PRADER-WILLI SYNDROME ASSOCIATION UK

Registered charity 1155846 · accounts filings on the Charity Commission register · also known as PWSA UK · also registered in Scotland as SC053700 (OSCR)

To relieve the Charitable needs of people with Prader Willi Syndrome and their families and carers by the provision of services, advice and support as the Trustee's shall determine.

Causes: Disability · website · Get email alerts

Latest income

£658k

Latest spending

£508k

Registered

2014

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity generated a surplus of £149,825 for the year ended 31 March 2025, with total funds increasing to £580,098. The trustees report that unrestricted reserves of £388,676 represent nine months of operating costs, which is in line with their stated policy target of maintaining at least six months' costs. The charity remains reliant on fundraising efforts and notes that the general environment for small charities continues to be financially challenging.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Highest-paid employee band: more than £60,000 — below the median for charities its size (£60k)

“During the year one employee (2024 one employee) received total employee benefits of more than £60,000. The key management personnel of the charity comprises the Chief Executive Officer. The total employee benefits of the key management personnel of the charity, including employer's pension contributions, amounted to £88,157” — page 20

Per its FY2025 accounts as filed with the Charity Commission.

Employees paid over £60,000: 1

“During the year one employee (2024 one employee) received total employee benefits of more than £60,000.” — page 20

Per its FY2025 accounts as filed with the Charity Commission.

Reserves policy: six months’ operating costs (held: £389k)

“The Trustees have agreed that the unrestricted reserves should not fail below six months’ operating costs.” — page 7

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 6 of 6 completeness components.

Public fundraising profile: JustGiving — Prader-Willi Syndrome Association Uk (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram · linkedin

Structured financials (annual return, FY ending 31/03/2025)

Total income

£658k

Total spending

£508k

Cost of raising funds

£17k

Reserves (reported)

£533k

Employees

Reported reserves equal ~12.6 months of spending — in the top quarter for charities its size (median 5.2 months; benchmarks).

Per its annual return, cost of raising funds: 2.6% of total income — below the median for charities its size (4.9%) (benchmarks).

Register events

Received assets from another charity (09/01/2015) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

Andrew Abbott
Anne Good
Danny Leslie
Dr Anne Livesey
Dr Evelien Francesca Gevers
Fiona Swinhoe
Jackie Gill
Karen Potts
Laura Pearson
Rebecca Neish
Rosa McKay Polaschek
Susan Passmore

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/03/2025	£658k	£508k
31/03/2024	£498k	£501k
31/03/2023	£383k	£519k
31/03/2022	£362k	£364k
31/03/2021	£548k	£328k

Common questions

Is PRADER-WILLI SYNDROME ASSOCIATION UK financially healthy?

Per its FY2025 accounts: The accounts state that the charity generated a surplus of £149,825 for the year ended 31 March 2025, with total funds increasing to £580,098. The trustees report that unrestricted reserves of £388,676 represent nine months of operating costs, which is in line with their stated policy target of maintaining at least six months' costs. The charity remains reliant on fundraising efforts and notes that the general environment for small charities continues to be financially challenging. Its FY2025 accounts were independently examined.

What does the highest-paid employee of PRADER-WILLI SYNDROME ASSOCIATION UK earn?

Per its FY2025 accounts, the highest-paid employee was in the more than £60,000 band, and 1 employees earned over £60,000.

Who funds PRADER-WILLI SYNDROME ASSOCIATION UK?

Funders whose own accounts filings name PRADER-WILLI SYNDROME ASSOCIATION UK as a grant recipient include THE ROTHES CHARITABLE TRUST, THE ANTON JURGENS CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount
THE ROTHES CHARITABLE TRUST	FY2024	£5k
THE ANTON JURGENS CHARITABLE TRUST	FY2024	£3k
THE ANTON JURGENS CHARITABLE TRUST	FY2023	£3k
THE ROTHES CHARITABLE TRUST	FY2023	£0

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
Postcode Lottery	28/03/2024	£70k	Millionaire Street 2024 02w4
The National Lottery Community Fund	15/03/2024	£18k	PWS community support worker.
Postcode Lottery	31/07/2023	£24k	Project Funding
The National Lottery Community Fund	02/12/2022	£10k	By Your Side
UK government	16/06/2020	£10k	Coronavirus Community Support Fund
UK government	19/05/2020	£3k	VSCE CMC Fund
The National Lottery Community Fund	21/07/2016	£8k	PWS Voice