THE TUBEROUS SCLEROSIS ASSOCIATION
Registered charity 1039549 · accounts filings on the Charity Commission register · also known as TSA · also registered in Scotland as SC042780 (OSCR)
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that the charity reported a surplus of £20,990 for the year ended 31 December 2025, driven by investment gains despite a drop in total income. The trustees anticipate several years of managed deficits in the coming years as they navigate a challenging fundraising environment while investing in major projects. Non-designated reserves stood at £305,684, which the trustees note slightly exceeds their target of approximately £270,000 (six months of operational costs).
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Fundraising cost ratio: 44.2% of fundraised income, as disclosed
“This is down from 2024, which was closer to a 1:5 ratio. We believe this drop is because of a significant reduction in legacy income, which is hard to predict.”
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: six months of reserves (held: £306k)
“The TSA Board of Trustees has agreed to hold up to the equivalent of six months of reserves in non-designated funds, which is around £270,000.” — page 31
Per its FY2025 accounts as filed with the Charity Commission.
Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.
Public fundraising profile: JustGiving — Tuberous Sclerosis Association (matched by registered charity number).
Public profiles (found on the charity’s own website): facebook
Structured financials (annual return, FY ending 31/12/2024)
Cost of raising funds
£154k
Reported reserves equal ~18.4 months of spending — above the median for charities its size (median 7.0 months; benchmarks).
Per its annual return, largest income source: Donations and legacies (95% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.
Per its annual return, cost of raising funds: 23.4% of total income — in the top quarter for charities its size (median 2.9%) (benchmarks).
- Dr Frances Elmsliechair
- Annemarie Cotton
- DR CHRIS KINGSWOOD
- Jane Rogers · trustee of 1 other charity
- Sanjay Sethi
- Simon John James · trustee of 1 other charity
- Stacey Louise Rose
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England And Wales
Income and spending
Common questions
Is THE TUBEROUS SCLEROSIS ASSOCIATION financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a surplus of £20,990 for the year ended 31 December 2025, driven by investment gains despite a drop in total income. The trustees anticipate several years of managed deficits in the coming years as they navigate a challenging fundraising environment while investing in major projects. Non-designated reserves stood at £305,684, which the trustees note slightly exceeds their target of approximately £270,000 (six months of operational costs). Its FY2025 accounts were independently examined.
Who funds THE TUBEROUS SCLEROSIS ASSOCIATION?
Funders whose own accounts filings name THE TUBEROUS SCLEROSIS ASSOCIATION as a grant recipient include THE VTCT FOUNDATION, THE STEVEN BLOCH IMAGE OF DISABILITY CHARITABLE TRUST, THE REED FOUNDATION, THE GOSLING FOUNDATION LIMITED, THE HOBSON CHARITY LIMITED.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with TIMOTHY SYNDROME ALLIANCE (TSA).
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.