GENETIC ALLIANCE UK LTD
Registered charity 1114195 · accounts filings on the Charity Commission register · also known as GENETIC INTEREST GROUP, GENETIC INTEREST GROUP LIMITED, RARE DISEASE UK, RDUK, SWAN UK · also registered in Scotland as SC039299 (OSCR)
Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.
Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that the charity achieved a surplus of £180,837 for the year ended 31 March 2025, reversing a deficit from the prior year. Per the Treasurer's review, unrestricted reserves increased to £190,305, meeting the Trustees' target of holding approximately six months of unrestricted expenditure. The Trustees confirm that adequate liquid resources are available to fund activities for the next 12 months.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Fundraising cost ratio: 12.0% of fundraised income, as disclosed
“raising funds at 12% (13%), which means 88% (87%) of our spending is on charitable activities.”
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: approximately six months of unrestricted expenditure (held: £190k)
“This meets the Trustees’ target to hold unrestricted reserves that equate to approximately six months of unrestricted expenditure.”
Per its FY2025 accounts as filed with the Charity Commission.
Accounts audited by Nyman Libson Paul Chartered Accountants. Discloses 4 of 6 completeness components.
Public fundraising profile: JustGiving — Genetic Alliance UK (matched by registered charity number).
Funders the charity credits
Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).
- Amicus / BioMarin — “Support received during 2026
Amicus / BioMarin
Rare Disease UK 2026/27: £15,750” (source page)
- Alexion — “Support received during 2025
Alexion
Rare Disease UK 2025/26: £15,000
Rare Disease Day 2026: £10,000” (source page)
Public profiles (found on the charity’s own website): facebook · instagram
Structured financials (annual return, FY ending 31/03/2025)
Cost of raising funds
£82k
Reported reserves equal ~3.2 months of spending — below the median for charities its size (median 5.2 months; benchmarks).
Per its annual return, largest income source: Donations and legacies (77% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.
Per its annual return, cost of raising funds: 9.2% of total income — above the median for charities its size (4.9%) (benchmarks).
Register events
- Received assets from another charity (05/06/2026) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Received assets from another charity (05/06/2026) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Elizabeth Porterfieldchair
- Dr Michael Winter FRCGP
- Dr Shehla Nilofer Mohammed
- Emily Merrell
- GLORIA JANE CLARK · trustee of 2 other charities
- Gregor Stevenson
- Professor Lara Bloom
- Rebecca Middleton · trustee of 1 other charity
- SARA JOHANNE HUNT
- Susan Jane Millman · trustee of 2 other charities
- Timothy Kamombo
- Toby William Hannam
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England And Wales
Income and spending
Common questions
Is GENETIC ALLIANCE UK LTD financially healthy?
Per its FY2025 accounts: The accounts state that the charity achieved a surplus of £180,837 for the year ended 31 March 2025, reversing a deficit from the prior year. Per the Treasurer's review, unrestricted reserves increased to £190,305, meeting the Trustees' target of holding approximately six months of unrestricted expenditure. The Trustees confirm that adequate liquid resources are available to fund activities for the next 12 months. Its FY2025 accounts were audited by Nyman Libson Paul Chartered Accountants.
Who funds GENETIC ALLIANCE UK LTD?
Funders whose own accounts filings name GENETIC ALLIANCE UK LTD as a grant recipient include THE D'OYLY CARTE CHARITABLE TRUST, THE CATHERINE COOKSON CHARITABLE TRUST, THE ASTOR FOUNDATION, THE BARBOUR FOUNDATION, THE OAKDALE TRUST.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with THE NEUROLOGICAL ALLIANCE.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.