THE ATAXIA-TELANGIECTASIA SOCIETY
Ataxia Telangiectasia (AT) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The AT Society is dedicated to improving quality of life and quality of care for people living with AT while actively promoting research to lengthen lives and ultimately bring about a cure.
Financial health, per its FY2024 accounts
The accounts state that the charity achieved an overall surplus of £85,583 for the year ended 31 December 2024, with total income increasing to £657,491. Per the trustees' report, unrestricted reserves were maintained at £404,744, representing 8.5 months of operational costs, which is below the stated prudent target of 9 months but above the temporary low of 7 months. The trustees confirm that resources are adequate to face the future with confidence.
What the accounts disclose
“Of the Society's total income some 42% was received in donations and legacies from individuals, and donations from companies and trusts”
“By the end of 2024 the Society built this back up to having unrestricted reserves of 8.5 months.”
Corporate structure
- Registered company of the charity Companies House 05177145
Company officers (Companies House)
- BHATT, Jayesh, Dr on trustee list
- MACDONALD, David on trustee list
- POUPARD, Rachel on trustee list
- POWELL, Joe on trustee list
- GULL, Nicholas on trustee list
- SHAH, Jhilna on trustee list
- JEGGO, Penelope Ann, Prof not on trustee list
- YARLETT, Lian Cecilia on trustee list
Structured financials (annual return, FY ending 31/12/2024)
Register events
- Received assets from another charity (14/03/2019)
Trustees
- Rachel Poupardchair
- David Macdonald
- Dr Jayesh Bhatt
- Jhilna Shah
- Joe Powell
- LIAN CECILIA YARLETT
- Nicholas Gull
- Penny Jeggo
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2024 | £657k | £572k |
| 31/12/2023 | £478k | £663k |
| 31/12/2022 | £429k | £481k |
| 31/12/2021 | £368k | £501k |
| 31/12/2020 | £321k | £506k |
Common questions
Is THE ATAXIA-TELANGIECTASIA SOCIETY financially healthy?
Per its FY2024 accounts: The accounts state that the charity achieved an overall surplus of £85,583 for the year ended 31 December 2024, with total income increasing to £657,491. Per the trustees' report, unrestricted reserves were maintained at £404,744, representing 8.5 months of operational costs, which is below the stated prudent target of 9 months but above the temporary low of 7 months. The trustees confirm that resources are adequate to face the future with confidence. Its FY2024 accounts were audited by Hicks and Company.
Who funds THE ATAXIA-TELANGIECTASIA SOCIETY?
Funders whose own accounts filings name THE ATAXIA-TELANGIECTASIA SOCIETY as a grant recipient include SANDRA CHARITABLE TRUST, THE PIERREPONT TRUST, THE VALIANT CHARITABLE TRUST, ROBERT LUFF FOUNDATION LIMITED, DUDLEY AND GEOFFREY COX CHARITABLE TRUST.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 15/06/2026 | £20k | Increasing Access to Bespoke Family Support Services for people affected by AT. |
| The National Lottery Community Fund | 04/02/2025 | £20k | Building Connections & Support to Improve the Wellbeing of People affected by AT |
| The National Lottery Community Fund | 13/05/2022 | £10k | Improving mental well-being of children suffering from AT during/post pandemic |
| UK government | 27/07/2020 | £10k | Coronavirus Community Support Fund |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE REED FOUNDATION | 3 | £22k |
| THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATION | 2 | £24k |
| THE OAKDALE TRUST | 2 | £5k |
| THE ASTOR FOUNDATION | 2 | £2k |
| BRITISH HUMANE ASSOCIATION | 1 | — |
| CHILDLIFE | 1 | £295k |
| CLUB PELOTON | 1 | £56k |
| CHAPMAN CHARITABLE TRUST | 1 | £47k |
Charities like this
- ACTION FOR A-T
- ATAXIA UK
- THE APLASTIC ANAEMIA TRUST
- THE TUBEROUS SCLEROSIS ASSOCIATION
- MULTIPLE SYSTEM ATROPHY TRUST
- NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| THE ATAXIA-TELANGIECTASIA SOCIETY | £657k | — | 0 | below | — | no doubt |
| ACTION FOR A-T | £905k | — | — | unclear | — | no doubt |
| ATAXIA UK | £1.8m | — | 0 | unclear | — | no doubt |
| THE APLASTIC ANAEMIA TRUST | £647k | — | — | above | — | no doubt |
| THE TUBEROUS SCLEROSIS ASSOCIATION | £478k | — | 0 | unclear | 44.2% | no doubt |
| MULTIPLE SYSTEM ATROPHY TRUST | £1.3m | — | 0 | above | — | no doubt |