NARCOLEPSY UK

Registered charity 1144342 · accounts filings on the Charity Commission register · also registered in Scotland as SC043576 (OSCR)

To provide relief and aid to those persons suffering from narcolepsy throughout the United Kingdom . We increase professional, political and public awareness and understanding of the needs of people with narcolepsy, their families and carers and deliver relevant sustainable services that satisfy the needs of people with narcolepsy and their families and those who care for them.

Objects

TO PROVIDE RELIEF AND AID TO THOSE SUFFERING FROM NARCOLEPSY

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£50k
Latest spending
£70k
Registered
2011
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted funds of £26,069 at year-end, which is below its stated policy target of six months' operating costs. The charity reported an overall deficit for the year, resulting in a reduction of reserves from the prior year, though the trustees consider the going concern basis appropriate.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: six months of operating costs (held: £26k)
“The Trustees’ policy is to maintain free reserves sufficient to cover approximately six months of operating costs where practical.” — page 5
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Year-over-year changes

Comparing this charity’s FY2024 and FY2025 accounts as analysed by this site.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Public fundraising profile: JustGiving — NARCOLEPSY UK (matched by registered charity number).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2025£50k£70k
31/12/2024£64k£62k
31/12/2023£51k£63k
31/12/2022£62k£65k
31/12/2021£63k£60k

Common questions

Is NARCOLEPSY UK financially healthy?

Per its FY2025 accounts: The accounts state that the charity held unrestricted funds of £26,069 at year-end, which is below its stated policy target of six months' operating costs. The charity reported an overall deficit for the year, resulting in a reduction of reserves from the prior year, though the trustees consider the going concern basis appropriate. Its FY2025 accounts were independently examined.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund30/08/2018£10kThe Charter Launch Conference
The National Lottery Community Fund27/07/2018£50kNarcolepsy UK Development Plan and Pilot
The National Lottery Community Fund08/03/2017£10kNarcolepsy Charter Consultation Project
The National Lottery Community Fund17/12/2014£5kNetwork of local support meetings across Scotland for people isolated
The National Lottery Community Fund07/11/2014£5kNetwork of local support meetings across Wales for families isolated b
The National Lottery Community Fund27/08/2014£7kNetwork of local support meetings across England for families isolated