TIMOTHY SYNDROME ALLIANCE (TSA)
Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.
Financial health, per its FY2025 accounts
The accounts state that total income for the year was £205,304, with the majority being restricted funding. Free reserves stood at £8,150, which is below the charity's stated policy target of £9,000 to £10,000. The trustees consider the charity to be a going concern with adequate resources for the foreseeable future.
What the accounts disclose
“Charitable activities 76.4%” — page 25
“We aim to hold a general reserve, estimated to be in the range £9,000 - £10,000, to cover operating costs for a 3 to 6 month period.” — page 28
Funders the charity credits
- Chan Zuckerberg Initiative
Trustees
- SOPHIE MUIRchair
- Achsah James
- Dr Christine Ziegler
- Galina Gardiner
- Gemma Duncan
- Glenn Miller
- Meg McLaughlin
- Nicholas Muir
- Susan Bresnahan
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 30/11/2025 | £205k | £129k |
| 30/11/2024 | £94k | £20k |
| 30/11/2023 | £21k | £12k |
| 30/11/2022 | £10k | £5k |
| 30/11/2021 | £6k | £3k |
Common questions
Is TIMOTHY SYNDROME ALLIANCE (TSA) financially healthy?
Per its FY2025 accounts: The accounts state that total income for the year was £205,304, with the majority being restricted funding. Free reserves stood at £8,150, which is below the charity's stated policy target of £9,000 to £10,000. The trustees consider the charity to be a going concern with adequate resources for the foreseeable future. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| Postcode Lottery | 30/06/2023 | £10k | Project Funding |