MYROVLYTIS TRUST

Registered charity 1122073 · accounts filings on the Charity Commission register · Wikidata: Q30287990 · also known as MYROVLYTIS TRUST LIMITED · filing overdue (register status)

Promote research into rare disorders and advance education of the public in medical and molecular genetics.

Objects

3.1 THE ADVANCEMENT AND PROMOTION OF RESEARCH INTO RARE DISORDERS IN ORDER TO BETTER UNDERSTAND, DIAGNOSE, PREVENT, CURE AND RELIEVE CONDITIONS (INCLUDING BUT NOT LIMITED TO THE RARE GENETIC DISORDER BIRT-HOGG-DUB? SYNDROME AND THE RARE CANCER OSTEOSARCOMA) AND THE FREE DISSEMINATION OF THE RESULTS OF SUCH RESEARCH TO THE PUBLIC3.2 THE ADVANCEMENT OF EDUCATION OF THE PUBLIC IN MEDICAL AND MOLECULAR GENETICS3.3 TO ASSIST IN THE RELIEF OF FINANCIAL HARDSHIP, TREATMENT AND CARE OF PERSONS SUFFERING FROM RARE DISORDERS, INCLUDING BUT NOT LIMITED TO BIRT HOGG DUBE SYNDROME AND OSTEOSARCOMA, THROUGH THE PROVISION OF GRANTS, GOODS AND SERVICES

Area of benefit: UNDEFINED. IN PRACTICE NATIONAL

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Grant history (this charity is a funder) · Get email alerts

Registered contact address: Barnet, London, England (from the postcode on the register)

Financial health, per its FY2024 accounts

The accounts state that the charity's unrestricted funds have decreased to a deficit of £297,005 as of March 2024, following significant grant funding expenditures. The trustees report that the charity has adequate resources to continue in operational existence for the foreseeable future and have adopted the going concern basis. The charity operates a defined contribution pension scheme and has no disclosed trading subsidiaries.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Insolvency history (Companies House)

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Annual return filing dates (Charity Commission record)

Of its last 4 annual returns with a recorded received date, 1 was received after the due date: year ending 30/09/2020 (received 09/08/2021, 10 days after the 30/07/2021 due date).

1 further annual return is past its due date with no recorded received date (Charity Commission register).

Due and received dates as recorded in the Commission’s annual-return data; the data does not say whether an extension was agreed. Source: this charity’s annual returns on the Charity Commission register.

Corporate structure

• Registered company of the charity Companies House 06369701 · Financial health read from its filings

Public fundraising profile: JustGiving — Myrovlytis Trust (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• OKORO, Grace Ugochi — director, appointed 01/12/2024on trustee list
• BHAGWAT, Amit — director, appointed 18/08/2022on trustee list
• PANAGOPOULOS, Dimitris Nikolas — director, appointed 18/08/2022not on trustee list
• HONEYWOOD, Katie Alexandra — secretary, appointed 14/08/2024

Official officers record.

Structured financials (annual return, FY ending 31/03/2024)

Reported reserves equal ~0.0 months of spending — in the bottom quarter for charities its size (median 5.2 months; benchmarks).

Per its annual return, largest income source: Donations and legacies (99% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 0.0% of total income — below the median for charities its size (4.9%) (benchmarks).

Trustees · trustee networks

• Amit Bhagwat
• Dr Grace Okoro · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Argentina · Australia · Austria · Bangladesh · Belgium · Bolivia · Brazil · Canada · China · Croatia · Denmark · Finland

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MYOSITIS UK.

• MYOSITIS UK income £140k
• THE MARY KINROSS CHARITABLE TRUST income £1.5m
• The Trust Foundation income £2.5m
• THE ANYA STURDY CHARITABLE TRUST FOR MEDICAL RESEARCH income £70k
• MYELOPATHY.ORG income £93k
• MYR CHARITABLE TRUST income £134k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.