SHWACHMAN DIAMOND SYNDROME UK

Registered charity 1164269 · accounts filings on the Charity Commission register · also known as SDSUK

To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity generated a net surplus of £30,981 for the year ended 31 October 2025, with total income of £56,700 against expenditure of £25,719. Per the trustees' report, unrestricted reserves stood at £126,944, while the charity retained £9,500 as a buffer against funding fluctuations. The trustees maintain modest reserves to ensure continuity of operations and cover essential costs for at least three months of activity.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — SDSUK (matched by registered charity number).

Public profiles (found on the charity’s own website): instagram

Trustees · trustee networks

• Andrew Oldingchair
• Kapil Gotecha
• Rebecca Cuffe

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions