NOONAN SYNDROME ASSOCIATION

Registered charity 1140671 · accounts filings on the Charity Commission register · also known as NSA

The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income

£48k

Latest spending

£81k

Registered

2011

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity reported a net expenditure deficit of £33,326 for the year ended 31 March 2025, resulting in a decrease in total funds to £46,560. The trustees note that while income was slightly up on the previous year, it remains down on earlier years due to challenges in regular giving and grant funding. Despite this, the charity describes its financial position as stable and confirms that resources are adequate to continue operations.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: three to six months of operating costs (held: £45k)

“The charity does not have a separate formal policy on Reserves but following Board discussions, the Chair, Treasurer and Charity Manager follow a policy based on achieving free reserves of a minimum of between 3 and 6 months' operating costs including those associated with the cost of a part time charity manager.” — page 5

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Noonan Syndrome Association (matched by registered charity number).

Trustees · trustee networks

Andrea Dawn Reid-Kelly
Andrew Peter Thomas Milne
Danielle Burnett
David Beatty
Dr Emma Burkitt-Wright
Grayson Colin Bowler
IAN ALEXANDER LEGG BAHon ACIB
Jeanette Dyer
Sharon Louise Allsopp
Susan Miller

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/03/2025	£48k	£81k
31/03/2024	£30k	£48k
31/03/2023	£60k	£80k
31/03/2022	£63k	£39k
31/03/2021	£66k	£32k

Common questions

Is NOONAN SYNDROME ASSOCIATION financially healthy?

Per its FY2025 accounts: The accounts state that the charity reported a net expenditure deficit of £33,326 for the year ended 31 March 2025, resulting in a decrease in total funds to £46,560. The trustees note that while income was slightly up on the previous year, it remains down on earlier years due to challenges in regular giving and grant funding. Despite this, the charity describes its financial position as stable and confirms that resources are adequate to continue operations. Its FY2025 accounts were independently examined.

Who funds NOONAN SYNDROME ASSOCIATION?

Funders whose own accounts filings name NOONAN SYNDROME ASSOCIATION as a grant recipient include THE ASTOR FOUNDATION, DRAGON CHRISTMAS CHARITY SALE.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
THE ASTOR FOUNDATION	FY2023	£1k
THE ASTOR FOUNDATION	FY2022	£1k	Medical
DRAGON CHRISTMAS CHARITY SALE	FY2022	£50

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	09/08/2018	£10k	Families for Families Weekend