |
| The National Lottery Community Fund | 03/02/2023 | £10k | Supporting people with Down syndrome and their Families |
| The National Lottery Community Fund | 20/08/2021 | £10k | COVID-19 Response continuation for people with Down syndrome |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE GEOFF & FIONA SQUIRE FOUNDATION | 2 | £21k |
| THE ASTOR FOUNDATION | 2 | £3k |
| THE MASTER CHARITABLE TRUST | 1 | £250k |
| THE BIG YELLOW FOUNDATION | 1 | £185k |
| The Brindle Foundation | 1 | £117k |
| LSEG Foundation | 1 | £56k |
| JOHN LAING CHARITABLE TRUST | 1 | £40k |
| THE NATIONAL FOUNDATION FOR YOUTH MUSIC | 1 | £27k |
Charities like this
- DOWN SYNDROME UK
- DOWN'S SYNDROME ASSOCIATION
- CORNWALL DOWNS SYNDROME SUPPORT GROUP
- DOWN SYNDROME EDUCATION INTERNATIONAL
- NOTTINGHAMSHIRE DOWN'S SYNDROME SUPPORT GROUP
- DOWNS SYNDROME RESEARCH FOUNDATION LIMITED
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| DOWN SYNDROME INTERNATIONAL | £389k | — | 1 | below | — | no doubt |
| DOWN SYNDROME UK | £455k | — | 0 | unclear | — | no doubt |
| DOWN'S SYNDROME ASSOCIATION | £2.7m | £60,001 - £70,000 | 1 | within | 17.0% | no doubt |
| CORNWALL DOWNS SYNDROME SUPPORT GROUP | £30k | — | 0 | unclear | — | no doubt |
| DOWN SYNDROME EDUCATION INTERNATIONAL | £287k | — | 0 | above | — | no doubt |
| NOTTINGHAMSHIRE DOWN'S SYNDROME SUPPORT GROUP | £68k | — | — | unclear | — | no doubt |