MYOTUBULAR TRUST

Registered charity 1137177 · accounts filings on the Charity Commission register · Wikidata: Q30264678

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

Objects

THE RELIEF OF DISABILITY AND THE EXTENSION OF LIFE FOR BABIES, CHILDREN AND ADULTS SUFFERING FROM MYOTUBULAR MYOPATHY, BY PROMOTING THE STUDY OF, AND RESEARCH INTO, THE TREATMENT AND CARE OF THE MUSCLE WEAKNESS CAUSED BY MYOTUBULAR MYOPATHY.

Area of benefit: UNDEFINED.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Registered contact address: Wandsworth, London, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity incurred a net outgoing of £167,714 in 2025, reducing its total funds from £413,403 to £245,689. The trustees report that the charity raised £146,956 in incoming resources, with running costs separately funded to ensure all supporter donations went to research. The trustees confirm that resources are adequate to continue operating on a going concern basis.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 6 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints policy and procedures
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Investing charity funds policy and procedures
• Safeguarding policy and procedures
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Corporate structure

• Registered company of the charity Companies House 07260229

Public fundraising profile: JustGiving — Myotubular Trust (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• BASHORUM, Lisa — director, appointed 01/10/2025on trustee list
• HUGHES, Zachary Richard — director, appointed 01/10/2025on trustee list
• ALLEN, Patricia Jane — director, appointed 01/12/2010on trustee list
• LENNOX, Andrew — director, appointed 01/10/2010on trustee list
• LENNOX, Anne — director, appointed 01/10/2010on trustee list
• ROSLING, James Patrick — director, appointed 01/10/2010on trustee list

Official officers record.

Register events

• Received assets from another charity (11/03/2020) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• ANDREW LENNOXchair
• ANNE LENNOX
• James Rosling
• Lisa Bashorum
• PATRICIA ALLEN
• Zachary Richard Hughes

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MYELOPATHY.ORG.

• MYELOPATHY.ORG income £93k
• OSTEOPATHIC TRUSTS income £136k
• MYROVLYTIS TRUST income £594k
• MULTIPLE SYSTEM ATROPHY TRUST income £1.9m
• MYOTONIC DYSTROPHY SUPPORT GROUP income £136k
• MOBILITY TRUST II income £184k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.