THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE

Registered charity 266071 · accounts filings on the Charity Commission register · also known as NARPD, PAGETS ASSOCIATION

The Paget's Association provides information and support to people whose lives are affected by all aspects of Paget's Disease of Bone and to educate health professionals. It works to raise the profile of the condition, and to raise awareness, both amongst members of the public and health professionals. It also supports and funds research into all aspects of Paget's Disease of Bone.

Objects

TO PRESERVE AND PROTECT THE HEALTH OF PERSONS SUFFERING FROM PAGET'S DISEASE OF BONE AND THEIR FAMILIES BY A) PROVIDING INFORMATION AND SUPPORT, B) RAISING AWARENESS ABOUT PAGET'S DISEASE OF BONE BOTH WITHIN THE MEDICAL AND ALLIED HEALTH PROFESSIONS, AND AMONGST THE GENERAL PUBLIC, C) SUPPORTING AND FUNDING RESEARCH PROJECTS IN THE FIELD OF PAGET'S DISEASE OF BONE OR ITS TREATMENT.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that net assets decreased from £583,289 to £541,643 due to a net expenditure of £41,646, driven by a significant drop in legacy income. The trustees note with concern that legacy income has diminished and have paused new research funding commitments to mitigate reliance on voluntary income. The charity intends to transfer its assets to a new CIO structure during 2026.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — The National Association For The Relief Of Paget's Disease (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

• Professor Stuart Hamilton Ralstonchair · trustee of 2 other charities
• Alan Martin · trustee of 1 other charity
• Amanda Sherwood · trustee of 1 other charity
• Dr Faizanur Rahman · trustee of 1 other charity
• Dr R Layfield · trustee of 1 other charity
• Dr Sheelagh Farrow · trustee of 1 other charity
• Dr Stephen Paul Tuck
• Eve Marcia Berry · trustee of 1 other charity
• Kely Burman · trustee of 1 other charity
• Mohamed El Erian
• Professor Graham G Russell · trustee of 1 other charity
• Professor Jeremy Mark Wilkinson · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE PATIENTS ASSOCIATION.

• THE PATIENTS ASSOCIATION income £565k
• PAGET C.I.O. income £135k
• NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY income £1.1m
• THE PSP ASSOCIATION income £2.1m
• BONE CANCER RESEARCH TRUST income £4.2m
• THE BRITISH ASSOCIATION FOR THE STUDY OF THE LIVER income £647k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.