CYSTIC FIBROSIS CARE
We exist to improve the quality of life for those with Cystic Fibrosis through nationwide fundraising.We provide grants to enable:Emotional Support.Provide food and energy vouchers.Fund hospital travel costs.Provide vital medical and exercise equipment.Fund education and vocational fees for CF adults. Training fees for CF nurses. See us @cf_care and www.cysticfibrosiscare.org.uk
Objects
FOR THE PUBLIC BENEFIT THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH OF SUFFERERS OF CYSTIC FIBROSIS AND THEIR FAMILIES BY PROVIDING:- FACE-TO-FACE, CONFIDENTIAL SERVICES THAT INCLUDE:- EMOTIONAL SUPPORT AND COUNSELLING AT TIMES OF ACUTE STRESS OR DISTRESS;- PRACTICAL HELP THAT INCLUDES ASSISTANCE WITH OFFICIAL FORMS AND HELP TO NEGOTIATE SOMETIMES COMPLEX PROCESSES AND OFFICIAL SYSTEMS;- ADVOCACY AND REPRESENTATION IN RELATION TO HOUSING, EDUCATION, EMPLOYMENT AND AT DISABILITY APPEALS TRIBUNALS;- FINANCIAL ASSISTANCE FOR ESSENTIAL ITEMS THAT ENABLE OPTIMUM HOME SUPPORT OR RESPITE BREAKS;- TRANSPORT TO HOSPITAL APPOINTMENTS;- BEFRIENDING AND MENTORING FOR YOUNG PEOPLE WITH CYSTIC FIBROSIS;- AND MASSAGE THERAPY IN HOSPITAL FOR ADULTS WITH CYSTIC FIBROSIS.
Financial health, per its FY2025 accounts
The charity reports unrestricted reserves of £516,382, an increase from the previous year's £426,078, while total income rose to £330,816. The trustees state there are no material uncertainties regarding the charity's ability to continue as a going concern. The organization relies on donations, legacies, and trading activities to fund its charitable activities and grants.
What the accounts disclose
“Income from events 210,646” — page 12
“The Charity retains the unrestricted reserve to provide sufficient resources to enable the Charity to fund its activities. The level of reserves is monitored and regularly reviewed by the Trustees.” — page 6
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/12/2025
- Volunteers: 10
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 30/11/2024
- Volunteers: 10
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 30/11/2023
- Volunteers: 6
- Grant-making is its main activity
Trustees
- Christy Yorkchair
- CATHERINE JEAN SUNLEY
- MARTYN ROSE
- Sasha York
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £269k | £179k |
| 30/11/2024 | £230k | £203k |
| 30/11/2023 | £177k | £144k |
| 30/11/2022 | £121k | £78k |
| 30/11/2021 | £165k | £50k |
Common questions
Is CYSTIC FIBROSIS CARE financially healthy?
Per its FY2025 accounts: The charity reports unrestricted reserves of £516,382, an increase from the previous year's £426,078, while total income rose to £330,816. The trustees state there are no material uncertainties regarding the charity's ability to continue as a going concern. The organization relies on donations, legacies, and trading activities to fund its charitable activities and grants. Its FY2025 accounts were independently examined.
Who funds CYSTIC FIBROSIS CARE?
Funders whose own accounts filings name CYSTIC FIBROSIS CARE as a grant recipient include THE PIERREPONT TRUST, THE ADRIAN SWIRE CHARITABLE TRUST, THE SCS TRUST, MRS WATERHOUSE CHARITABLE TRUST, THE LIZ AND TERRY BRAMALL FOUNDATION.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE PIERREPONT TRUST | FY2021 | £10k | |
| THE PIERREPONT TRUST | FY2025 | £10k | |
| THE PIERREPONT TRUST | FY2024 | £10k | |
| THE ADRIAN SWIRE CHARITABLE TRUST | FY2023 | £10k | |
| THE PIERREPONT TRUST | FY2023 | £10k | |
| THE ADRIAN SWIRE CHARITABLE TRUST | FY2022 | £10k | |
| THE PIERREPONT TRUST | FY2022 | £10k | |
| THE SCS TRUST | FY2025 | £10k | |
| MRS WATERHOUSE CHARITABLE TRUST | FY2026 | £8k | |
| THE LIZ AND TERRY BRAMALL FOUNDATION | FY2025 | £5k | |
| THE EARL FITZWILLIAM CHARITABLE TRUST | FY2024 | £5k | |
| THE WILLIAM ALLEN YOUNG CHARITABLE TRUST | FY2025 | £3k | |
| THE JACK BRUNTON CHARITABLE TRUST | FY2025 | £3k | |
| LORD BARNBY'S FOUNDATION | FY2025 | £3k | |
| THE TONY BRAMALL CHARITABLE TRUST | FY2026 | £3k | |
| THE TONY BRAMALL CHARITABLE TRUST | FY2024 | £2k | |
| THE WO STREET CHARITABLE FOUNDATION | FY2024 | £2k | |
| THE MICHAEL MARSH CHARITABLE TRUST | FY2026 | £2k | People with Disability |
| JOHN SWIRE 1989 CHARITABLE TRUST | FY2023 | £1k | |
| THE RAINFORD TRUST | FY2023 | £1k |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 29/06/2023 | £9k | Communications and Marketing Coordinator |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| JOSEPH LEVY FOUNDATION | 1 | £379k |
| ROBERT LUFF FOUNDATION LIMITED | 1 | £185k |
| ROSETREES | 1 | £128k |
| THE STONEYGATE TRUST | 1 | £54k |
| PRISM THE GIFT FUND | 1 | £50k |
| THE CAROLE AND GEOFFREY LAWSON FOUNDATION | 1 | £35k |
| THE JAMES TUDOR FOUNDATION | 1 | £30k |
| SIR SAMUEL SCOTT OF YEWS TRUST | 1 | £30k |
Charities like this
- CYSTIC FIBROSIS TRUST
- CYSTIC FIBROSIS COMFORT FUND
- HEARTLANDS CYSTIC FIBROSIS CENTRE
- CYSTINOSIS FOUNDATION OF THE UK
- Cysters
- CANCER CARE TRUST
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| CYSTIC FIBROSIS CARE | £269k | — | 0 | above | — | no doubt |
| CYSTIC FIBROSIS TRUST | £12.0m | — | — | above | — | no doubt |
| CYSTIC FIBROSIS COMFORT FUND | £70k | — | 0 | unclear | — | no doubt |
| HEARTLANDS CYSTIC FIBROSIS CENTRE | £30k | — | 0 | unclear | — | no doubt |
| CYSTINOSIS FOUNDATION OF THE UK | £34k | — | 0 | unclear | — | no doubt |
| Cysters | £74k | — | — | unclear | — | noted |