INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.
Financial health, per its FY2025 accounts
The accounts state that the charity held unrestricted reserves of £175,414, which the trustees consider higher than usual due to the late receipt of grant funding. The trustees' reserves policy is to hold six months of running costs in reserve. The charity reported a net income of £2,300 for the year, with total incoming resources of £186,520 and charitable expenditure of £184,220.
What the accounts disclose
“Grant funding in the form of unrestricted grants enabled the charity to carry out its activities. Further funding came from the Roy & Murray Green Together Fund. Incoming funds were £186,520” — page 9
“The Board aim to hold six months running costs in reserve”
Trustees
- Sandra Cowiechair
- JIM GREEN
- Sarah Janetta
- TONI ANGELA MATHIESON
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £187k | £184k |
| 31/03/2024 | £215k | £90k |
| 31/03/2023 | £72k | £58k |
| 31/03/2022 | £20k | £10k |
| 31/03/2021 | £42k | £8k |
Common questions
Is INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE financially healthy?
Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £175,414, which the trustees consider higher than usual due to the late receipt of grant funding. The trustees' reserves policy is to hold six months of running costs in reserve. The charity reported a net income of £2,300 for the year, with total incoming resources of £186,520 and charitable expenditure of £184,220. Its FY2025 accounts were independently examined.