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MYOTUBULAR TRUST — grant history

Registered charity 1137177 · filings on the Charity Commission register · its own accounts analysis · funder finder · deadlines · watch this funder · check a grantee list

Latest income
£147k
Grants listed (FY2025)
4
Listed grants total
£249k
Accounts grants total
£254k

listed grants reconcile with the accounts totalextracted from its FY2025 accounts

What changed: FY2024 → FY2025

Grantees that appear, disappear or move by 50%+ between the two most recent filings that have counted grants (unverified reads are left out, so a filing whose grants are all unverified is skipped). A grantee “dropped” may simply have received a multi-year grant earlier.

ChangeGranteeFY2024FY2025
newRadboud 2025—£10k
upSick Kids£36k£164k
upInserm(Buj Bello) 2023-25£21k£55k
downGreat Ormond Street (GOSH)£249k£21k
not listedHnia at Inserrn£33k—

Grants made, per its accounts filings

Download this grant history as CSV (open data, provenance and licence noted in the file).

RecipientYearAmountPurpose
Sick KidsFY2025£164kStudying liver disease in X-linked myotubular myopathy
Inserm(Buj Bello) 2023-25FY2025£55kNext generation gene therapy
Great Ormond Street (GOSH)FY2025£21kAn Advanced Multi-Organoid Platform for Therapy Modelling in X-Linked Myotubular Myopathy
Radboud 2025FY2025£10kResearch grant
Great Ormond Street (GOSH)FY2024£249kAn Advanced Multi-Organoid Platform for Therapy Modelling in X-Linked Myotubular Myopathy (Prof Francesco Saverio Tedesco and Dr Valentina Maria Lionello at University College London)
Sick KidsFY2024£36kStudying liver disease in X-linked myotubular myopathy (Dr Jim Dowling)
Hnia at InserrnFY2024£33kNext generation gene therapy (Dr Ana Buj Bello)
Inserm(Buj Bello) 2023-25FY2024£21kNext generation gene therapy (Dr Ana Buj Bello)
Newcastle University re Treat NMDFY2024amount not statedContributed to the first ever Congenital Myopathies Masterclass
MDUKFY2023£300kGrant to Dr Jim Dowling at Sick Kids to study liver disease in X-linked myotubular myopathy, in partnership with MDUK. Note: The text states MDUK is contributing £60,000 to the overall grant of £300,000. However, the SOFA shows £16,151 in restricted funds for research, and Note 4 lists specific grants. The £300,000 figure is the total project value, not necessarily the amount paid by Myotubular Trust in this specific accounting period or as a direct grant to MDUK. Let's look closer at Note 4.
Hnia at InserrnFY2022£39kmTORC pathway research
Tamoxifoen ProtocolFY2022£31kTamoxifen clinical trial (UK arm)
Newcastle University re Treat NMDFY2022£29kPatient Registry software development
Research ConsultancyFY2022£8kNot specified in note, likely general research support
Research ConsultancyFY2022£2kNot specified in note, likely general research support
Hnia at InserrnFY2021£29kmTORC pathway research
Newcastle University re Treat NMDFY2021£8kStandards of Care meeting / TREAT-NMD collaboration
Tamoxifoen ProtocolFY2021£2kTamoxifen clinical trial (UK arm)
Research ConsultancyFY2021£2kConsultancy services

1 listed grant has no usable amount in the accounts (shown as “amount not stated”); it is left out of the grant counts and totals.

About this data

This grant list is extracted by automated reading of the grant-maker’s own accounts PDFs as filed with the Charity Commission, and cross-checked against the accounts’ stated grant totals (listed sum 248836 vs reference 253759 (1.9% diff; ref=stated)). Recipients are linked to register entries only on an exact charity-number or unambiguous exact-name match. If you represent this funder or a recipient and want a correction, email [email protected].