DOWN'S SYNDROME ASSOCIATION
We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.We strive to improve knowledge of the condition.We champion the rights of people with Down's syndrome.
Objects
TO CREATE AND DEVELOP THE CONDITIONS WHICH WILL ENABLE PEOPLE WITH DOWN'S SYNDROME TO ATTAIN THEIR FULL POTENTIAL.TO UNDERTAKE ANY OTHER CHARITABLE ACTIVITIES IN CONNECTION WITH DOWN'S SYNDROME
Financial health, per its FY2025 accounts
The accounts state that the charity reported a surplus of £267,635 for the year ended 31 March 2025, compared to a deficit in the prior year. Per the trustees' report, free reserves amount to £1.7m, which the trustees consider adequate to fund activities for the foreseeable future.
What the accounts disclose
“One employee earned between £60,000 and £70,000 in 2025 ( one in 2024)” — page 58
“One employee earned between £60,000 and £70,000 in 2025 ( one in 2024)” — page 58
“The amount of money spent on raising funds represented 17% (2024: 16%) of total expenditure (or 17p in every £1 spent).” — page 27
“The charitable company owns the whole of the issued ordinary share capital of Down's Syndrome Trading Limited (DST), a company registered in England. The subsidiary is used for non-primary purpose trading activities.” — page 60
Year-over-year changes
- Top pay band moved from Over £60,000 (FY2024) to £60,001 - £70,000 (FY2025).
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/03/2025
- Volunteers: 35
- Government income: £108,168 — grants £108,168 (2); 4% of the £2,706,258 total gross income on the same return
- Employees paid over £60,000: 1 (£60,001–£70,000: 1)
- Has a trading subsidiary
Self-declared on the annual return for the financial year ending 31/03/2024
- Volunteers: 35
- Government income: £100,914 — grants £100,914 (2); 6% of the £1,762,073 total gross income on the same return
- Employees paid over £60,000: 1 (£60,001–£70,000: 1)
- Has a trading subsidiary
Self-declared on the annual return for the financial year ending 31/03/2023
- Volunteers: 35
- Government income: £134,164 — grants £134,164 (2); 7% of the £2,032,121 total gross income on the same return
- Has a trading subsidiary
Corporate structure
- Trading subsidiary: DOWN'S SYNDROME TRADING LIMITED Companies House 02201212
- Registered company of the charity Companies House 03310024
- Turnover: £11.7m
- Profit before tax: £1.0m
- Donated/gift-aided to the charity: £772k
- The company donates available profits to its parent undertaking.
“No corporation tax is due as available profits are paid as a gift aid donation to the parent charity.”
Leadership, per the charity’s website
- Carol Boys — Chief Executive
Funders the charity credits
Company officers (Companies House)
- HOLLAND, Anthony John, Professor on trustee list
- PEARCY, Trevor Robert on trustee list
- WARKCUP, Darren on trustee list
- STIRLING, Robert Alexander on trustee list
- COGHLAN, John Gerard on trustee list
- LEGGAT, Sarah on trustee list
- LACLOTE, Macarena
Property (HM Land Registry)
Structured financials (annual return, FY ending 31/03/2025)
Register events
- Received assets from another charity (02/10/2026)
- Received assets from another charity (24/03/2023)
- Received assets from another charity (18/01/2023)
- Received assets from another charity (27/01/2017)
Trustees
- DARREN WARKCUP
- Dr JOHN GERARD COGHLAN
- Professor Anthony J Holland
- ROBERT STIRLING
- SARAH LEGGAT
- TREVOR PEARCY
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £2.7m | £2.4m |
| 31/03/2024 | £1.8m | £2.3m |
| 31/03/2023 | £2.0m | £2.1m |
| 31/03/2022 | £2.1m | £2.0m |
| 31/03/2021 | £2.9m | £2.0m |
Common questions
Is DOWN'S SYNDROME ASSOCIATION financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a surplus of £267,635 for the year ended 31 March 2025, compared to a deficit in the prior year. Per the trustees' report, free reserves amount to £1.7m, which the trustees consider adequate to fund activities for the foreseeable future. Its FY2025 accounts were audited by Sayer Vincent LLP.
What does the highest-paid employee of DOWN'S SYNDROME ASSOCIATION earn?
Per its FY2025 accounts, the highest-paid employee was in the £60,001 - £70,000 band, and 1 employees earned over £60,000.
Who funds DOWN'S SYNDROME ASSOCIATION?
Funders whose own accounts filings name DOWN'S SYNDROME ASSOCIATION as a grant recipient include THE MASTER CHARITABLE TRUST, THE BIG YELLOW FOUNDATION, LSEG Foundation, JOHN LAING CHARITABLE TRUST, DRAPERS CHARITABLE FUND.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 17/09/2024 | £910k | WorkFit Programme England |
| The National Lottery Community Fund | 16/09/2024 | £20k | Complex Needs Service |
| The National Lottery Community Fund | 26/05/2023 | £10k | Dementia Handbook for People with Down's syndrome |
| The National Lottery Community Fund | 19/11/2021 | £10k | DSA WorkFit London |
| City Bridge Foundation | 27/07/2021 | £54k | Grant to Down's Syndrome Association |
| The National Lottery Community Fund | 18/06/2020 | £100k | Delivering Differently |
| The National Lottery Heritage Fund | 27/11/2019 | £149k | "50th Year Memories and Stories" |
| The National Lottery Community Fund | 25/01/2019 | £10k | DSActive National Festival 2019 |
| City Bridge Foundation | 01/04/2018 | £117k | Grant to Down's Syndrome Association |
| Sport England | 23/06/2017 | £97k | DSActive Adult Sports |
| The National Lottery Community Fund | 22/03/2017 | £497k | WorkFit North |
| The National Lottery Heritage Fund | 03/06/2015 | £85k | "Normansfield: Protecting a Theatrical Past" |
| The National Lottery Community Fund | 03/12/2014 | £6k | Tell it Right, Start it Right |
| The National Lottery Community Fund | 29/11/2013 | £269k | WorkFit Wales |
| City Bridge Foundation | 04/09/2013 | £82k | Grant to Down's Syndrome Association |
| The National Lottery Community Fund | 23/05/2013 | £9k | Youth Support |
| Sport England | 05/02/2013 | £290k | DSActive Adult Sports |
| The National Lottery Community Fund | 29/11/2012 | £10k | Improving healthcare fpr people with Down's Syndrome |
| The National Lottery Community Fund | 15/08/2012 | £200k | The Harvest Project |
| The National Lottery Heritage Fund | 07/12/2011 | £46k | "Pullen: Ships of Reality and the Imagination" |
| The National Lottery Community Fund | 06/10/2011 | £10k | Be Active! |
| The National Lottery Community Fund | 01/09/2011 | £9k | Celebrating Success in Down's Syndrome Education |
| The National Lottery Community Fund | 23/07/2010 | £10k | Mind Yourself |
| Sport England | 13/04/2010 | £25k | DSActive |
| City Bridge Foundation | 26/03/2009 | amount not stated | Eco audit to Down's Syndrome Association |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| JOFFE CHARITABLE TRUST CIO | 1 | £400k |
| THE JOHN R. MURRAY CHARITABLE TRUST | 1 | £13k |
| THE DAVID FAMILY FOUNDATION | 1 | £3k |
| THE ASTOR FOUNDATION | 1 | £2k |
| THE AUSTIN AND HOPE PILKINGTON TRUST | 1 | £1k |
Charities like this
- DOWN SYNDROME INTERNATIONAL
- DOWN SYNDROME UK
- DOWNS SYNDROME RESEARCH FOUNDATION LIMITED
- CORNWALL DOWNS SYNDROME SUPPORT GROUP
- NOTTINGHAMSHIRE DOWN'S SYNDROME SUPPORT GROUP
- DOWN SYNDROME TRAINING AND SUPPORT SERVICE LIMITED
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| DOWN'S SYNDROME ASSOCIATION | £2.7m | £60,001 - £70,000 | 1 | within | 17.0% | no doubt |
| DOWN SYNDROME INTERNATIONAL | £389k | — | 1 | below | — | no doubt |
| DOWN SYNDROME UK | £455k | — | 0 | unclear | — | no doubt |
| DOWNS SYNDROME RESEARCH FOUNDATION LIMITED | £30k | — | — | unclear | — | no doubt |
| CORNWALL DOWNS SYNDROME SUPPORT GROUP | £30k | — | 0 | unclear | — | no doubt |
| NOTTINGHAMSHIRE DOWN'S SYNDROME SUPPORT GROUP | £68k | — | — | unclear | — | no doubt |