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MYOTUBULAR TRUST

Registered charity 1137177 · accounts filings on the Charity Commission register

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Latest income
£147k
Latest spending
£315k
Registered
2010
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity incurred a net outgoing of £167,714 in 2025, reducing its total funds from £413,403 to £245,689. The trustees report that the charity raised £146,956 in incoming resources, with running costs separately funded to ensure all supporter donations went to research. The trustees confirm that resources are adequate to continue operating on a going concern basis.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Highest-paid employee band: £20,000 — below the median for charities its size (£60k)
“One Trustee received remuneration of £20,000 during the year ending 31 December 2025” — page 17
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: do not consider it appropriate to hold long-term reserves (held: £246k)
“The Trustees sole aim in expending cash reserves is to fund research into a cure or treatment for myotubular myopathy and they do not consider it appropriate to hold long-term reserves.” — page 9
Per its FY2025 accounts as filed with the Charity Commission.
Payments to trustees: One Trustee received remuneration of £20,000 during the year ending 31 December 2025.
“One Trustee received remuneration of £20,000 during the year ending 31 December 2025 (2024: £20,000).” — page 17
Per its FY2025 accounts as filed with the Charity Commission.
Related-party transaction: One Trustee received remuneration of £20,000 during the year ending 31 December 2025 (2024: £20,000). The trustee's remuneration and other administration costs are funded from unrestricted corporate and charitable donations, which were specifically raised for that purpose.
“One Trustee received remuneration of £20,000 during the year ending 31 December 2025 (2024: £20,000). The trustee's remuneration and other administration costs are funded from unrestricted corporate and charitable donations, which were specifically raised for that purpose.” — page 17
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 6 of 6 completeness components.

Public fundraising profile: JustGiving — Myotubular Trust (matched by registered charity number).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2025£147k£315k
31/12/2024£138k£148k
31/12/2023£118k£71k
31/12/2022£147k£98k
31/12/2021£145k£113k

Common questions

Is MYOTUBULAR TRUST financially healthy?

Per its FY2025 accounts: The accounts state that the charity incurred a net outgoing of £167,714 in 2025, reducing its total funds from £413,403 to £245,689. The trustees report that the charity raised £146,956 in incoming resources, with running costs separately funded to ensure all supporter donations went to research. The trustees confirm that resources are adequate to continue operating on a going concern basis. Its FY2025 accounts were independently examined.

What does the highest-paid employee of MYOTUBULAR TRUST earn?

Per its FY2025 accounts, the highest-paid employee was in the £20,000 band.

Who funds MYOTUBULAR TRUST?

Funders whose own accounts filings name MYOTUBULAR TRUST as a grant recipient include IGY FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
IGY FOUNDATIONFY2022£100k
IGY FOUNDATIONFY2023£50k
IGY FOUNDATIONFY2025£25k

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

FunderSimilar charities fundedAmount to them
The Patricia Routledge Foundation2£15k
THE EDWARD CADBURY CHARITABLE TRUST2£11k
THE WILLIAM ALLEN YOUNG CHARITABLE TRUST2£8k
DORIS FIELD CHARITABLE TRUST2£3k
CBRE UK CHARITABLE TRUST2£3k
THE W E DUNN TRUST2£2k
THE LESLIE AND DORIS SECCOMBE CHARITABLE TRUST1—
JOINING JACK1£111k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOSITIS UK.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
MYOTUBULAR TRUST£147k£20,0000unclear—no doubt
MYOSITIS UK FY2025£140k—0unclear—no doubt
MY MITO MISSION FY2024£132k—0unclear—no doubt
MYROVLYTIS TRUST FY2024£594k—0unclear—no doubt
MYOTONIC DYSTROPHY SUPPORT GROUP FY2025£136k—0above—no doubt
TREAT-NMD ALLIANCE LTD FY2024£2.5m——unclear—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.