NARCOLEPSY UK
To provide relief and aid to those persons suffering from narcolepsy throughout the United Kingdom . We increase professional, political and public awareness and understanding of the needs of people with narcolepsy, their families and carers and deliver relevant sustainable services that satisfy the needs of people with narcolepsy and their families and those who care for them.
Objects
TO PROVIDE RELIEF AND AID TO THOSE SUFFERING FROM NARCOLEPSY
Financial health, per its FY2025 accounts
The accounts state that the charity held unrestricted funds of £26,069 at year-end, which is below its stated policy target of six months' operating costs. The charity reported an overall deficit for the year, resulting in a reduction of reserves from the prior year, though the trustees consider the going concern basis appropriate.
What the accounts disclose
“The Trustees’ policy is to maintain free reserves sufficient to cover approximately six months of operating costs where practical.” — page 5
Year-over-year changes
- Going concern: going-concern doubt noted (FY2024) → no going-concern doubt (FY2025).
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Register events
- Received assets from another charity (17/10/2012)
Trustees
- MATTHEW MICHAEL O'NEILLchair
- David Graham BROCKSOM
- Helen Strongman
- TIM JOSIAH KAVANAGH
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £50k | £70k |
| 31/12/2024 | £64k | £62k |
| 31/12/2023 | £51k | £63k |
| 31/12/2022 | £62k | £65k |
| 31/12/2021 | £63k | £60k |
Common questions
Is NARCOLEPSY UK financially healthy?
Per its FY2025 accounts: The accounts state that the charity held unrestricted funds of £26,069 at year-end, which is below its stated policy target of six months' operating costs. The charity reported an overall deficit for the year, resulting in a reduction of reserves from the prior year, though the trustees consider the going concern basis appropriate. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 30/08/2018 | £10k | The Charter Launch Conference |
| The National Lottery Community Fund | 27/07/2018 | £50k | Narcolepsy UK Development Plan and Pilot |
| The National Lottery Community Fund | 08/03/2017 | £10k | Narcolepsy Charter Consultation Project |
| The National Lottery Community Fund | 17/12/2014 | £5k | Network of local support meetings across Scotland for people isolated |
| The National Lottery Community Fund | 07/11/2014 | £5k | Network of local support meetings across Wales for families isolated b |
| The National Lottery Community Fund | 27/08/2014 | £7k | Network of local support meetings across England for families isolated |