UNITED KINGDOM THALASSAEMIA SOCIETY
The United Kingdom Thalassaemia Society (UKTS) is actively involved in various activities to support individuals affected by thalassaemia. Some of the main activities are outreach, research, publications, literature and patient and family support. The team also represents members on national boards.
Objects
THE RELIEF OF PERSONS SUFFERING FROM THALASSAEMIA AND RELATED OR SIMILAR DISORDERS AND ADVANCING THE EDUCATION OF THE PUBLIC, INCLUDING MEDICAL PRACTITIONERS, IN ALL ASPECTS OF THALASSAEMIA AND RELATED OR SIMILAR DISORDERS IN PARTICULAR BY PROMOTING AND COORDINATING RESEARCH INTO ITS CAUSES, TREATMENT, PREVENTION, AND PERMANENT CURE, AND BY DISSEMINATING THE USEFUL RESULTS OF SUCH RESEARCH.
Financial health, per its FY2024 accounts
The accounts state that total income decreased to £172,603 from £200,128 in the prior year, while total expenditure on charitable activities and fundraising remained relatively stable. The charity maintains unrestricted reserves of £1,428,921, which the trustees consider adequate to meet their policy target of six to nine months' expenditure, ensuring long-term viability.
What the accounts disclose
“It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between six and nine month's expenditures.” — page 10
Policies the charity declares
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Property (HM Land Registry)
Trustees
- Gulcan Birdane
- Helen Chandler
- Helen Louca
- Odysoulla Stavrou- Cooper
- Zehra Djelal Gokturk
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2024 | £173k | £201k |
Common questions
Is UNITED KINGDOM THALASSAEMIA SOCIETY financially healthy?
Per its FY2024 accounts: The accounts state that total income decreased to £172,603 from £200,128 in the prior year, while total expenditure on charitable activities and fundraising remained relatively stable. The charity maintains unrestricted reserves of £1,428,921, which the trustees consider adequate to meet their policy target of six to nine months' expenditure, ensuring long-term viability. Its FY2024 accounts were audited by Azets Audit Services.
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE JOHN HEMINGWAY CHARITABLE TRUST | 1 | £10k |
| THE ADINT CHARITABLE TRUST | 1 | £5k |
| THE EDWARD CADBURY CHARITABLE TRUST | 1 | £3k |
| MISS E F RATHBONE CHARITABLE TRUST | 1 | £3k |
| MATTHEW GOOD FOUNDATION | 1 | £2k |
| THE RAINFORD TRUST | 1 | £1k |
| CHAPMAN CHARITABLE TRUST | 1 | £1k |
| THE ASTOR FOUNDATION | 1 | £1k |
Charities like this
- BRITISH SOCIETY OF BLOOD AND MARROW TRANSPLANTATION AND CELLULAR THERAPY
- The UK Myeloma Society
- THE HAEMOPHILIA SOCIETY
- THROMBOSIS UK
- THE BRITISH SOCIETY FOR HAEMATOLOGY
- THE BRITISH THORACIC SOCIETY
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| UNITED KINGDOM THALASSAEMIA SOCIETY | £173k | — | 0 | unclear | — | no doubt |
| BRITISH SOCIETY OF BLOOD AND MARROW TRANSPLANTATION AND CELLULAR THERAPY | £638k | — | 0 | unclear | — | no doubt |
| The UK Myeloma Society | £190k | — | 0 | above | — | no doubt |
| THE HAEMOPHILIA SOCIETY | £590k | — | — | unclear | — | no doubt |
| THROMBOSIS UK | £293k | — | 0 | unclear | — | no doubt |
| THE BRITISH SOCIETY FOR HAEMATOLOGY | £3.3m | £80,001 - £90,000 | 1 | above | 0.0% | no doubt |