ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED

Registered charity 1132271 · accounts filings on the Charity Commission register · also known as AGSD (UK), POMPE UK

We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.

Objects

THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGENSTORAGE DISEASE

Area of benefit: UNDEINED. IN PRACTICE, NATIONAL

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: Eastleigh, South East, England (from the postcode on the register)

Financial health, per its FY2024 accounts

The accounts state that the charity reported a net income surplus of £44,729 for the year ended 31 March 2024, increasing its total funds to £128,082. The trustees confirmed adequate resources for going concern and noted that free reserves stood at £43,061, which is below the stated policy target of no greater than 25% of total in-year expenditure. The charity operates a defined contribution pension scheme and has no disclosed trading subsidiaries or pension deficits.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Corporate structure

• Registered company of the charity Companies House 06981121

Public fundraising profile: JustGiving — Association for Glycogen Storage Disease (UK) Ltd (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• STEPIEN, Karolina Maria, Dr — director, appointed 18/01/2026on trustee list
• REES, Kempton Metcalfe — director, appointed 15/01/2023on trustee list
• DAWSON, Charlotte, Dr — director, appointed 15/01/2023on trustee list
• OSBORNE, Florence Emilie, Dr — director, appointed 01/05/2021not on trustee list
• CHIKHANI, Sarah — director, appointed 22/07/2020on trustee list
• THOMAS, Rachel Sylvia Ann — director, appointed 22/07/2020on trustee list
• ARTHUR, Ailsa — director, appointed 29/10/2017on trustee list

Official officers record.

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

• Dr Florence Osbournechair
• Ailsa Arthur
• Dr Charlotte Dawson
• Dr Karolina Stepien
• Kempton Rees
• Rachel Thomas
• Sarah Chikhani

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with UK LYSOSOMAL STORAGE DISORDER COLLABORATIVE.

• UK LYSOSOMAL STORAGE DISORDER COLLABORATIVE income £40k
• GC FOUNDATION income £48k
• SARCOIDOSISUK income £185k
• THE GAUCHERS ASSOCIATION LIMITED income £85k
• GAINSBOROUGH AND DISTRICT WELFARE COMMUNITY ASSOCIATION LIMITED income £37k
• THE GLOUCESTERSHIRE ASSOCIATION FOR DISABILITY income £248k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.