THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE

Registered charity 266071 · accounts filings on the Charity Commission register · also known as NARPD, PAGETS ASSOCIATION

The Paget's Association provides information and support to people whose lives are affected by all aspects of Paget's Disease of Bone and to educate health professionals. It works to raise the profile of the condition, and to raise awareness, both amongst members of the public and health professionals. It also supports and funds research into all aspects of Paget's Disease of Bone.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income

£101k

Latest spending

£167k

Registered

1973

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that net assets decreased from £583,289 to £541,643 due to a net expenditure of £41,646, driven by a significant drop in legacy income. The trustees note with concern that legacy income has diminished and have paused new research funding commitments to mitigate reliance on voluntary income. The charity intends to transfer its assets to a new CIO structure during 2026.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Fundraising cost ratio: 42.7% of fundraised income — above the 90th percentile for charities its size (median 2.9%)

“Expenditure comprised £124,237 (2024: £130,284) for charitable activities and £43,262 (2024: £39,753) for activities related to raising funds.” — page 7

Per its FY2025 accounts as filed with the Charity Commission.

Reserves policy: 24 months operating expenditure (held: £542k)

“The Board has agreed that reserves should be in place to cover at least 24 months operating expenditure.” — page 7

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — The National Association For The Relief Of Paget's Disease (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Professor Stuart Hamilton Ralstonchair · trustee of 2 other charities
Alan Martin · trustee of 1 other charity
Amanda Sherwood · trustee of 1 other charity
Dr Faizanur Rahman · trustee of 1 other charity
Dr R Layfield · trustee of 1 other charity
Dr Sheelagh Farrow · trustee of 1 other charity
Dr Stephen Paul Tuck
Eve Marcia Berry · trustee of 1 other charity
Kely Burman · trustee of 1 other charity
Mohamed El Erian
Professor Graham G Russell · trustee of 1 other charity
Professor Jeremy Mark Wilkinson · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2025	£101k	£167k
31/12/2024	£67k	£130k
31/12/2023	£108k	£228k
31/12/2022	£125k	£329k
31/12/2021	£205k	£257k

Common questions

Is THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE financially healthy?

Per its FY2025 accounts: The accounts state that net assets decreased from £583,289 to £541,643 due to a net expenditure of £41,646, driven by a significant drop in legacy income. The trustees note with concern that legacy income has diminished and have paused new research funding commitments to mitigate reliance on voluntary income. The charity intends to transfer its assets to a new CIO structure during 2026. Its FY2025 accounts were independently examined.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
ROBERT LUFF FOUNDATION LIMITED	2	£80k
THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATION	2	£30k
THE EDWARD CADBURY CHARITABLE TRUST	2	£26k
SIR SAMUEL SCOTT OF YEWS TRUST	2	£17k
THE LAWSON TRUST CIO	2	£15k
THE FORRESTER FAMILY TRUST	2	£10k
EXTRA MILE CHALLENGES	2	£3k
THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST. PETER, FORMBY	1	—

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE PATIENTS ASSOCIATION.

THE PATIENTS ASSOCIATION income £565k
PAGET C.I.O. income £135k
NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY income £1.1m
THE PSP ASSOCIATION income £2.1m
BONE CANCER RESEARCH TRUST income £4.2m
THE BRITISH ASSOCIATION FOR THE STUDY OF THE LIVER income £647k

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE	£101k	—	0	unclear	42.7%	no doubt
THE PATIENTS ASSOCIATION FY2025	£565k	£80,001 - £90,000	—	unclear	—	no doubt
PAGET C.I.O. FY2025	£135k	—	0	unclear	—	no doubt
NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY FY2024	£1.1m	£100,001 - £110,000	—	unclear	17.3%	no doubt
THE PSP ASSOCIATION FY2025	£2.1m	—	—	above	23.5%	no doubt
BONE CANCER RESEARCH TRUST FY2023	£4.2m	—	0	above	33.9%	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.