DOWN'S SYNDROME ASSOCIATION
We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.We strive to improve knowledge of the condition.We champion the rights of people with Down's syndrome.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a surplus of £267,635 for the year ended 31 March 2025, compared to a deficit in the prior year. Per the trustees' report, free reserves amount to £1.7m, which the trustees consider adequate to fund activities for the foreseeable future.
What the accounts disclose
“One employee earned between £60,000 and £70,000 in 2025 ( one in 2024)” — page 58
“One employee earned between £60,000 and £70,000 in 2025 ( one in 2024)” — page 58
“The amount of money spent on raising funds represented 17% (2024: 16%) of total expenditure (or 17p in every £1 spent).” — page 27
“The charitable company owns the whole of the issued ordinary share capital of Down's Syndrome Trading Limited (DST), a company registered in England. The subsidiary is used for non-primary purpose trading activities.” — page 60
Year-over-year changes
- Top pay band moved from Over £60,000 (FY2024) to £60,001 - £70,000 (FY2025).
Leadership, per the charity’s website
- Carol Boys — Chief Executive
Funders the charity credits
Property (HM Land Registry)
Structured financials (annual return, FY ending 31/03/2025)
Register events
- Received assets from another charity (24/03/2023)
- Received assets from another charity (18/01/2023)
- Received assets from another charity (27/01/2017)
Trustees
- DARREN WARKCUP
- Dr JOHN GERARD COGHLAN
- Professor Anthony J Holland
- ROBERT STIRLING
- SARAH LEGGAT
- TREVOR PEARCY
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £2.7m | £2.4m |
| 31/03/2024 | £1.8m | £2.3m |
| 31/03/2023 | £2.0m | £2.1m |
| 31/03/2022 | £2.1m | £2.0m |
| 31/03/2021 | £2.9m | £2.0m |
Common questions
Is DOWN'S SYNDROME ASSOCIATION financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a surplus of £267,635 for the year ended 31 March 2025, compared to a deficit in the prior year. Per the trustees' report, free reserves amount to £1.7m, which the trustees consider adequate to fund activities for the foreseeable future. Its FY2025 accounts were audited by Sayer Vincent LLP.
What does the highest-paid employee of DOWN'S SYNDROME ASSOCIATION earn?
Per its FY2025 accounts, the highest-paid employee was in the £60,001 - £70,000 band, and 1 employees earned over £60,000.
Who funds DOWN'S SYNDROME ASSOCIATION?
Funders whose own accounts filings name DOWN'S SYNDROME ASSOCIATION as a grant recipient include THE BIG YELLOW FOUNDATION, LSEG Foundation, JOHN LAING CHARITABLE TRUST, THE SIR JAMES RECKITT CHARITY, THE BARBOUR FOUNDATION.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 17/09/2024 | £910k | WorkFit Programme England |
| The National Lottery Community Fund | 16/09/2024 | £20k | Complex Needs Service |
| The National Lottery Community Fund | 26/05/2023 | £10k | Dementia Handbook for People with Down's syndrome |
| The National Lottery Community Fund | 19/11/2021 | £10k | DSA WorkFit London |
| City Bridge Foundation | 27/07/2021 | £54k | Grant to Down's Syndrome Association |
| The National Lottery Community Fund | 18/06/2020 | £100k | Delivering Differently |
| The National Lottery Heritage Fund | 27/11/2019 | £149k | "50th Year Memories and Stories" |
| The National Lottery Community Fund | 25/01/2019 | £10k | DSActive National Festival 2019 |
| City Bridge Foundation | 01/04/2018 | £117k | Grant to Down's Syndrome Association |
| Sport England | 23/06/2017 | £97k | DSActive Adult Sports |
| The National Lottery Community Fund | 22/03/2017 | £497k | WorkFit North |
| The National Lottery Heritage Fund | 03/06/2015 | £85k | "Normansfield: Protecting a Theatrical Past" |
| The National Lottery Community Fund | 03/12/2014 | £6k | Tell it Right, Start it Right |
| City Bridge Foundation | 04/09/2013 | £82k | Grant to Down's Syndrome Association |
| Sport England | 05/02/2013 | £290k | DSActive Adult Sports |
| The National Lottery Community Fund | 29/11/2012 | £10k | Improving healthcare fpr people with Down's Syndrome |
| The National Lottery Community Fund | 15/08/2012 | £200k | The Harvest Project |
| The National Lottery Heritage Fund | 07/12/2011 | £46k | "Pullen: Ships of Reality and the Imagination" |
| The National Lottery Community Fund | 06/10/2011 | £10k | Be Active! |
| The National Lottery Community Fund | 01/09/2011 | £9k | Celebrating Success in Down's Syndrome Education |
| The National Lottery Community Fund | 23/07/2010 | £10k | Mind Yourself |
| Sport England | 13/04/2010 | £25k | DSActive |
| City Bridge Foundation | 26/03/2009 | £0 | Eco audit to Down's Syndrome Association |
| The National Lottery Community Fund | 15/01/2009 | £10k | Entertainment Factory |
| City Bridge Foundation | 05/11/2008 | £68k | Grant to Down's Syndrome Association |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE HARGREAVES FOUNDATION | 2 | £53k |
| CO-OPERATIVE COMMUNITY INVESTMENT FOUNDATION | 1 | £150k |
| THE RIX-THOMPSON-ROTHENBERG FOUNDATION | 1 | £139k |
| THE STEVEN BLOCH IMAGE OF DISABILITY CHARITABLE TRUST | 1 | £91k |
| JOFFE CHARITABLE TRUST CIO | 1 | £85k |
| THE POWELL FAMILY FOUNDATION | 1 | £20k |
| THE PHILIP AND CONNIE PHILLIPS FOUNDATION | 1 | £19k |
| EARL OF CHESTER'S FUND | 1 | £18k |
Charities like this
- DOWN SYNDROME INTERNATIONAL
- DOWN SYNDROME UK
- DOWN SYNDROME TRAINING AND SUPPORT SERVICE LIMITED
- DOWNRIGHT EXCELLENT
- DOWN'S SOUTH LONDON
- UPS AND DOWNS SOUTH WEST
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| DOWN'S SYNDROME ASSOCIATION | £2.7m | £60,001 - £70,000 | 1 | within | 17.0% | no doubt |
| DOWN SYNDROME INTERNATIONAL | £389k | — | 1 | below | — | no doubt |
| DOWN SYNDROME UK | £455k | — | 0 | unclear | — | no doubt |
| DOWN SYNDROME TRAINING AND SUPPORT SERVICE LIMITED | £236k | — | 0 | unclear | — | no doubt |
| DOWNRIGHT EXCELLENT | £224k | — | 0 | below | — | no doubt |
| DOWN'S SOUTH LONDON | £132k | — | 0 | unclear | — | no doubt |