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MYOTUBULAR TRUST — grant history

Registered charity 1137177 · filings on the Charity Commission register · its own accounts analysis · funder finder · deadlines

Latest income
£138k
Grants listed (FY2023)
1
Listed grants total
£300k
Accounts grants total
£16k

listed grants do not fully reconcile with the accounts total — list may be partialextracted from its FY2023 accounts

Grants made, per its accounts filings

Download this grant history as CSV (open data, provenance and licence noted in the file).

RecipientYearAmountPurpose
MDUKFY2023£300kGrant to Dr Jim Dowling at Sick Kids to study liver disease in X-linked myotubular myopathy, in partnership with MDUK. Note: The text states MDUK is contributing £60,000 to the overall grant of £300,000. However, the SOFA shows £16,151 in restricted funds for research, and Note 4 lists specific grants. The £300,000 figure is the total project value, not necessarily the amount paid by Myotubular Trust in this specific accounting period or as a direct grant to MDUK. Let's look closer at Note 4.
Hnia at InserrnFY2022£39kmTORC pathway research
Tamoxifoen ProtocolFY2022£31kTamoxifen clinical trial (UK arm)
Newcastle University re Treat NMDFY2022£29kPatient Registry software development
Research ConsultancyFY2022£8kNot specified in note, likely general research support
Research ConsultancyFY2022£2kNot specified in note, likely general research support
Hnia at InserrnFY2021£29kmTORC pathway research
Newcastle University re Treat NMDFY2021£8kStandards of Care meeting / TREAT-NMD collaboration
Tamoxifoen ProtocolFY2021£2kTamoxifen clinical trial (UK arm)
Research ConsultancyFY2021£2kConsultancy services

About this data

This grant list is extracted by automated reading of the grant-maker’s own accounts PDFs as filed with the Charity Commission, and cross-checked against the accounts’ stated grant totals (listed sum 300000 vs reference 16151 (1757.5% diff; ref=stated)). Recipients are linked to register entries only on an exact charity-number or unambiguous exact-name match. If you represent this funder and want a correction, contact us.