MYELOPATHY.ORG

Registered charity 1178673 · accounts filings on the Charity Commission register

Supporting and funding scientific research into all aspects of myelopathy and ensuring the useful results are publicly disseminated.Raising awareness and understanding of myelopathy.Supporting and promoting improved physical and mental outcomes for patients and supporting patients, carers and healthcare professionals.

Objects

TO ADVANCE HEALTH AND EDUCATION IN ALL ASPECTS OF MYELOPATHY IN PARTICULAR BUT NOT EXCLUSIVELY BY:1. SUPPORTING AND FUNDING SCIENTIFIC RESEARCH INTO ALL ASPECTS OF MYELOPATHY AND ENSURING THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLICLY DISSEMINATED;2. RAISING AWARENESS AND UNDERSTANDING OF THE CONDITION IN ALL ITS FORMS INCLUDING SHARING CURRENT RESEARCH AND HEALTHCARE INFORMATION;3. SUPPORTING AND PROMOTING IMPROVED PHYSICAL AND MENTAL OUTCOMES FOR PATIENTS INCLUDING ESTABLISHING SUPPORTING FOR PATIENTS, CARERS AND HEALTH PROFESSIONALS

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: South Cambridgeshire, East of England, England (from the postcode on the register)

Latest income

£93k

Latest spending

£92k

Registered

2018

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that unrestricted funds increased from £37,305 to £38,418 during the year, supported by total income of £93,075. The trustees report that the charity has adequate resources to continue in operational existence and note that a reserve fund is not currently required due to minimal annual liabilities. No material uncertainties or risks to going concern were identified in the filing.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: not required (reserves figure: £38k)

“At present Myelopathy.org has minimal annual liabilities. Consequently, and based on the limited annual income, it is felt that a reserve fund is not required nor possible at this time.” — page 9

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Internal charity financial controls policy and procedures
Safeguarding policy and procedures
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 30/06/2025

Volunteers: 12

Self-declared on the annual return for the financial year ending 30/06/2024

Volunteers: 15

Self-declared on the annual return for the financial year ending 30/06/2023

Volunteers: 15

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Myelopathy.org (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Dr Aditya Vedantam
Dr Benjamin Davies
Dr MARK KOTTER
Dr Rory Murphy
Esther Martin-Moore
Iwan Lloyd Sadler
Mary Sheila Dugan
Steven Czick

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales · United States

Income and spending

Financial year end	Income	Spending
30/06/2025	£93k	£92k
30/06/2024	£75k	£75k
30/06/2023	£79k	£97k
30/06/2022	£82k	£82k
30/06/2021	£123k	£75k

Common questions

Is MYELOPATHY.ORG financially healthy?

Per its FY2025 accounts: The accounts state that unrestricted funds increased from £37,305 to £38,418 during the year, supported by total income of £93,075. The trustees report that the charity has adequate resources to continue in operational existence and note that a reserve fund is not currently required due to minimal annual liabilities. No material uncertainties or risks to going concern were identified in the filing. Its FY2025 accounts were independently examined.

Who funds MYELOPATHY.ORG?

Funders whose own accounts filings name MYELOPATHY.ORG as a grant recipient include THE EVELYN TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
THE EVELYN TRUST	FY2022	£120k	Developing minimum standards for patient education in Degenerative Cervical Myelopathy
THE EVELYN TRUST	FY2023	£62k	Developing minimum standards for patient education in Degenerative Cervical Myelopathy

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	22/04/2024	£50k	Myelopathy.org Helpline
The National Lottery Community Fund	14/10/2022	£10k	Living with Myelopathy: Financial Advice Service
The National Lottery Community Fund	19/03/2021	£10k	Facing Myelopathy Together

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
Bird Song Trust	1	£203k
THE BATCHWORTH TRUST	1	£5k
THE TANLAW FOUNDATION	1	£3k
THE MCBAIN FAMILY FOUNDATION	1	£2k
THE ASTOR FOUNDATION	1	£2k
THE OAKDALE TRUST	1	£2k
THE BARBOUR FOUNDATION	1	£1k
THE MICHAEL AND ANNA WIX CHARITABLE TRUST	1	£200

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with The UK Myeloma Society.

The UK Myeloma Society income £190k
MYOSITIS UK income £140k
MS COMMUNITY ACTION & SUPPORT income £14k
MEDICAL RESEARCH FOUNDATION income £3.7m
THE M O G CHARITABLE TRUST income £54k
MEDICAL SCREENING SOCIETY income £32k

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
MYELOPATHY.ORG	£93k	—	0	above	—	no doubt
The UK Myeloma Society FY2025	£190k	—	0	above	—	no doubt
MYOSITIS UK FY2025	£140k	—	0	unclear	—	no doubt
MS COMMUNITY ACTION & SUPPORT FY2024	£14k	—	0	below	—	no doubt
MEDICAL RESEARCH FOUNDATION FY2025	£3.7m	—	—	unclear	—	no doubt
THE M O G CHARITABLE TRUST FY2025	£54k	—	0	unclear	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.