ALPORT UK
Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
Financial health, per its FY2025 accounts
The accounts state that unrestricted reserves stood at £38,556 against a policy target of covering 6-12 months of salaries and outgoings. The charity reported a net movement in funds of £12,136 for the year, with total income of £178,591 and total expenditure of £166,679.
What the accounts disclose
“Minimum reserves are kept to cover 6-12 months of salaries and outgoings.”
Trustees
- Professor Frances Anne Flinterchair
- Alice Turner
- Amanda McLean
- Professor Daniel Gale
- Professor Neil Turner
- Professor Rachel Lennon
- Susie Gear
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 01/08/2025 | £179k | £167k |
| 01/08/2024 | £154k | £155k |
| 01/08/2023 | £92k | £94k |
| 01/08/2022 | £37k | £48k |
| 01/08/2021 | £60k | £28k |
Common questions
Is ALPORT UK financially healthy?
Per its FY2025 accounts: The accounts state that unrestricted reserves stood at £38,556 against a policy target of covering 6-12 months of salaries and outgoings. The charity reported a net movement in funds of £12,136 for the year, with total income of £178,591 and total expenditure of £166,679. Its FY2025 accounts were independently examined.
Who funds ALPORT UK?
Funders whose own accounts filings name ALPORT UK as a grant recipient include THE STONEYGATE TRUST, CHK Foundation, THE AMELIA CHADWICK TRUST, THE DYERS' COMPANY CHARITABLE TRUST.
Shared trustees with funders
- Alice Turner — trustee here and at THE AMELIA CHADWICK TRUST
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE STONEYGATE TRUST | FY2024 | £33k | |
| CHK Foundation | FY2024 | £10k | |
| THE AMELIA CHADWICK TRUST | FY2025 | £6k | |
| THE AMELIA CHADWICK TRUST | FY2024 | £6k | |
| THE DYERS' COMPANY CHARITABLE TRUST | FY2024 | £1k | Health and Welfare |
| THE DYERS' COMPANY CHARITABLE TRUST | FY2023 | £1k | Health and Welfare |
| THE DYERS' COMPANY CHARITABLE TRUST | FY2022 | £1k | Health and Welfare |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 25/02/2026 | £20k | Alport Peer Support Hub |