RARE CHROMOSOME DISORDER SUPPORT GROUP
Unique - The Rare Chromosome Disorder Support Group, is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.
Financial health, per its FY2025 accounts
The accounts state that total income increased by 18% to £467,192, while total expenditure rose by 8.8% to £402,200, resulting in a net surplus for the year. The charity holds unrestricted reserves of £327,929, which exceeds its stated policy target of six months' average operating costs (£186,648). The trustees confirm there are no material uncertainties regarding the charity's ability to continue as a going concern.
What the accounts disclose
“During the year, one employee's total earnings, including redundancy / termination payments were between £70,000 and £80,000.”
“During the year, one employee's total earnings, including redundancy / termination payments were between £70,000 and £80,000.”
“The Trustees have recently opted to change our reserves policy to hold a minimum reserve equivalent to six months’ average operating costs for the previous year. For this year, this equates to not less than £186,648.”
“During the year, the charity received donations from trustees, related charitable trusts of the trustees, and key management totalling £6,427 (2024: £1,563). No amounts were outstanding at year end.” — page 38
Register events
- Received assets from another charity (24/06/2025)
Trustees
- Helen Elizabeth Campbellchair
- Ben Stern
- Cecely Hugh
- EDNA MARGARET KNIGHT MBE
- FIONA CATHERINE FULTON DE ZOETE
- James Edward Lucas
- SOPHIE PRISCILLA SAINTY
- Shwetha Ramachandrappa
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £467k | £402k |
| 31/03/2024 | £397k | £370k |
| 31/03/2023 | £289k | £383k |
| 31/03/2022 | £305k | £344k |
| 31/03/2021 | £357k | £300k |
Common questions
Is RARE CHROMOSOME DISORDER SUPPORT GROUP financially healthy?
Per its FY2025 accounts: The accounts state that total income increased by 18% to £467,192, while total expenditure rose by 8.8% to £402,200, resulting in a net surplus for the year. The charity holds unrestricted reserves of £327,929, which exceeds its stated policy target of six months' average operating costs (£186,648). The trustees confirm there are no material uncertainties regarding the charity's ability to continue as a going concern. Its FY2025 accounts were independently examined.
What does the highest-paid employee of RARE CHROMOSOME DISORDER SUPPORT GROUP earn?
Per its FY2025 accounts, the highest-paid employee was in the £70,001 - £80,000 band, and 1 employees earned over £60,000.
Who funds RARE CHROMOSOME DISORDER SUPPORT GROUP?
Funders whose own accounts filings name RARE CHROMOSOME DISORDER SUPPORT GROUP as a grant recipient include THE ANNIE TRANMER CHARITABLE TRUST.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE ANNIE TRANMER CHARITABLE TRUST | FY2024 | £1k |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| Postcode Lottery | 30/06/2023 | £25k | Unrestricted Funding |
| The National Lottery Community Fund | 02/06/2023 | £9k | The Unique Listening Ear - Pre-Natal Support |
| The National Lottery Community Fund | 22/05/2020 | £10k | Listening Ear Helpline - Covid-19 Response |
| The National Lottery Community Fund | 30/05/2019 | £3k | Family Fun & Information Day -North East |
| The National Lottery Community Fund | 09/11/2018 | £3k | Family Fun & Information Day - Scotland |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE BARBOUR FOUNDATION | 2 | £16k |
| CHARLES S FRENCH CHARITABLE TRUST | 2 | £7k |
| THE MAURICE WOHL CHARITABLE FOUNDATION | 1 | £200k |
| THE BLOOM FOUNDATION | 1 | £151k |
| THE DR BENJAMIN ANGEL FOUNDATION | 1 | £137k |
| THE STEVEN BLOCH IMAGE OF DISABILITY CHARITABLE TRUST | 1 | £91k |
| JOFFE CHARITABLE TRUST CIO | 1 | £85k |
| THE BIG YELLOW FOUNDATION | 1 | £78k |
Charities like this
- GENETIC ALLIANCE UK LTD
- THE CHRONIC GRANULOMATOUS DISORDER SOCIETY
- ROMA SUPPORT GROUP
- DOWNRIGHT EXCELLENT
- DOWN'S SYNDROME ASSOCIATION
- DOWN SYNDROME INTERNATIONAL
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| RARE CHROMOSOME DISORDER SUPPORT GROUP | £467k | £70,001 - £80,000 | 1 | unclear | — | no doubt |
| GENETIC ALLIANCE UK LTD | £886k | — | — | above | 12.0% | no doubt |
| THE CHRONIC GRANULOMATOUS DISORDER SOCIETY | £359k | — | 0 | within | — | noted |
| ROMA SUPPORT GROUP | £574k | — | 0 | within | — | no doubt |
| DOWNRIGHT EXCELLENT | £224k | — | 0 | below | — | no doubt |
| DOWN'S SYNDROME ASSOCIATION | £2.7m | £60,001 - £70,000 | 1 | within | 17.0% | no doubt |