UK LYSOSOMAL STORAGE DISORDER COLLABORATIVE
The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas.
Objects
(1) THE ONLY OBJECTS FOR WHICH THE CIO IS ESTABLISHED ARE: (A) TO PROMOTE HEALTH AND RELIEVE SICKNESS AND DISTRESS OF THOSE AFFECTED BY LYSOSOMAL STORAGE AND OTHER RARE DISORDERS AND THEIR FAMILIES AND CARERS, INCLUDING THROUGH THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THESE DISEASES; AND (B) TO PROMOTE THE EFFICIENCY AND EFFECTIVENESS OF CHARITIES AND THE EFFECTIVE USE OF CHARITABLE RESOURCES AMONGST CHARITIES ESTABLISHED TO PROMOTE HEALTH AND RELIEVE SICKNESS IN RELATION TO THESE DISEASES, IN EITHER CASE, AS THE TRUSTEES MAY DETERMINE, ANYWHERE IN THE UK AND/OR OVERSEAS(“THE OBJECTS”).
Financial health, per its FY2025 accounts
The accounts state that the charity reported total income of £49,487 and expenditure of £18,299, resulting in a net surplus of £31,188 for the year. Per the trustees' report, unrestricted reserves stood at £21,701 and restricted reserves at £9,487, with no stated reserves policy target provided for comparison. The trustees confirmed adequate resources for going concern, and the independent examiner reported no matters requiring attention.
What the accounts disclose
“Donations and legacies 3 40,000 9,487 49,487” — page 6
Policies the charity declares
- Complaints handling
- Conflicting interests
- Internal charity financial controls policy and procedures
- Risk management
- Safeguarding vulnerable beneficiaries
- Trustee expenses policy and procedures
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/12/2025
- Volunteers: 2
Trustees
- Toni Angela Mathiesonchair
- Allan David John Muir
- Robert Stevens
- TANYA LOUISE COLLIN-HISTED
- Valerie Ann Buxton
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £40k | £18k |
| 31/12/2024 | £0 | £0 |
| 31/12/2023 | £0 | £0 |
Common questions
Is UK LYSOSOMAL STORAGE DISORDER COLLABORATIVE financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported total income of £49,487 and expenditure of £18,299, resulting in a net surplus of £31,188 for the year. Per the trustees' report, unrestricted reserves stood at £21,701 and restricted reserves at £9,487, with no stated reserves policy target provided for comparison. The trustees confirmed adequate resources for going concern, and the independent examiner reported no matters requiring attention. Its FY2025 accounts were independently examined.
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| MOONDANCE FOUNDATION | 1 | £755k |
| MOTABILITY | 1 | £85k |
| THE BARBOUR FOUNDATION | 1 | £26k |
| WILLIAM ADLINGTON CADBURY CHARITABLE TRUST | 1 | £25k |
| THE LAWSON TRUST CIO | 1 | £20k |
| JOHN MARTIN'S CHARITY | 1 | £13k |
| THE WILLIAM ARTHUR RUDD MEMORIAL TRUST | 1 | £13k |
| THE HISCOX FOUNDATION | 1 | £11k |
Charities like this
- ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED
- CdLS Foundation UK & Ireland
- CDG UK
- SHWACHMAN DIAMOND SYNDROME UK
- LBD
- MLD UK
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| UK LYSOSOMAL STORAGE DISORDER COLLABORATIVE | £40k | — | 0 | unclear | — | no doubt |
| ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED | £174k | — | 0 | unclear | — | no doubt |
| CdLS Foundation UK & Ireland | £54k | — | 0 | above | — | no doubt |
| CDG UK | £30k | — | 0 | unclear | — | no doubt |
| SHWACHMAN DIAMOND SYNDROME UK | £57k | — | 0 | unclear | — | no doubt |
| LBD | £716k | — | 0 | unclear | — | no doubt |