THE CHRONIC GRANULOMATOUS DISORDER SOCIETY
FORMERLY KNOWN AS THE CGD RESEARCH TRUST, THE CHRONIC GRANULOMATOUS DISORDER SOCIETY IS SOLELY CONCERNED WITH THE WELLBEING OF THOSE AFFECTED BY CHRONIC GRANULOMATOUS DISORDER. OUR MISSION IS TO BE THE LEADING GLOBAL SOURCE OF SUPPORT AND INFORMATION ON THIS RARE GENETIC DISORDER AND THEREBY CREATE A CHARITY THAT IS RESPECTED BY AFFECTED FAMILIES AND MEDICAL PROFESSIONALS THROUGHOUT THE WORLD.
Objects
THE OBJECTS ARE:3.1 THE RELIEF OF PERSONS SUFFERING FROM CHRONIC GRANULOMATOUS DISORDER OR OTHER PRIMARY IMMUNE DEFICIENCIES OR RELATED ILLNESSES;3.2 THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSES, CURE, PREVENTION OR RELIEF OF SUCH DISORDERS AND/OR ILLNESSES AND THE PUBLICATION OF THE USEFUL RESULTS OF THAT RESEARCH;3.3 TO ADVANCE THE EDUCATION OF THE PUBLIC ON THE SUBJECT OF SUCH DISORDERS AND/OR ILLNESSES; AND 3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.
Financial health, per its FY2025 accounts
The accounts state that the charity achieved a net surplus of £154,067 for the year ended 31 March 2025, reversing previous deficit years. Per the trustees' report, free reserves were maintained at £129,000, which corresponds to 6.6 months of budgeted core expenditure, falling within the stated policy target of six to twelve months.
What the accounts disclose
“Our total income for the year increased to £360,000 (2024: £107,000), of which the largest component was donations and gifts which accounted for £348k, or 97% of total income (2024: £93,000, 86%).”
“Our remaining expenditure consists of £4,000 / 2% on essential governance costs (2024: £3,000, 1%), and £84,000 / 41% on raising funds (2024: £38,000, 20%).” — page 24
“Our charity’s policy is that unrestricted funds which have not been designated for a specific use should be maintained equivalent to between six- and twelve-month’s expenditure.” — page 26
“Two trustees of the Chronic Granulomatous Disorder Society also serve as trustees of a related charity, the Jeans for Genes Campaign. In the prior year an amount owing as repayment of a capital loan from the Jeans for Genes Campaign charity to the Chronic Granulomatous Disorder Society of £39,970 was written off. This agreement was to facilitate the winding down of that related charity. There were no disclosable related party transactions during the year.” — page 40
Year-over-year changes
- Going concern: going-concern doubt noted (FY2024) → no going-concern doubt (FY2025).
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Serious incident reporting policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/03/2025
- Volunteers: 4
- Has a trading subsidiary
Self-declared on the annual return for the financial year ending 31/03/2024
- Volunteers: 3
- Has a trading subsidiary
Self-declared on the annual return for the financial year ending 31/03/2023
- Volunteers: 3
- Has a trading subsidiary
Register events
- Received assets from another charity (03/10/2011)
Trustees
- Andrew Worthington
- Chikai Lai
- Lucie Eadon
- Maria Elizabeth Loughenbury
- Matthew Strawbridge
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £359k | £205k |
| 31/03/2024 | £107k | £201k |
| 31/03/2023 | £93k | £177k |
| 31/03/2022 | £127k | £124k |
| 31/03/2021 | £83k | £160k |
Common questions
Is THE CHRONIC GRANULOMATOUS DISORDER SOCIETY financially healthy?
Per its FY2025 accounts: The accounts state that the charity achieved a net surplus of £154,067 for the year ended 31 March 2025, reversing previous deficit years. Per the trustees' report, free reserves were maintained at £129,000, which corresponds to 6.6 months of budgeted core expenditure, falling within the stated policy target of six to twelve months. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 17/10/2024 | £10k | CGD Information and Support |
| The National Lottery Community Fund | 11/11/2022 | £10k | CGD Information and Support |
| The National Lottery Community Fund | 06/09/2018 | £10k | The CGD Society Family Conference |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE MELETE FOUNDATION | 1 | £10k |
| THE PORTISHEAD NAUTICAL TRUST | 1 | £4k |
| THE NINEVEH CHARITABLE TRUST | 1 | £4k |
| THE HISCOX FOUNDATION | 1 | £1k |
Charities like this
- CDG UK
- Centre for Governance and Scrutiny
- GC FOUNDATION
- THE ASSOCIATION FOR CLINICAL GENOMIC SCIENCE
- THE CJD SUPPORT NETWORK
- CURE DHDDS
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| THE CHRONIC GRANULOMATOUS DISORDER SOCIETY | £359k | — | 0 | within | 41.0% | no doubt |
| CDG UK | £30k | — | 0 | unclear | — | no doubt |
| Centre for Governance and Scrutiny | £704k | £90,001 - £100,000 | — | above | — | no doubt |
| GC FOUNDATION | £48k | — | 0 | unclear | — | no doubt |
| THE ASSOCIATION FOR CLINICAL GENOMIC SCIENCE | £57k | — | 0 | above | — | no doubt |
| THE CJD SUPPORT NETWORK | £261k | — | 0 | above | — | no doubt |