DRAVET SYNDROME UK
Registered charity 1128289 · accounts filings on the Charity Commission register · also known as THE IDEA LEAGUE UK
Support for children and adults suffering from Dravet syndrome and their families
Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that the charity reported a net expenditure of £234,563 for the year, resulting in a decrease in total funds from £541,441 to £306,878. The trustees confirm that free reserves of £304,607 meet their stated policy of maintaining a minimum of six months' normal operating expenditure, and they consider it appropriate to continue adopting the going concern basis of accounting.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Reserves policy: six months' normal operating expenditure (held: £305k)
“the Board of Trustees has agreed to a Reserves Policy of maintaining a minimum of six months' normal operating expenditure” — page 23
Per its FY2025 accounts as filed with the Charity Commission.
Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.
Public fundraising profile: JustGiving — Dravet Syndrome UK (matched by registered charity number).
Funders the charity credits
Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).
- Garfield Weston Foundation — “In the past year we were delighted and hugely grateful to be awarded grants from: Garfield Weston Foundation for contributions towards our s…” (source page)
- Chan Zuckerberg Initiative — “In 2024, we were thrilled to be one of the first international patient organisations to join the Chan Zuckerberg Initiative’s Rare As One (C…” (source page)
- XTX Markets — “We’d like to give special thanks to XTX Markets for being our corporate partner since 2018. Their continued support has enabled us to make c…” (source page)
- Westbridge Foods — “Thank you also to Westbridge Foods for their generous donation to our seizure monitor fund.” (source page)
- Biocodex — “Companies that have provided grants and sponsorship in recent years include: Biocodex, Encoded Therapeutics, Jazz Pharmaceuticals, Harmony, …” (source page)
- Encoded Therapeutics — “Companies that have provided grants and sponsorship in recent years include: Biocodex, Encoded Therapeutics, Jazz Pharmaceuticals, Harmony, …” (source page)
- Jazz Pharmaceuticals — “Companies that have provided grants and sponsorship in recent years include: Biocodex, Encoded Therapeutics, Jazz Pharmaceuticals, Harmony, …” (source page)
Public profiles (found on the charity’s own website): facebook · instagram
Structured financials (annual return, FY ending 31/01/2026)
Cost of raising funds
£50k
Reported reserves equal ~3.4 months of spending — below the median for charities its size (median 5.2 months; benchmarks).
Per its annual return, largest income source: Donations and legacies (96% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.
Per its annual return, cost of raising funds: 7.8% of total income — above the median for charities its size (4.9%) (benchmarks).
- Galia Wilson-Johnchair
- Alex Williams
- John David Rees Lloyd
- Neil Williamson
- Stephanie Smith
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England
Income and spending
Common questions
Is DRAVET SYNDROME UK financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a net expenditure of £234,563 for the year, resulting in a decrease in total funds from £541,441 to £306,878. The trustees confirm that free reserves of £304,607 meet their stated policy of maintaining a minimum of six months' normal operating expenditure, and they consider it appropriate to continue adopting the going concern basis of accounting. Its FY2025 accounts were independently examined.
Who funds DRAVET SYNDROME UK?
Funders whose own accounts filings name DRAVET SYNDROME UK as a grant recipient include THE ORR MACKINTOSH FOUNDATION LIMITED, JESSIE'S FUND.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOTONIC DYSTROPHY SUPPORT GROUP.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.