TURNER SYNDROME SUPPORT SOCIETY

Registered charity 1080507 · accounts filings on the Charity Commission register · also known as TSSS, TUNER SYNDROME SUPPORT SOCIETY, UK TURNER SYNDROME SOCIETY

The TSSS is a national charity caring for the needs of those with Turner Syndrome [TS] throughout the UK. The Society offers support, advice, and information to both girls and adult women with TS, their families, and friends. The Society enjoys a good relationship with relevant specialists to promote a good basis for education and understanding of the management of Turner Syndrome.

Objects

SUPPORT AND RELIEVE ALL PERSONS (EITHER CHILDREN OR ADULTS) AFFECTED BY TURNER SYNDROME AND THEIR FAMILIES IN ANY MANNER WHICH IS CHARITABLE IN ACCORDANCE WITH THE LAW OF THE UNITED KINGDOM; PROMOTE AND FUND RESEARCH INTO THE CAUSES OF TURNER SYNDROME AND TREATMENT OF ITS EFFECTS IN CHILDREN AND ADULTS WITHIN THE AREA OF BENEFIT AND TO PUBLISH THE RESULTS OF SUCH RESEARCH; EDUCATE THE PUBLIC IN GENERAL AND WORKERS IN THE MEDICAL PROFESSION IN PARTICULAR IN THE PROBLEMS AND DIFFICULTIES ENCOUNTERED BY THOSE WITH TURNER SYNDROME

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity achieved a surplus of £19,249.71 for the year ended 31 March 2025, with total receipts of £219,939.41 against payments of £200,689.70. The Treasurer's report notes that there is no guarantee of future income and the charity is mindful of this when planning, while also noting that grants have never been a significant income stream. The independent examiner confirmed that no matters came to their attention that would prevent a proper understanding of the accounts.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Investment
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — Turner Syndrome Support Society (matched by registered charity number).

Trustees · trustee networks

• SUSAN WALLchair
• Ella May Phillips -Ansell MAAT
• KERRY BRUERTON
• SIMON HOLDEN
• STEPHEN WALL
• Samantha Jane Cubitt

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE TUBEROUS SCLEROSIS ASSOCIATION.

• THE TUBEROUS SCLEROSIS ASSOCIATION income £478k
• DOWN'S SYNDROME ASSOCIATION income £2.7m
• UNITED KINGDOM THALASSAEMIA SOCIETY income £173k
• T.E.E.S (TOGETHER ENGAGE ENCOURAGE SUPPORT) income £212k
• TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION income £599k
• DOWN SYNDROME TRAINING AND SUPPORT SERVICE LIMITED income £236k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.