MYOTUBULAR TRUST
Financial health, per its FY2023 accounts
The accounts state that total funds increased to £423,296 in 2023, up from £376,661 in 2022, driven by incoming resources of £117,511 against total expenditure of £70,876. The trustees maintain a policy of not holding long-term unrestricted reserves, noting that funds are ring-fenced for specific research projects rather than general operational buffers. The charity received separate funding to cover running costs, ensuring that supporter-raised funds were directed entirely to research activities.
What the accounts disclose
“One Trustee received remuneration of £20,000 during the year ending 31 December 2023” — page 18
“The Trustees sole aim in expending cash reserves is to fund research into a cure or treatment for myotubular myopathy and they do not consider it appropriate to hold long-term reserves.” — page 9
“One Trustee received remuneration of £20,000 during the year ending 31 December 2023” — page 18
“One Trustee received remuneration of £20,000 during the year ending 31 December 2023 (2022: £20,000). The trustee's remuneration and other administration costs are funded from unrestricted corporate and charitable donations, which were specifically raised for that purpose.” — page 18
Register events
- Received assets from another charity (11/03/2020)
Trustees
- ANDREW LENNOXchair
- ANNE LENNOX
- James Rosling
- Lisa Bashorum
- PATRICIA ALLEN
- Zachary Richard Hughes
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2024 | £138k | £148k |
| 31/12/2023 | £118k | £71k |
| 31/12/2022 | £147k | £98k |
| 31/12/2021 | £145k | £113k |
| 31/12/2020 | £133k | £200k |
Common questions
Is MYOTUBULAR TRUST financially healthy?
The accounts state that total funds increased to £423,296 in 2023, up from £376,661 in 2022, driven by incoming resources of £117,511 against total expenditure of £70,876. The trustees maintain a policy of not holding long-term unrestricted reserves, noting that funds are ring-fenced for specific research projects rather than general operational buffers. The charity received separate funding to cover running costs, ensuring that supporter-raised funds were directed entirely to research activities. Its FY2023 accounts were independently examined.
What does the highest-paid employee of MYOTUBULAR TRUST earn?
Per its FY2023 accounts, the highest-paid employee was in the £20,001 - £30,000 band.
Who funds MYOTUBULAR TRUST?
Funders whose own accounts filings name MYOTUBULAR TRUST as a grant recipient include IGY FOUNDATION.
Known funders
| Funder | Year | Amount |
|---|---|---|
| IGY FOUNDATION | FY2023 | £50k |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| DRAGON CHRISTMAS CHARITY SALE | 2 | £550 |
| THE HELEN STRAKER CHARITY | 1 | — |
| BERNARD LEWIS FAMILY CHARITABLE TRUST | 1 | £85k |
| THE FRANCES AND AUGUSTUS NEWMAN FOUNDATION | 1 | £75k |
| HOLLYHOCK CHARITABLE FOUNDATION | 1 | £40k |
| SIR SAMUEL SCOTT OF YEWS TRUST | 1 | £20k |
| THE TRUE COLOURS TRUST | 1 | £10k |
| THE MARY ROBERTSON TRUST | 1 | £6k |