BARTH SYNDROME UK

Registered charity 1181830 · accounts filings on the Charity Commission register

Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.

Causes: General Charitable Purposes · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income
£58k
Latest spending
£37k
Registered
2019
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a surplus of £21,494, increasing its bank balances to £73,843. The trustees maintain a reserves policy targeting 12 to 24 months of core funding requirements. The independent examiner confirmed that no material matters were identified during the examination of the accounts.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Miscellaneous donations (59% of income)
Miscellaneous donations 34,035
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Public fundraising profile: JustGiving — Barth Syndrome UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Scotland · Throughout England And Wales · United States

Income and spending

Financial year endIncomeSpending
31/12/2025£58k£37k
31/12/2024£25k£33k
31/12/2023£79k£61k
31/12/2022£12k£46k
31/12/2021£31k£45k

Common questions

Is BARTH SYNDROME UK financially healthy?

Per its FY2025 accounts: The accounts state that the charity ended the year with a surplus of £21,494, increasing its bank balances to £73,843. The trustees maintain a reserves policy targeting 12 to 24 months of core funding requirements. The independent examiner confirmed that no material matters were identified during the examination of the accounts. Its FY2025 accounts were independently examined.