RARE CHROMOSOME DISORDER SUPPORT GROUP

Registered charity 1110661 · accounts filings on the Charity Commission register · also known as UNIQUE RCD LTD

Unique - The Rare Chromosome Disorder Support Group, is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Objects

3.1 TO ASSIST AND RELIEVE SUFFERERS FROM RARE CHROMOSOME DISORDERS3.2 TO EDUCATE THE PUBLIC REGARDING RARE CHROMOSOME DISORDERS3.3 TO RELIEVE THE PARENTS AND CARERS OF PERSONS SUFFERING FROM RARE CHROMOSOME DISORDERS WHO ARE IN CONDITIONS OF NEED HARDSHIP OR DISTRESS

Area of benefit: NATIONAL AND OVERSEAS

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that total income increased by 18% to £467,192, while total expenditure rose by 8.8% to £402,200, resulting in a net surplus for the year. The charity holds unrestricted reserves of £327,929, which exceeds its stated policy target of six months' average operating costs (£186,648). The trustees confirm there are no material uncertainties regarding the charity's ability to continue as a going concern.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 6 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — UNIQUE (Rare Chromosome Disorder Support Group) (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Register events

• Received assets from another charity (24/06/2025) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Helen Elizabeth Campbellchair
• Ben Stern
• Cecely Hugh
• EDNA MARGARET KNIGHT MBE
• FIONA CATHERINE FULTON DE ZOETE
• James Edward Lucas
• SOPHIE PRISCILLA SAINTY
• Shwetha Ramachandrappa

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with RAREMINDS CIO.

• RAREMINDS CIO income £397k
• GENETIC ALLIANCE UK LTD income £886k
• THE CHRONIC GRANULOMATOUS DISORDER SOCIETY income £359k
• ROMA SUPPORT GROUP income £574k
• DOWNRIGHT EXCELLENT income £224k
• DOWN'S SYNDROME ASSOCIATION income £2.7m

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.