SARCOIDOSISUK

Registered charity 1204750 · accounts filings on the Charity Commission register

We provide accurate and detailed information to people withsarcoidosis, their carers, healthcare professionals and anyone elsepersonally or professionally affected by sarcoidosis.We provide support to anyone affected by sarcoidosis inthe UK.We raise funds for research into medical research aimed at finding a cure.We aim to raise awareness of sarcoidosis through everything we do.

Objects

THE OBJECTS OF THE CIO ARE TO RELIEVE PEOPLE SUFFERING FROM SARCOIDOSIS AND TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL ASPECTS OF THIS CONDITION.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a deficit of £51,085, resulting in total reserves decreasing from £449,205 to £398,120. Per the trustees' report, the charity holds sufficient undesignated reserves to sustain over 12 months of operations, although fundraising is expected to remain challenging.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — SarcoidosisUK (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• British Lung Foundation — “This was also matched by the British Lung Foundation which makes a huge difference to a small charity.” (source page)

Register events

• Received assets from another charity (02/02/2026) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Susan Mary Wilsonchair
• Astrid Madimba
• Dr Dawn Mary Farrar
• Dr Roma Aileeen Armstrong
• John Richard Cordner
• Nicola Griffiths
• Paul Sinclare
• Richard Jean-Pierre Donald Etienne
• Sally Beare

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).