THE ATAXIA-TELANGIECTASIA SOCIETY

Registered charity 1105528 · accounts filings on the Charity Commission register · also known as THE A-T SOCIETY

Ataxia Telangiectasia (AT) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The AT Society is dedicated to improving quality of life and quality of care for people living with AT while actively promoting research to lengthen lives and ultimately bring about a cure.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · Arts/culture/heritage/science · Grant history (this charity is a funder) · website · Get email alerts

Latest income
£657k
Latest spending
£572k
Registered
2004
Accounts read
FY2024

Financial health, per its FY2024 accounts

The accounts state that the charity achieved an overall surplus of £85,583 for the year ended 31 December 2024, with total income increasing to £657,491. Per the trustees' report, unrestricted reserves were maintained at £404,744, representing 8.5 months of operational costs, which is below the stated prudent target of 9 months but above the temporary low of 7 months. The trustees confirm that resources are adequate to face the future with confidence.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Donations and legacies (40% of income)
“Of the Society's total income some 42% was received in donations and legacies from individuals, and donations from companies and trusts”
Per its FY2024 accounts as filed with the Charity Commission.
Reserves position: below the charity's own stated reserves policy (held: £405k; policy: 9 months of operational costs)
“By the end of 2024 the Society built this back up to having unrestricted reserves of 8.5 months.”
Per its FY2024 accounts as filed with the Charity Commission.

Accounts audited by Hicks and Company. Discloses 5 of 6 completeness components.

Corporate structure

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

Official officers record.

Structured financials (annual return, FY ending 31/12/2024)

Total income
£657k
Total spending
£572k
Cost of raising funds
£145k
Reserves (reported)
£405k
Employees
9

Reported reserves equal ~8.5 months of spending — above the median for charities its size (median 5.2 months; benchmarks).

Per its annual return, cost of raising funds: 22.1% of total income — in the top quarter for charities its size (median 4.9%) (benchmarks).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2024£657k£572k
31/12/2023£478k£663k
31/12/2022£429k£481k
31/12/2021£368k£501k
31/12/2020£321k£506k

Common questions

Is THE ATAXIA-TELANGIECTASIA SOCIETY financially healthy?

Per its FY2024 accounts: The accounts state that the charity achieved an overall surplus of £85,583 for the year ended 31 December 2024, with total income increasing to £657,491. Per the trustees' report, unrestricted reserves were maintained at £404,744, representing 8.5 months of operational costs, which is below the stated prudent target of 9 months but above the temporary low of 7 months. The trustees confirm that resources are adequate to face the future with confidence. Its FY2024 accounts were audited by Hicks and Company.

Who funds THE ATAXIA-TELANGIECTASIA SOCIETY?

Funders whose own accounts filings name THE ATAXIA-TELANGIECTASIA SOCIETY as a grant recipient include SANDRA CHARITABLE TRUST, THE PIERREPONT TRUST, THE VALIANT CHARITABLE TRUST, ROBERT LUFF FOUNDATION LIMITED, DUDLEY AND GEOFFREY COX CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
SANDRA CHARITABLE TRUSTFY2023£30k
THE PIERREPONT TRUSTFY2025£10k
THE PIERREPONT TRUSTFY2022£10k
THE VALIANT CHARITABLE TRUSTFY2023£10ksupporting children and young adults living with ataxia telangiectasia
ROBERT LUFF FOUNDATION LIMITEDFY2024£10k
THE VALIANT CHARITABLE TRUSTFY2024£10ksupport those individuals with the disabling condition ataxia-telangiectasia
ROBERT LUFF FOUNDATION LIMITEDFY2025£10k
THE PIERREPONT TRUSTFY2024£10k
DUDLEY AND GEOFFREY COX CHARITABLE TRUSTFY2025£9kMedical
DUDLEY AND GEOFFREY COX CHARITABLE TRUSTFY2023£7kMedical
DUDLEY AND GEOFFREY COX CHARITABLE TRUSTFY2022£5kMedical
SANDRA CHARITABLE TRUSTFY2024£3kGrant paid or payable
SANDRA CHARITABLE TRUSTFY2022£3k
THE HEMBY CHARITABLE TRUSTFY2026£3k
THE PARIVAR TRUSTFY2024£2k
THE HEMBY CHARITABLE TRUSTFY2025£2k
THE HEMBY CHARITABLE TRUSTFY2024£2k
THE SIR JAMES ROLL CHARITABLE TRUSTFY2023£2k
SANDRA CHARITABLE TRUSTFY2025£1k
THE PARIVAR TRUSTFY2025£1k
THE ISABEL BLACKMAN FOUNDATIONFY2026£1kHealth
THE MICHAEL AND ANNA WIX CHARITABLE TRUSTFY2026£200
THE PIERREPONT TRUSTFY2023£0
THE DAVID FAMILY FOUNDATIONFY2022£0
DUDLEY AND GEOFFREY COX CHARITABLE TRUSTFY2024£0Medical

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund15/06/2026£20kIncreasing Access to Bespoke Family Support Services for people affected by AT.
The National Lottery Community Fund04/02/2025£20kBuilding Connections & Support to Improve the Wellbeing of People affected by AT
The National Lottery Community Fund13/05/2022£10kImproving mental well-being of children suffering from AT during/post pandemic
UK government27/07/2020£10kCoronavirus Community Support Fund

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with ACTION FOR A-T.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
THE ATAXIA-TELANGIECTASIA SOCIETY£657k—0below—no doubt
ACTION FOR A-T FY2025£905k——unclear—no doubt
ATAXIA UK FY2025£1.8m—0unclear—no doubt
THE APLASTIC ANAEMIA TRUST FY2025£647k——above—no doubt
THE TUBEROUS SCLEROSIS ASSOCIATION FY2025£478k—0unclear44.2%no doubt
MULTIPLE SYSTEM ATROPHY TRUST FY2025£1.3m—0above—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.