RETT UK
Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.
Financial health, per its FY2025 accounts
The accounts state that Rett UK operated at a significant loss of £75,542 for the year ended 31 March 2025, resulting in a decrease in total funds from £195,867 to £120,325. The Chair's report notes that the charity is entering 'choppier financial waters' and that additional funding or cost savings will be required in the coming year to address the deficit. Despite the loss, the charity maintains a cash balance of £123,427 and states it has adequate resources to continue as a going concern.
What the accounts disclose
“At 31 March 2024 reserves are higher than our policy as funds from additional fundraising are being held to pay for national Family Weekend in 2024.”
“E J Le-Warde, a Trustee, is the son of a member of staff.” — page 26
Register events
- Received assets from another charity (19/04/2017)
- Received assets from another charity (03/05/2011)
Trustees
- Clive Richard Beadle
- David Alfred Rogerson
- Debbie Cavaldoro
- Dee Cowburn
- Elliott James Le-Warde
- Joanna Campobello
- MICHAEL FREDERICK BRITTEN
- Mary Forest
- PHILIP RONALD GANDER
- Pauline Sophia Bardon
- Stuart Neil Ledger
- Thomas Gander
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £341k | £417k |
| 31/03/2024 | £306k | £319k |
| 31/03/2023 | £365k | £354k |
| 31/03/2022 | £320k | £311k |
| 31/03/2021 | £348k | £278k |
Common questions
Is RETT UK financially healthy?
Per its FY2025 accounts: The accounts state that Rett UK operated at a significant loss of £75,542 for the year ended 31 March 2025, resulting in a decrease in total funds from £195,867 to £120,325. The Chair's report notes that the charity is entering 'choppier financial waters' and that additional funding or cost savings will be required in the coming year to address the deficit. Despite the loss, the charity maintains a cash balance of £123,427 and states it has adequate resources to continue as a going concern. Its FY2025 accounts were independently examined.
Who funds RETT UK?
Funders whose own accounts filings name RETT UK as a grant recipient include THE HARGREAVES FOUNDATION, THE SIR JAMES ROLL CHARITABLE TRUST, THE REED FOUNDATION.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE HARGREAVES FOUNDATION | FY2022 | £10k | |
| THE SIR JAMES ROLL CHARITABLE TRUST | FY2025 | £1k | |
| THE REED FOUNDATION | FY2021 | — |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 15/03/2024 | £20k | Discover; Connect and Thrive! |
| The National Lottery Community Fund | 19/03/2021 | £10k | Education Health and Care Plans Support & Advocacy |
| The National Lottery Community Fund | 06/08/2014 | £10k | Rett UK's 30th Birthday Family Support & Celebration Weekend |