ALPORT UK

Registered charity 1154774 · accounts filings on the Charity Commission register

Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.

Objects

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Cotswold, South West, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that unrestricted reserves stood at £38,556 against a policy target of covering 6-12 months of salaries and outgoings. The charity reported a net movement in funds of £12,136 for the year, with total income of £178,591 and total expenditure of £166,679.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Annual return filing dates (Charity Commission record)

Of its last 5 annual returns with a recorded received date, 2 were received after the due date: year ending 01/08/2025 (received 01/07/2026, 30 days after the 01/06/2026 due date); year ending 01/08/2023 (received 11/09/2024, 102 days after the 01/06/2024 due date).

Due and received dates as recorded in the Commission’s annual-return data; the data does not say whether an extension was agreed. Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Alport UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram · linkedin

Trustees · trustee networks

• Professor Frances Anne Flinterchair · trustee of 2 other charities
• Alice Turner · trustee of 1 other charity
• Amanda McLean
• Professor Daniel Gale
• Professor Neil Turner
• Professor Rachel Lennon
• Susie Gear

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Shared trustees with funders

Register facts shown side by side: a person serves as trustee of both this charity and a funder whose accounts record grants to it. Shared trusteeship is lawful and common; well-run charities manage it through declared-interest procedures.

• Alice Turner — trustee here and at THE AMELIA CHADWICK TRUST

Known funders

Grants to this charity found in funders’ own accounts filings.

Grants marked “Unverified read” were flagged by automated checks as possibly misread from the funder’s filed accounts. They are listed, but left out of the totals, counts and funder relationships this site computes.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with PUBLISH WHAT YOU FUND.

• PUBLISH WHAT YOU FUND income £781k
• STOCKPORT CARE SCHEMES income £310k
• THE OPENWORK FOUNDATION income £1.2m
• ELBWO income £44k
• ALS PALS income £99k
• DRAVET SYNDROME UK income £640k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.