NIEMANN-PICK UK

Registered charity 1144406 · accounts filings on the Charity Commission register · also known as NIEMANN-PICK DISEASE GROUP (UK) · also registered in Scotland as SC045407 (OSCR)

THIS CHARITY IS THE INCORPORATED SUCCESSOR TO REGISTERED CHARITY 1061881 - NIEMANN-PICK DISEASE GROUP UK. The Charity aims to relieve sickness and any distress which may arise therefrom, and to advance the education and awareness of families, professionals and the general public in all matters concerning the disease.

Objects

TO RELIEVE SICKNESS AMONGST FAMILIES AFFLICTED BY NIEMANN-PICK DISEASE AND ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES, INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING THE DISEASE AS THE COMMITTEE MAY DETERMINE ("THE OBJECTS")THIS CHARITY IS THE INCORPORATED SUCCESSOR TO REGISTERED CHARITY 1061881 - NIEMANN-PICK DISEASE GROUP UK

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Registered contact address: Sunderland, North East, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that total income for the year was £479,696 against expenditure of £476,175, resulting in a net surplus. Free reserves stood at £65,614, which is below the trustees' desired target of £83,063, representing a shortfall of £17,449. The trustees confirmed there are no material uncertainties regarding the charity's ability to continue as a going concern.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Annual return filing dates (Charity Commission record)

Of its last 5 annual returns with a recorded received date, 1 was received after the due date: year ending 30/04/2021 (received 17/03/2022, 17 days after the 28/02/2022 due date).

Due and received dates as recorded in the Commission’s annual-return data; the data does not say whether an extension was agreed. Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Niemann-Pick UK (matched by registered charity number).

Register events

• Received assets from another charity (17/04/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.
• Received assets from another charity (11/04/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.
• Received assets from another charity (17/01/2012) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• HELEN CARTERchair
• Anthony Mead-Wynne
• DAVID ROBERTS
• Fiona Dunne
• JACQUELINE IMRIE · trustee of 1 other charity
• JANICE BROOKS
• JOELLA MELVILLE
• Professor Frances Mary Platt
• Thomas Kirkegaard Jense
• WILLIAM OWEN
• WILLIAM RALPH HENRY EVANS

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE.

• INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE income £187k
• INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY income £448k
• SPINNAKER TRUST LIMITED income £174k
• MANCHESTER SETTLEMENT income £1.8m
• FEEDING FAMILIES income £913k
• THE RICHARD PAIN TRUST LIMITED income £0

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.