PRIMARY CILIARY DYSKINESIA SUPPORT UK

Registered charity 1049931 · accounts filings on the Charity Commission register · also known as PCD FAMILY SUPPORT GROUP, PCD SUPPORT UK, PRIMARY CILIARY DYSKINESIA (PCD) FAMILY SUPPORT GROUP

1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

Objects

1) THE RELIEF OF PERSONS AFFECTED BY PRIMARY CILIARY DYSKINESIA AND ALLIED CONDITIONS. 2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH CONDITIONS PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Windsor and Maidenhead, South East, England (from the postcode on the register)

Latest income

£16k

Latest spending

£11k

Registered

1995

Accounts read

FY2024

Financial health, per its FY2024 accounts

The accounts state that free reserves stood at £107,912, which exceeds the trustees' stated policy target of approximately £15,000-£20,000. The charity reported a net increase in cash of £25,425 for the year, supported by increased fundraising income and investment returns.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: one year's expenditure, approximately £15,000-£20,000 (reserves figure: £108k)

“Our reserves policy is holding a minimum amount in reserve to fund one year's expenditure, which equates to approximately £15,000-£20,000 in a normal year.” — page 12

Per its FY2024 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Safeguarding policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 31/12/2025

Volunteers: 15

Self-declared on the annual return for the financial year ending 31/12/2024

Volunteers: 10

Self-declared on the annual return for the financial year ending 31/12/2023

Volunteers: 10
Government income: £6,000 — grants £6,000 (4); 29% of the £20,511 total gross income on the same return
Grant-making is its main activity

Source: this charity’s annual returns on the Charity Commission register.

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Katie Dexterchair
Abdullah Ihsan · trustee of 1 other charity
Gary Tipping
Myra Tipping

Trustee list from the Charity Commission register (current, not historical).

Operates in: Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2025	£16k	£11k
31/12/2024	£66k	£41k
31/12/2023	£21k	£51k
31/12/2022	£37k	£25k
31/12/2021	£55k	£17k

Common questions

Is PRIMARY CILIARY DYSKINESIA SUPPORT UK financially healthy?

Per its FY2024 accounts: The accounts state that free reserves stood at £107,912, which exceeds the trustees' stated policy target of approximately £15,000-£20,000. The charity reported a net increase in cash of £25,425 for the year, supported by increased fundraising income and investment returns. Its FY2024 accounts were independently examined.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
UK government	23/09/2020	£10k	Coronavirus Community Support Fund

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
MIND (THE NATIONAL ASSOCIATION FOR MENTAL HEALTH)	1	£292k
THE MELETE FOUNDATION	1	£10k
THE ALLEN LANE FOUNDATION	1	£5k
THE BRITFORD BRIDGE TRUST	1	£5k
THE LAWSON TRUST CIO	1	£5k
THE HISCOX FOUNDATION	1	£1k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with PCD RESEARCH.

PCD RESEARCH income £73k
Paediatric Critical Care Society income £212k
PRIMARY CARE DIABETES SOCIETY income £169k
PSC SUPPORT income £558k
CURE DHDDS income £131k
THE PERNICIOUS ANAEMIA SOCIETY income £58k

Side by side with its peers

Charity	Income	Top pay band	Reserves vs policy	Fundraising cost	Going concern
PRIMARY CILIARY DYSKINESIA SUPPORT UK	£16k	—	unclear	—	no doubt
PCD RESEARCH FY2026	£73k	—	unclear	—	no doubt
Paediatric Critical Care Society FY2025	£212k	—	above	—	no doubt
PRIMARY CARE DIABETES SOCIETY FY2025	£169k	—	unclear	—	no doubt
PSC SUPPORT FY2025	£558k	—	below	—	no doubt
CURE DHDDS FY2025	£131k	—	unclear	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.